Cystic Fibrosis Forum (EXP)

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  1. C

    we made our decision

    CJ and I talked it over and we decided to go to Albany's CF center to seek a 2nd opinion. Does anyone else go there? If so, can u PM me with your opinions about the doc there? <br />I actually left the decision up to him. He is 13 and old enough to choose. Its his body that will be tested...
  2. C

    I'm confused

    I'm going thru the same thing right now with my son too. The docs keep mentioning it but the CF doc thinks its 'unlikely' because he had a borderline sweat test. The doc also doesn't believe that my sons uncle has CF (he was diagnosed in the late 70's) because he has atypical symptoms. Right now...
  3. C

    I'm confused

    I'm going thru the same thing right now with my son too. The docs keep mentioning it but the CF doc thinks its 'unlikely' because he had a borderline sweat test. The doc also doesn't believe that my sons uncle has CF (he was diagnosed in the late 70's) because he has atypical symptoms. Right now...
  4. C

    I'm confused

    I'm going thru the same thing right now with my son too. The docs keep mentioning it but the CF doc thinks its 'unlikely' because he had a borderline sweat test. The doc also doesn't believe that my sons uncle has CF (he was diagnosed in the late 70's) because he has atypical symptoms. Right now...
  5. C

    I'm confused

    I'm going thru the same thing right now with my son too. The docs keep mentioning it but the CF doc thinks its 'unlikely' because he had a borderline sweat test. The doc also doesn't believe that my sons uncle has CF (he was diagnosed in the late 70's) because he has atypical symptoms. Right now...
  6. C

    I'm confused

    I'm going thru the same thing right now with my son too. The docs keep mentioning it but the CF doc thinks its 'unlikely' because he had a borderline sweat test. The doc also doesn't believe that my sons uncle has CF (he was diagnosed in the late 70's) because he has atypical symptoms. Right now...
  7. C

    am I crazy, how can this make sense

    Andee, no worries, it happened along time ago and we're way beyond it <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm going to call Ambrey 2morrow and ask for the test kit. I was under the impression that his CF doc had to be the one to complete the paperwork making it...
  8. C

    am I crazy, how can this make sense

    Andee, no worries, it happened along time ago and we're way beyond it <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm going to call Ambrey 2morrow and ask for the test kit. I was under the impression that his CF doc had to be the one to complete the paperwork making it...
  9. C

    am I crazy, how can this make sense

    Andee, no worries, it happened along time ago and we're way beyond it <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm going to call Ambrey 2morrow and ask for the test kit. I was under the impression that his CF doc had to be the one to complete the paperwork making it...
  10. C

    am I crazy, how can this make sense

    Andee, no worries, it happened along time ago and we're way beyond it <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm going to call Ambrey 2morrow and ask for the test kit. I was under the impression that his CF doc had to be the one to complete the paperwork making it...
  11. C

    am I crazy, how can this make sense

    Andee, no worries, it happened along time ago and we're way beyond it <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br /> <br />I'm going to call Ambrey 2morrow and ask for the test kit. I was under the impression that his CF doc had to be the one to complete the paperwork...
  12. C

    am I crazy, how can this make sense

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnD</b></i> Just a thought, but can you ask <i>your</i> doctor to get both you and your son's father tested with the full Ambry- to rule out being carriers, based on family history? If you both come back positive, then you will know...
  13. C

    am I crazy, how can this make sense

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnD</b></i> Just a thought, but can you ask <i>your</i> doctor to get both you and your son's father tested with the full Ambry- to rule out being carriers, based on family history? If you both come back positive, then you will know...
  14. C

    am I crazy, how can this make sense

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnD</b></i> Just a thought, but can you ask <i>your</i> doctor to get both you and your son's father tested with the full Ambry- to rule out being carriers, based on family history? If you both come back positive, then you will know...
  15. C

    am I crazy, how can this make sense

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnD</b></i> Just a thought, but can you ask <i>your</i> doctor to get both you and your son's father tested with the full Ambry- to rule out being carriers, based on family history? If you both come back positive, then you will know...
  16. C

    am I crazy, how can this make sense

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnD</b></i> <br /> <br />Just a thought, but can you ask <i>your</i> doctor to get both you and your son's father tested with the full Ambry- to rule out being carriers, based on family history? If you both come back positive, then...
  17. C

    am I crazy, how can this make sense

    thanks for your replies. The insurance co said they won't cover ANY genetic testing unless it is deemed medically necessary. I am willing (if I absolutely have to) to pay for the 23 mutation testing out of pocket but I certainly cannot afford the full testing. Also, we have only met with this...
  18. C

    am I crazy, how can this make sense

    thanks for your replies. The insurance co said they won't cover ANY genetic testing unless it is deemed medically necessary. I am willing (if I absolutely have to) to pay for the 23 mutation testing out of pocket but I certainly cannot afford the full testing. Also, we have only met with this...
  19. C

    am I crazy, how can this make sense

    thanks for your replies. The insurance co said they won't cover ANY genetic testing unless it is deemed medically necessary. I am willing (if I absolutely have to) to pay for the 23 mutation testing out of pocket but I certainly cannot afford the full testing. Also, we have only met with this...
  20. C

    am I crazy, how can this make sense

    thanks for your replies. The insurance co said they won't cover ANY genetic testing unless it is deemed medically necessary. I am willing (if I absolutely have to) to pay for the 23 mutation testing out of pocket but I certainly cannot afford the full testing. Also, we have only met with this...
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