Cystic Fibrosis Forum (EXP)

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  1. B

    Cirpo

    Okay, so my dr said it was okay to dilute to put down the feeding tube...whether or not this is REALLY okay I am not sure.... We would fill a syringe with the amount called for on the prescription then add water to fill the rest of the syringe. Then put down the tube. Then flush several times...
  2. B

    Cirpo

    Okay, so my dr said it was okay to dilute to put down the feeding tube...whether or not this is REALLY okay I am not sure.... <br /> <br />We would fill a syringe with the amount called for on the prescription then add water to fill the rest of the syringe. Then put down the tube. Then flush...
  3. B

    Cook Children's in Fort Worth, Texas

    We see Dr Cunningham and really like him and the team! Please pm me if you have any questions. I was also on the family advisory board there for awhile.
  4. B

    Cook Children's in Fort Worth, Texas

    We see Dr Cunningham and really like him and the team! Please pm me if you have any questions. I was also on the family advisory board there for awhile.
  5. B

    Cook Children's in Fort Worth, Texas

    We see Dr Cunningham and really like him and the team! Please pm me if you have any questions. I was also on the family advisory board there for awhile.
  6. B

    Reflux, Reglan and related questions

    I would be hesitant about reglan as well. My daughter was tested for epilepsy b/c of ticks. Looks like it was the reglan she was on. She does not have anymore ticks, but they took her off of it very quickly!
  7. B

    Reflux, Reglan and related questions

    I would be hesitant about reglan as well. My daughter was tested for epilepsy b/c of ticks. Looks like it was the reglan she was on. She does not have anymore ticks, but they took her off of it very quickly!
  8. B

    Reflux, Reglan and related questions

    I would be hesitant about reglan as well. My daughter was tested for epilepsy b/c of ticks. Looks like it was the reglan she was on. She does not have anymore ticks, but they took her off of it very quickly!
  9. B

    When do the questions about CF start?

    My daughter is 2 1/2 years old. She is getting to the age were she is more alert to her surrounding and more talkative. So far CF is all she knows. She does her treatments in front of other kids as well as her feedings through her tube. At what age do they realize they are a little...
  10. B

    When do the questions about CF start?

    My daughter is 2 1/2 years old. She is getting to the age were she is more alert to her surrounding and more talkative. So far CF is all she knows. She does her treatments in front of other kids as well as her feedings through her tube. At what age do they realize they are a little...
  11. B

    When do the questions about CF start?

    My daughter is 2 1/2 years old. She is getting to the age were she is more alert to her surrounding and more talkative. So far CF is all she knows. She does her treatments in front of other kids as well as her feedings through her tube. <br /> <br />At what age do they realize they are a...
  12. B

    nissen surgery

    My daughter is 2 1/2yrs old. Her drs were suggesting it when she had her g-tube put in at 10months. At that point our Avery was throwing up a lot. It seemed to go in spurts where she would throw up for a week straight and then it would die down. Since she was so intermittent with the reflux...
  13. B

    nissen surgery

    My daughter is 2 1/2yrs old. Her drs were suggesting it when she had her g-tube put in at 10months. At that point our Avery was throwing up a lot. It seemed to go in spurts where she would throw up for a week straight and then it would die down. Since she was so intermittent with the reflux...
  14. B

    nissen surgery

    My daughter is 2 1/2yrs old. Her drs were suggesting it when she had her g-tube put in at 10months. At that point our Avery was throwing up a lot. It seemed to go in spurts where she would throw up for a week straight and then it would die down. Since she was so intermittent with the reflux...
  15. B

    in need of help PLEASE

    I would definitely take her in. Even if they tell you the same thing, at least it is some peace of mind. I will speak from my experience. My daughter's issues are heavy on the digestive side. I compare her stomach to a chemistry set. If all of her meds/food are not all perfectly in line...
  16. B

    in need of help PLEASE

    I would definitely take her in. Even if they tell you the same thing, at least it is some peace of mind. I will speak from my experience. My daughter's issues are heavy on the digestive side. I compare her stomach to a chemistry set. If all of her meds/food are not all perfectly in line...
  17. B

    in need of help PLEASE

    I would definitely take her in. Even if they tell you the same thing, at least it is some peace of mind. <br /> <br />I will speak from my experience. My daughter's issues are heavy on the digestive side. I compare her stomach to a chemistry set. If all of her meds/food are not all...
  18. B

    Letter to Insurance

    bump up.....
  19. B

    Letter to Insurance

    bump up.....
  20. B

    Letter to Insurance

    bump up.....
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