Cystic Fibrosis Forum (EXP)

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  1. I

    Swimming in Lake water?

    When we lived in Pa. and Ohio, my children swam in lakes all the time and hardly ever got sick or came down with anything. When we moved to Oklahoma it was a different story. The temps did not get unbearably hot in the former places. In Oklahoma/Texas we would have endless days of 100+...
  2. I

    Memorial Day

    In rememberence to all our Vets... <a target=_blank class=ftalternatingbarlinklarge href="http://www.usmemorialday.org/audio/taps.rm">http://www.usmemorialday.org/audio/taps.rm</a>
  3. I

    single mom/Cf child 4 recommended for transplant

    Patty, it sounds like you are going through a very stressful and difficult time in your life right now and you sound like a very strong woman. Who is your support system right now (Mom, Dad, sibs)? May you find the strength to be a "super Mom". Take care and I hope that all goes well with...
  4. I

    Why it's good to know your mutations...

    The subject on mutations is a "bothersome" one with me. My son's mutations have not been found yet. Just the other day I brought it up to his pulmo (again). His pulmo was the director of the CF clinic here in Oklahoma City for several years before going into private practice. He sees no...
  5. I

    It's 65rosessamurai's Birthday

    Happy Birthday Fred! <img src="http://www.monkeymoments.net/BIRTHDAY.JPG">
  6. I

    Website updated

    Wow Julie, those pictures are amazing! They are all so adorable!
  7. I

    Prayers and Thoughts

    Sending very good thoughts and prayers to Martha that all goes well today. I am familiar with Pittsburgh (having been raised near there). She is in good hands. Sandra
  8. I

    An Amazing Day and Night

    Congratulations Jennifer! You have accomplished so much and should be very, very proud of yourself! Big round of applause....
  9. I

    My Son

    Sandy, Sending thoughts your way on this difficult day. May you continue to heal. Blessed be the memory of your wonderful son, Matt.
  10. I

    The year of night

    Allie, may your heart begin to heal. We too have a rememberence on May 5.
  11. I

    Going into hospital

    Good luck Liz, hope you get to feeling better.
  12. I

    He's a college graduate!!!!

    Congrats to Mark!
  13. I

    Hi All - Finally

    She sure is a beauty!
  14. I

    Calling ALL Forum Users!!!

    I know that I had lots of questions and needed lots of answers when my son was being diagnosed/tested. I have been to many, many CF sites over the last 8 months and besides the forums (which is a great one on one tool), the best and most informative site on just about any aspect of this disease...
  15. I

    Science Question Regarding CF

    Good luck Katie!
  16. I

    Baby updates and pictures as requested :)

    They are growing so fast, and sooo adorable! Remember to rest plenty and eat right!
  17. I

    Julie

    Here is a link that may be of some help: <a target=_blank class=ftalternatingbarlinklarge href="http://www.tricaredentalprogram.com/tdptws/enrollees/eligibility/eligibility.jsp">http://www.tricaredentalprogra...bility/eligibility.jsp</a>
  18. I

    Advice for my baby...

    Awwww Janet, its ok, we have all had "one of those days"...lol
  19. I

    Advice for my baby...

    Julie, I am the one who directed Steven here. You had stated several times that Quest was better. Having my son's blood sent to Ambry and being a concerned parent, I wanted to know what was better about Quest and had asked Steven at Ambry about the discrepensies (sp) in the two tests. He had...
  20. I

    Advice for my baby...

    I have had some questions lately for Steven at Ambry and he emails right back with the answers. Very helpful!
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