Cystic Fibrosis Forum (EXP)

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  1. B

    Letter to Insurance

    I need some help here! I have been looking to find a couple of costs associated with Cystic Fibrosis. I need the following and let me know if you know where I can find the information: Yearly average medical costs associated with Cystic Fibrosis Average cost of a lung transplant Thanks for...
  2. B

    Letter to Insurance

    I need some help here! I have been looking to find a couple of costs associated with Cystic Fibrosis. I need the following and let me know if you know where I can find the information: Yearly average medical costs associated with Cystic Fibrosis Average cost of a lung transplant Thanks for...
  3. B

    Letter to Insurance

    I need some help here! I have been looking to find a couple of costs associated with Cystic Fibrosis. I need the following and let me know if you know where I can find the information: <br /> <br />Yearly average medical costs associated with Cystic Fibrosis <br /> <br />Average cost of a lung...
  4. B

    Anyone fight insurance for IVF coverage?

    I am going to put together a letter and information packet for the grievance board for my insurance company. We have a max of $1OK to cover our IVF and it is not enough to cover IVF and PGD. We are going to fight to have it covered under the arguement it would be cheaper for them to cover our...
  5. B

    Anyone fight insurance for IVF coverage?

    I am going to put together a letter and information packet for the grievance board for my insurance company. We have a max of $1OK to cover our IVF and it is not enough to cover IVF and PGD. We are going to fight to have it covered under the arguement it would be cheaper for them to cover our...
  6. B

    Anyone fight insurance for IVF coverage?

    I am going to put together a letter and information packet for the grievance board for my insurance company. We have a max of $1OK to cover our IVF and it is not enough to cover IVF and PGD. We are going to fight to have it covered under the arguement it would be cheaper for them to cover our...
  7. B

    CF Author Leah Orr on Lifetime TV with new book Messy Tessy

    Way to go Leah! That was a great interview!! The book looks wonderful!
  8. B

    CF Author Leah Orr on Lifetime TV with new book Messy Tessy

    Way to go Leah! That was a great interview!! The book looks wonderful!
  9. B

    CF Author Leah Orr on Lifetime TV with new book Messy Tessy

    Way to go Leah! That was a great interview!! The book looks wonderful!
  10. B

    Great Strides Brainstorming

    We are having a brainstorming session for next year's Great Strides Walk. We want to make it bigger and better than this year. What do you like about your Great Strides Walk? What would you like to see at your Walk?
  11. B

    Great Strides Brainstorming

    We are having a brainstorming session for next year's Great Strides Walk. We want to make it bigger and better than this year. What do you like about your Great Strides Walk? What would you like to see at your Walk?
  12. B

    Great Strides Brainstorming

    We are having a brainstorming session for next year's Great Strides Walk. We want to make it bigger and better than this year. What do you like about your Great Strides Walk? What would you like to see at your Walk?
  13. B

    Okay, almost in tears-frustrated

    Okay I am feeling better about this. I guess I misunderstood that if you have psuedo then you go straight to the hospital and there were no questions. I didn't realized you could keep on TOBI or do home IV's. We are learning as we go.... Thank God for this site! I don't know what I would do...
  14. B

    Okay, almost in tears-frustrated

    Okay I am feeling better about this. I guess I misunderstood that if you have psuedo then you go straight to the hospital and there were no questions. I didn't realized you could keep on TOBI or do home IV's. We are learning as we go.... Thank God for this site! I don't know what I would do...
  15. B

    Okay, almost in tears-frustrated

    Okay I am feeling better about this. I guess I misunderstood that if you have psuedo then you go straight to the hospital and there were no questions. I didn't realized you could keep on TOBI or do home IV's. We are learning as we go.... <br /> <br />Thank God for this site! I don't know...
  16. B

    Okay, almost in tears-frustrated

    My daughter has cultured psuedomonas twice. We go in June 8th for a throat culture. It was my understanding we would go into the hospital if she cultures again. My dr says there is no proof that IV treatment would get rid of it. I feel like he is telling us not to do the hospital and just be...
  17. B

    Okay, almost in tears-frustrated

    My daughter has cultured psuedomonas twice. We go in June 8th for a throat culture. It was my understanding we would go into the hospital if she cultures again. My dr says there is no proof that IV treatment would get rid of it. I feel like he is telling us not to do the hospital and just be...
  18. B

    Okay, almost in tears-frustrated

    My daughter has cultured psuedomonas twice. We go in June 8th for a throat culture. It was my understanding we would go into the hospital if she cultures again. My dr says there is no proof that IV treatment would get rid of it. I feel like he is telling us not to do the hospital and just be...
  19. B

    Psuedomonas and hospital stay....question

    I hope I can communicate this right. Here goes... My daughter has cultured psuedomonas twice. These are her first bad cultures. She is almost 2 1/2. We are finishing up TOBI and cipro now. We go into clinic in next Tuesday for a throat culture. We go on vacation on Friday morning for a...
  20. B

    Psuedomonas and hospital stay....question

    I hope I can communicate this right. Here goes... My daughter has cultured psuedomonas twice. These are her first bad cultures. She is almost 2 1/2. We are finishing up TOBI and cipro now. We go into clinic in next Tuesday for a throat culture. We go on vacation on Friday morning for a...
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