Cystic Fibrosis Forum (EXP)

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  1. D

    Atypical CF

    True. To go into the 5 levels of gene explanation it might be wise to read the following link. It is an in depth explanation of many CF issues including the gene classifications. <a target=new class=ftalternatingbarlinklarge...
  2. D

    Carrier daughter is pregnant

    The email didn't get to me because I gave you the wrong address! It is actually diana.james2@bigpond.com.au Sorry about that. Yes I am in Perth. Are you also in Perth Kylie?
  3. D

    Carrier daughter is pregnant

    The email didn't get to me because I gave you the wrong address! It is actually diana.james2@bigpond.com.au Sorry about that. Yes I am in Perth. Are you also in Perth Kylie?
  4. D

    Rash

    I am not sure if it's CF related either but I would say it is definately time to take a trip to the paediatrician. A rash that has spread to such large parts of the body is usually a reaction to something or a symptom of something so my advice is to have it checked out.
  5. D

    Rash

    I am not sure if it's CF related either but I would say it is definately time to take a trip to the paediatrician. A rash that has spread to such large parts of the body is usually a reaction to something or a symptom of something so my advice is to have it checked out.
  6. D

    Atypical CF

    CF is one of those diseases that you just don't know what to expect. When my eldest daughter was diagnosed my whole world crashed down around me and I expected the worst. Well 4 years later she is healthy and lives a normal life (there are very few things I will hold her back from) with the...
  7. D

    Atypical CF

    CF is one of those diseases that you just don't know what to expect. When my eldest daughter was diagnosed my whole world crashed down around me and I expected the worst. Well 4 years later she is healthy and lives a normal life (there are very few things I will hold her back from) with the...
  8. D

    Carrier daughter is pregnant

    I know that in Australia (well Perth anyway) if one parent is a carrier of CF they will test the other parent also and I don't believe it costs anything. Are they moving to Australia as soon as the baby is born or afterwards? I would say that if the baby does have CF then you may see symptoms of...
  9. D

    Carrier daughter is pregnant

    I know that in Australia (well Perth anyway) if one parent is a carrier of CF they will test the other parent also and I don't believe it costs anything. Are they moving to Australia as soon as the baby is born or afterwards? I would say that if the baby does have CF then you may see symptoms of...
  10. D

    CF check ups by Primary Care Physician

    Was posting at the same time as anonymous was answering the question about the mist tent. Sorry.
  11. D

    CF check ups by Primary Care Physician

    Was posting at the same time as anonymous was answering the question about the mist tent. Sorry.
  12. D

    CF check ups by Primary Care Physician

    I have never heard of a mist tent but it sounds intriguing. My girls are very young so I only know what treatments they have received so far, not the older treatment styles. You might want to post your question as a new thread on the adults section maybe with the title of "Mist tent?" and see if...
  13. D

    CF check ups by Primary Care Physician

    I have never heard of a mist tent but it sounds intriguing. My girls are very young so I only know what treatments they have received so far, not the older treatment styles. You might want to post your question as a new thread on the adults section maybe with the title of "Mist tent?" and see if...
  14. D

    Adding extra fat in diet

    Definately daily. Remember as well that there are different types of fats and if we are going to pack our kids food with them, they might as well be the good ones. Yep I am talking about Omega 3. Omega 3 and 6 work best when taken in equal proportions - normal everday fatty foods tend to usually...
  15. D

    Adding extra fat in diet

    Definately daily. Remember as well that there are different types of fats and if we are going to pack our kids food with them, they might as well be the good ones. Yep I am talking about Omega 3. Omega 3 and 6 work best when taken in equal proportions - normal everday fatty foods tend to usually...
  16. D

    How do you deal with Anger

    Anger is a very valid human emotion that usually drives people to get things done. Think of all those people fighting for the CF cause, getting information out there, pushing for studies or better government assistance to be available for those in need. They don't do it for a nice pat on the...
  17. D

    How do you deal with Anger

    Anger is a very valid human emotion that usually drives people to get things done. Think of all those people fighting for the CF cause, getting information out there, pushing for studies or better government assistance to be available for those in need. They don't do it for a nice pat on the...
  18. D

    An indirectly CF related problem

    Your thread has certainly brought a tear to my eye....it's one of those ones where it leaves you thinking about your own family and all the 'what if's'. Any advice given is obviously going to be easier said than done but my suggestion would be to really include Ry's memory as much as possible...
  19. D

    An indirectly CF related problem

    Your thread has certainly brought a tear to my eye....it's one of those ones where it leaves you thinking about your own family and all the 'what if's'. Any advice given is obviously going to be easier said than done but my suggestion would be to really include Ry's memory as much as possible...
  20. D

    Adding extra fat in diet

    I have always been told to add fat and salt to my girls food. My youngest is too young to comment on at this stage but my eldest I have had much experience with. Mikayla has always been of a healthy weight but I still add what fat I can to her food. I spread thicker than normal butter on her...
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