Cystic Fibrosis Forum (EXP)

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  1. C

    Treating MRSA

    Unfortunately, there is no good MRSA maintenance drug. There is some anecdotal support, but not much clincal data to support it, that long term use of a tetracycline antibiotic like doxycycline or minocycline will have some effect in suppressing MRSA if you are colonized. My infectious disease...
  2. C

    Treating MRSA

    Unfortunately, there is no good MRSA maintenance drug. There is some anecdotal support, but not much clincal data to support it, that long term use of a tetracycline antibiotic like doxycycline or minocycline will have some effect in suppressing MRSA if you are colonized. My infectious disease...
  3. C

    Tuneup Time?

    I am inclined to say that it is tune up time, but there are a few things I would work out first: 1. Get tied in with your school's disability service. They can advocate for you and pretty much make your professors let you miss class/make up work but only if you work things out with them ahead...
  4. C

    Tuneup Time?

    I am inclined to say that it is tune up time, but there are a few things I would work out first: 1. Get tied in with your school's disability service. They can advocate for you and pretty much make your professors let you miss class/make up work but only if you work things out with them ahead...
  5. C

    Tuneup Time?

    I am inclined to say that it is tune up time, but there are a few things I would work out first: <br /> <br />1. Get tied in with your school's disability service. They can advocate for you and pretty much make your professors let you miss class/make up work but only if you work things out with...
  6. C

    PICC Line Scare

    Ugh, I hate this anti-heparin movement. The new piccs absolutely need it. I have to smuggle heparin-filled syringes into the hospital with me so my picc will still work when I go home (the homecare company uses it). Apparently, my hospital would rather alteplase the heck out of me (generic...
  7. C

    PICC Line Scare

    Ugh, I hate this anti-heparin movement. The new piccs absolutely need it. I have to smuggle heparin-filled syringes into the hospital with me so my picc will still work when I go home (the homecare company uses it). Apparently, my hospital would rather alteplase the heck out of me (generic...
  8. C

    PICC Line Scare

    Ugh, I hate this anti-heparin movement. The new piccs absolutely need it. I have to smuggle heparin-filled syringes into the hospital with me so my picc will still work when I go home (the homecare company uses it). Apparently, my hospital would rather alteplase the heck out of me (generic...
  9. C

    Hermit Crab

    I had land hermit crabs as a kid and no one thought anything about it. Aside from the occasional pinch, I don't believe I had any adverse health effects. I have also had cats and dogs, rode horses, and did the reptile and touch-tank presentations at my local nature center for a summer. The...
  10. C

    Hermit Crab

    I had land hermit crabs as a kid and no one thought anything about it. Aside from the occasional pinch, I don't believe I had any adverse health effects. I have also had cats and dogs, rode horses, and did the reptile and touch-tank presentations at my local nature center for a summer. The...
  11. C

    Hermit Crab

    I had land hermit crabs as a kid and no one thought anything about it. Aside from the occasional pinch, I don't believe I had any adverse health effects. I have also had cats and dogs, rode horses, and did the reptile and touch-tank presentations at my local nature center for a summer. The...
  12. C

    Minute Clinic--guess we can't go there any more

    I would call her PCP for this one. Don't forget that your daughter is a regular human being who happens to have/maybe has CF. Therefore she can get all the bugs that your standard kid can get. Personally, if I have a "normal" bug, I want to be seen by the person who sees it all the time and...
  13. C

    Minute Clinic--guess we can't go there any more

    I would call her PCP for this one. Don't forget that your daughter is a regular human being who happens to have/maybe has CF. Therefore she can get all the bugs that your standard kid can get. Personally, if I have a "normal" bug, I want to be seen by the person who sees it all the time and...
  14. C

    Minute Clinic--guess we can't go there any more

    I would call her PCP for this one. Don't forget that your daughter is a regular human being who happens to have/maybe has CF. Therefore she can get all the bugs that your standard kid can get. Personally, if I have a "normal" bug, I want to be seen by the person who sees it all the time and...
  15. C

    prednisone pre-transplant

    I used to take prednisone pretty much whenever I had a more stubborn/severe exacerbation. I started at 40 mgs and would taper down in 10 mg intervals over a few weeks. I loved it, too! Apparently, that's pretty uncommon as at my last tx educational seminar (I'm pre-tx) everyone in the crowd...
  16. C

    prednisone pre-transplant

    I used to take prednisone pretty much whenever I had a more stubborn/severe exacerbation. I started at 40 mgs and would taper down in 10 mg intervals over a few weeks. I loved it, too! Apparently, that's pretty uncommon as at my last tx educational seminar (I'm pre-tx) everyone in the crowd...
  17. C

    prednisone pre-transplant

    I used to take prednisone pretty much whenever I had a more stubborn/severe exacerbation. I started at 40 mgs and would taper down in 10 mg intervals over a few weeks. I loved it, too! Apparently, that's pretty uncommon as at my last tx educational seminar (I'm pre-tx) everyone in the crowd...
  18. C

    guardasil shot

    I don't know why you wouldn't get it, especially since you are post-tx (assuming you tx docs said it was ok). Like Caitlin said, I remember it hurting more than I would have expected but otherwise no reactions. I got the shot because there is so much HPV out there (both high-risk for cancer...
  19. C

    guardasil shot

    I don't know why you wouldn't get it, especially since you are post-tx (assuming you tx docs said it was ok). Like Caitlin said, I remember it hurting more than I would have expected but otherwise no reactions. I got the shot because there is so much HPV out there (both high-risk for cancer...
  20. C

    guardasil shot

    I don't know why you wouldn't get it, especially since you are post-tx (assuming you tx docs said it was ok). Like Caitlin said, I remember it hurting more than I would have expected but otherwise no reactions. I got the shot because there is so much HPV out there (both high-risk for cancer...
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