Cystic Fibrosis Forum (EXP)

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  1. I

    Genetic testing for mutations

    Amy, if you don't mind me asking, have you already had Ambry do a test? What was your sweat test results? Thanks.
  2. I

    Update on Greg

    Wow! Really good news. Hope you all have a wonderful homecoming!
  3. I

    Genetic testing for mutations

    Just wondering if anyone has had the Ambry test with no known mutations found and then had the Quest done with mutations found?
  4. I

    Erin's Website

    She is precious. The picture with her gloworm is absolutely adorable!
  5. I

    daughter diagnosed yesterday...need guidance

    Maria, thanks for the info. I have been researching and asking questions since July (when my son started to show salt crystals in his eyebrows/forehead). He is scheduled in Dec. to see an endo (my suggestion to his pulmo). My concern is that I keep seeing other parents saying their child is...
  6. I

    Allan died this morning.

    My condolences to you and Allan's family. Blessed be the memory of your loved one...
  7. I

    daughter diagnosed yesterday...need guidance

    My son had 3 sweat tests - 2 were positive (65 cl and 77 cl) 1 was borderline (50) all done at an accredited hospital. His pulmo. did several other tests (fat fecal, throat culture, pft's, chest xray) all of those are normal. His ct scan of his sinuses came back with mild changes (he has an...
  8. I

    Update on Allan (WinAce)

    I enjoy reading Allan's posts and his great sense of humor shines through! My thoughts and prayers are with you all. There are many pages left to be written.....
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