Cystic Fibrosis Forum (EXP)

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  1. L

    I need some input and support desperately!!!

    I am sure your doctor knows what he is doing, but 2 things come to mind that could have been missed (with cf, I have learnt that everything affects everything else - something unrelated could be causing breathlessness for instance) 1.) have you had a glucose tolerance test for CF diabetes? 2.)...
  2. L

    I need some input and support desperately!!!

    I am sure your doctor knows what he is doing, but 2 things come to mind that could have been missed (with cf, I have learnt that everything affects everything else - something unrelated could be causing breathlessness for instance) 1.) have you had a glucose tolerance test for CF diabetes? 2.)...
  3. L

    I need some input and support desperately!!!

    I am sure your doctor knows what he is doing, but 2 things come to mind that could have been missed (with cf, I have learnt that everything affects everything else - something unrelated could be causing breathlessness for instance) <br />1.) have you had a glucose tolerance test for CF diabetes...
  4. L

    anyone need a vest that is having difficulty getting one?

    I am a 30 y old female, and would definitely be interested, as I have never had a vest - there is no way in South Africa to get access to a vest other than to buy it new (insane amount of money). I had the opportunity to try one out recently (a demo unit), so I think Hilrom does have a rep here...
  5. L

    anyone need a vest that is having difficulty getting one?

    I am a 30 y old female, and would definitely be interested, as I have never had a vest - there is no way in South Africa to get access to a vest other than to buy it new (insane amount of money). I had the opportunity to try one out recently (a demo unit), so I think Hilrom does have a rep here...
  6. L

    anyone need a vest that is having difficulty getting one?

    I am a 30 y old female, and would definitely be interested, as I have never had a vest - there is no way in South Africa to get access to a vest other than to buy it new (insane amount of money). I had the opportunity to try one out recently (a demo unit), so I think Hilrom does have a rep here...
  7. L

    anyone need a vest that is having difficulty getting one?

    I am a 30 y old female, and would definitely be interested, as I have never had a vest - there is no way in South Africa to get access to a vest other than to buy it new (insane amount of money). I had the opportunity to try one out recently (a demo unit), so I think Hilrom does have a rep here...
  8. L

    anyone need a vest that is having difficulty getting one?

    I am a 30 y old female, and would definitely be interested, as I have never had a vest - there is no way in South Africa to get access to a vest other than to buy it new (insane amount of money). I had the opportunity to try one out recently (a demo unit), so I think Hilrom does have a rep here...
  9. L

    Compact Nebulizer?

    This is the portable one I use and love. I have no knowledge on whether it is approved for anything, just my own experience which is the following: It is great for travel because it is tiny and works either with the battery pack for about 2 sessions, or with the car adapter or plugged into the...
  10. L

    Compact Nebulizer?

    This is the portable one I use and love. I have no knowledge on whether it is approved for anything, just my own experience which is the following: It is great for travel because it is tiny and works either with the battery pack for about 2 sessions, or with the car adapter or plugged into the...
  11. L

    Compact Nebulizer?

    This is the portable one I use and love. I have no knowledge on whether it is approved for anything, just my own experience which is the following: It is great for travel because it is tiny and works either with the battery pack for about 2 sessions, or with the car adapter or plugged into the...
  12. L

    Compact Nebulizer?

    This is the portable one I use and love. I have no knowledge on whether it is approved for anything, just my own experience which is the following: It is great for travel because it is tiny and works either with the battery pack for about 2 sessions, or with the car adapter or plugged into the...
  13. L

    Compact Nebulizer?

    This is the portable one I use and love. I have no knowledge on whether it is approved for anything, just my own experience which is the following: <br />It is great for travel because it is tiny and works either with the battery pack for about 2 sessions, or with the car adapter or plugged into...
  14. L

    My friend Pseudomonas!

    I also use the tobramycin IV for nebbing (Tobi not avail here in SA as far as I know). I use 2x 80mg 2ml vials undiluted, once a day. After bronchodilator+hypertonic saline/physio. I have not really used it long term, usually a month at a time although I <i>think</i> the practice here is to use...
  15. L

    My friend Pseudomonas!

    I also use the tobramycin IV for nebbing (Tobi not avail here in SA as far as I know). I use 2x 80mg 2ml vials undiluted, once a day. After bronchodilator+hypertonic saline/physio. I have not really used it long term, usually a month at a time although I <i>think</i> the practice here is to use...
  16. L

    My friend Pseudomonas!

    I also use the tobramycin IV for nebbing (Tobi not avail here in SA as far as I know). I use 2x 80mg 2ml vials undiluted, once a day. After bronchodilator+hypertonic saline/physio. I have not really used it long term, usually a month at a time although I <i>think</i> the practice here is to use...
  17. L

    My friend Pseudomonas!

    I also use the tobramycin IV for nebbing (Tobi not avail here in SA as far as I know). I use 2x 80mg 2ml vials undiluted, once a day. After bronchodilator+hypertonic saline/physio. I have not really used it long term, usually a month at a time although I <i>think</i> the practice here is to use...
  18. L

    My friend Pseudomonas!

    I also use the tobramycin IV for nebbing (Tobi not avail here in SA as far as I know). <br />I use 2x 80mg 2ml vials undiluted, once a day. After bronchodilator+hypertonic saline/physio. I have not really used it long term, usually a month at a time although I <i>think</i> the practice here is...
  19. L

    Oxygen questions

    I can only comment on the sleep thing...After battling with chronic unexplained tiredness for a long time, I have been on night 02 for 4 months now and it has made a huge difference. I feel positive about it because I now sleep much better, previously I slept really restless and had tons of...
  20. L

    Oxygen questions

    I can only comment on the sleep thing...After battling with chronic unexplained tiredness for a long time, I have been on night 02 for 4 months now and it has made a huge difference. I feel positive about it because I now sleep much better, previously I slept really restless and had tons of...
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