Cystic Fibrosis Forum (EXP)

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  1. B

    Daughter colonized with psuedomonas

    My daughter will be 3 in January. She has cultured pseudomonas 2 times and had a 10 day hospital stay to try and eradicate it. Her results just came back that she cultured again. So they consider her colonized. Did we just take a wrong turn in our CF battle? I feel like this is really bad...
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    Daughter in hospital

    Avery is doing great! We did the tune up and now are at home. We are adjusting to a new chest therapy and breathing treatment routine, but it is not much harder than before. As far as my husband and I go, we are doing much better since out of the hospital. I agree with many of the posts...
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    Daughter in hospital

    Avery is doing great! We did the tune up and now are at home. We are adjusting to a new chest therapy and breathing treatment routine, but it is not much harder than before. As far as my husband and I go, we are doing much better since out of the hospital. I agree with many of the posts...
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    Daughter in hospital

    Avery is doing great! We did the tune up and now are at home. We are adjusting to a new chest therapy and breathing treatment routine, but it is not much harder than before. <br /> <br />As far as my husband and I go, we are doing much better since out of the hospital. I agree with many of...
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    Daughter in hospital

    So my daughter is in the hospital for a tune up. She has been in for 4 days. My husband are at each others throats. We are so annoyed with each other. I am here by myself all day and he comes after work and then drives home (which is 1hr away). Is this pretty typical for parents to be while...
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    Daughter in hospital

    So my daughter is in the hospital for a tune up. She has been in for 4 days. My husband are at each others throats. We are so annoyed with each other. I am here by myself all day and he comes after work and then drives home (which is 1hr away). Is this pretty typical for parents to be while...
  7. B

    Daughter in hospital

    So my daughter is in the hospital for a tune up. She has been in for 4 days. My husband are at each others throats. We are so annoyed with each other. I am here by myself all day and he comes after work and then drives home (which is 1hr away). Is this pretty typical for parents to be while...
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    Will this be our first hospital stay?

    My daughter is almost three. She has cultured psuedomonas three times. They are not all in a row. But she cultured it on October 12th again. She got a cold on October 24th. We of course are on TOBI/Cipro for the psuedo and did a five day stint on steroids. So we are looking at 15 days of...
  9. B

    Will this be our first hospital stay?

    My daughter is almost three. She has cultured psuedomonas three times. They are not all in a row. But she cultured it on October 12th again. She got a cold on October 24th. We of course are on TOBI/Cipro for the psuedo and did a five day stint on steroids. So we are looking at 15 days of...
  10. B

    Will this be our first hospital stay?

    My daughter is almost three. She has cultured psuedomonas three times. They are not all in a row. But she cultured it on October 12th again. She got a cold on October 24th. We of course are on TOBI/Cipro for the psuedo and did a five day stint on steroids. So we are looking at 15 days of...
  11. B

    September 11

    I was getting ready to leave for a Poli-Sci test in college. I saw the news and woke up my roommates. I actually watched the second plane hit live on TV. It gives me goosebumps thinking about it. We all were glued to the TV the rest of the day. Needless to say I called my prof and told him I...
  12. B

    September 11

    I was getting ready to leave for a Poli-Sci test in college. I saw the news and woke up my roommates. I actually watched the second plane hit live on TV. It gives me goosebumps thinking about it. We all were glued to the TV the rest of the day. Needless to say I called my prof and told him I...
  13. B

    September 11

    I was getting ready to leave for a Poli-Sci test in college. I saw the news and woke up my roommates. I actually watched the second plane hit live on TV. It gives me goosebumps thinking about it. We all were glued to the TV the rest of the day. Needless to say I called my prof and told him I...
  14. B

    Frustrated with husband

    You guys made me feel better! My mil said the same thing, but I just chalked that one up to her being on his side!! Haha! When it comes from you, it sounds better!!! I do agree it just hurt me more in his bluntness. I need to buck up and not be so sensitive! Thanks!
  15. B

    Frustrated with husband

    You guys made me feel better! My mil said the same thing, but I just chalked that one up to her being on his side!! Haha! When it comes from you, it sounds better!!! I do agree it just hurt me more in his bluntness. I need to buck up and not be so sensitive! Thanks!
  16. B

    Frustrated with husband

    You guys made me feel better! My mil said the same thing, but I just chalked that one up to her being on his side!! Haha! When it comes from you, it sounds better!!! <br /> <br />I do agree it just hurt me more in his bluntness. I need to buck up and not be so sensitive! <br /> <br />Thanks!
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    Frustrated with husband

    So at dinner tonight my husband said, "Oh, my old college buddy has a connection with CF. He was going to marry this girl with CF, but she died before they could get married." I just dropped my head and was apphauled at how brutal he was in saying this. We have a 2 1/2 year old with CF and I...
  18. B

    Frustrated with husband

    So at dinner tonight my husband said, "Oh, my old college buddy has a connection with CF. He was going to marry this girl with CF, but she died before they could get married." I just dropped my head and was apphauled at how brutal he was in saying this. We have a 2 1/2 year old with CF and I...
  19. B

    Frustrated with husband

    So at dinner tonight my husband said, "Oh, my old college buddy has a connection with CF. He was going to marry this girl with CF, but she died before they could get married." I just dropped my head and was apphauled at how brutal he was in saying this. <br /> <br />We have a 2 1/2 year old...
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    Cirpo

    Okay, so my dr said it was okay to dilute to put down the feeding tube...whether or not this is REALLY okay I am not sure.... We would fill a syringe with the amount called for on the prescription then add water to fill the rest of the syringe. Then put down the tube. Then flush several times...
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