Cystic Fibrosis Forum (EXP)

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  1. I

    A Letter to My Son

    Sandy, What a truly beautiful tribute to your son. Many, many hugs enveloping you tonight and days ahead.... Blessed be the memory of your beloved son. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
  2. I

    A Letter to My Son

    Sandy, What a truly beautiful tribute to your son. Many, many hugs enveloping you tonight and days ahead.... Blessed be the memory of your beloved son. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
  3. I

    A Letter to My Son

    Sandy, What a truly beautiful tribute to your son. Many, many hugs enveloping you tonight and days ahead.... Blessed be the memory of your beloved son. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
  4. I

    A Letter to My Son

    Sandy, What a truly beautiful tribute to your son. Many, many hugs enveloping you tonight and days ahead.... Blessed be the memory of your beloved son. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
  5. I

    A Letter to My Son

    Sandy, What a truly beautiful tribute to your son. Many, many hugs enveloping you tonight and days ahead.... Blessed be the memory of your beloved son. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
  6. I

    CONGRATULATIONS TO STEVE FROM AMBRY!

    Congrats to you and your wife and Happy Birthday to the little one!
  7. I

    CONGRATULATIONS TO STEVE FROM AMBRY!

    Congrats to you and your wife and Happy Birthday to the little one!
  8. I

    CONGRATULATIONS TO STEVE FROM AMBRY!

    Congrats to you and your wife and Happy Birthday to the little one!
  9. I

    CONGRATULATIONS TO STEVE FROM AMBRY!

    Congrats to you and your wife and Happy Birthday to the little one!
  10. I

    CONGRATULATIONS TO STEVE FROM AMBRY!

    Congrats to you and your wife and Happy Birthday to the little one!
  11. I

    CONGRATULATIONS TO STEVE FROM AMBRY!

    Congrats to you and your wife and Happy Birthday to the little one!
  12. I

    Anyone had negative gene test?????

    My son tested positive twice on his sweat tests and has had 2 gene anaylsis done (extended panel, ambry) with no mutations found. His pulmo diagnosed him with CF. I think the sweat test is an important tool to use along with all the other tests and symptoms. As the other poster stated, make...
  13. I

    Anyone had negative gene test?????

    My son tested positive twice on his sweat tests and has had 2 gene anaylsis done (extended panel, ambry) with no mutations found. His pulmo diagnosed him with CF. I think the sweat test is an important tool to use along with all the other tests and symptoms. As the other poster stated, make...
  14. I

    Anyone had negative gene test?????

    My son tested positive twice on his sweat tests and has had 2 gene anaylsis done (extended panel, ambry) with no mutations found. His pulmo diagnosed him with CF. I think the sweat test is an important tool to use along with all the other tests and symptoms. As the other poster stated, make...
  15. I

    Welcome Ambry Genetics

    Steven (Ambry) JJ, thanks for the links to the articles (I have read two), very interesting...
  16. I

    Welcome Ambry Genetics

    I am curious too (about the number/percentage of people with no mutations found with a CF diagnosis with the amplified testing from Ambry) as I know you (Steve) had stated that it is very unlikely not to find two mutations when there are definate symptoms of CF. My son's mutations have not been...
  17. I

    Mark is 26 today!!!!!!!!!!!!

    Happy Birthday Mark (we share a birthday)! Hope the babies (and Momma) are doing fine! They are adorable!
  18. I

    Mark is 26 today!!!!!!!!!!!!

    Happy Birthday Mark (we share a birthday)! Hope the babies (and Momma) are doing fine! They are adorable!
  19. I

    Mark is 26 today!!!!!!!!!!!!

    Happy Birthday Mark (we share a birthday)! Hope the babies (and Momma) are doing fine! They are adorable!
  20. I

    For the Ambry guy: mutation mystery

    Interesting, as my son (who is 12) has been diagnosed with CF by his pulmo. He had 2 positive sweat tests, his DNA tests (first Genzyme, than Ambry) revealed no known mutations. His doctor is not concerned with finding his mutations at this point. He is below 5% for weight, has had moderate...
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