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I tend to go with the idea that clear=ok for now, green = bad and do something about it. In saying that if my girls have clear running fluids for a few days and it's accompanied by a moist cough then I go to the CF clinic for a check up to be safe. Anon does your DS have his 2 year old teeth...

I do not have CF, both of my daughters do, BUT I do get news alerts and found this one of interest the other week regarding a study of CFers health during pregnancy. It's only short and you might like to have a read. <a target=_blank class=ftalternatingbarlinklarge...

Both my girls have CPT twice per day. It does almost seem pointless BUT it actually does work. I didn't realise it until my eldest turned 4 and started to bring up her mucus (she didn't know how to prior to that) and by her huffing and coughing I can tell everytime if she has any congestion. 95%...

Seana don't be alarmed by all this info just yet. When I checked out a list of gram neg bac, it did include those nasty ones that cfers want to avoid but there were a lot of other bacteria to consider also....and I mean "A LOT". So I am guessing your docs said not to worry just yet becasue they...

I don't have too much info for you but thought I would see if anything about my pregnancy would help. When I was pregnant with Elisha (2nd child) I knew there was a risk of CF but I didn't want to find out early so I waited for the birth for the testing to be done. The obstetrician didn't...

I have always been told 30 mins....BUT in saying that I have noticed if feeding takes a little longer and enzymes aren't given, there has been no adverse effects. So maybe 45 mins is more correct. I haven't been told there is a time difference between brands.

From what I know gram negative bacillus is the term to cover a large range of clinical bacteria (not to sound scary). He might have a bug to be treated and they should have been able to identify it through the sputum culture. I am confused too - if they could identify it was gram negative...

The youngest child in the trial was 6 years old so maybe this would be why not all doctors are prescribing it to the young ones. I personally think it is probably a good idea for young CFers who might show signs of wheezing etc to try the 3% solution. Anything to help with extra mucous clearance...

Emily your story just made me laugh too. I can just imagine the crying turned to cheekiness once your figured out all you had to do was wake up in the middle of the night and you would be rewarded vanilla custard. I luv it! Anyways my eldest daughter was prem with CF and she used to wake up...

Wow what a thoughtless comment to have been made....clearly Christian this is the same kind of person who would abort their own baby if they found out it had some kind of deformity etc. Would it change the love they could have given, no, but they would think of how "unfair" their place in...

That is truly wonderful news. I am sure it is a big relief as well for you. I hope the results come back clear as well. XXX

I am not sure of your background but hopefully you a healthy 13 year enjoying your youth. The fact that your mother is a carrier of the gene will become something of interest to you when you are thinking about having your own children (some years away yet). You may already know that both parents...

My brother and his girlfriend ound out they were very unexpectantly pregnant about 3 weeks ago. Because my daughters have CF the rule of thumb is in Australia that if someone related to you has CF, you should be tested. The doc sent them for genetic testing straight away and we were expecting...

Hi there, I too am in a similar situation where a decision needs to be made on when to tell Mikayla who is 4 & 1/2 the full truth of her disease. Right now it is a little premature but I have started to tell her certain things so I can prepare her mind. She is a little obsessed with the concept...

Hi there, I too am in a similar situation where a decision needs to be made on when to tell Mikayla who is 4 & 1/2 the full truth of her disease. Right now it is a little premature but I have started to tell her certain things so I can prepare her mind. She is a little obsessed with the concept...

Electrolytes as far as I know are a good way to replace the salt that a CFer loses. If she has caught a gastro bug (causing her to vomit) then there would be no point trying to get her to eat much until it passes (I recently had one that went for 5 days and couldn't even look at food) however...

Electrolytes as far as I know are a good way to replace the salt that a CFer loses. If she has caught a gastro bug (causing her to vomit) then there would be no point trying to get her to eat much until it passes (I recently had one that went for 5 days and couldn't even look at food) however...

Sounds to me like we are all related.....one big CF family tree! It is a very interesting topic though AND funnily enough I have dark brown hair and eyes and my skin was very tanned as a child, BUT my 2 little CFers were born very white, bright blue eyes and light hair (Mikayla is dark blonde...

Sounds to me like we are all related.....one big CF family tree! It is a very interesting topic though AND funnily enough I have dark brown hair and eyes and my skin was very tanned as a child, BUT my 2 little CFers were born very white, bright blue eyes and light hair (Mikayla is dark blonde...

True. To go into the 5 levels of gene explanation it might be wise to read the following link. It is an in depth explanation of many CF issues including the gene classifications. <a target=new class=ftalternatingbarlinklarge...