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His uncle never had genetic testing done. He was diagnosed in the late 70's at CH of Philly thru a stool test and a sweat test. From what I can gather, they just didn't have the genetic testing then like they have now. He was diagnosed with a CF variant, but we don't know the mutation. <br...

Sandy, if I hadn't found this forum, I probably would have just let it go, but after all I have read here, I KNEW I had to pressure them for further testing. Not to mention the doc had me upset enough that I was in a 'fighting mood'. When we left the clinic he actually handed CJ and myself...

Sandy, if I hadn't found this forum, I probably would have just let it go, but after all I have read here, I KNEW I had to pressure them for further testing. Not to mention the doc had me upset enough that I was in a 'fighting mood'. When we left the clinic he actually handed CJ and myself...

Sandy, if I hadn't found this forum, I probably would have just let it go, but after all I have read here, I KNEW I had to pressure them for further testing. Not to mention the doc had me upset enough that I was in a 'fighting mood'. When we left the clinic he actually handed CJ and myself...

Sandy, if I hadn't found this forum, I probably would have just let it go, but after all I have read here, I KNEW I had to pressure them for further testing. Not to mention the doc had me upset enough that I was in a 'fighting mood'. When we left the clinic he actually handed CJ and myself...

Sandy, if I hadn't found this forum, I probably would have just let it go, but after all I have read here, I KNEW I had to pressure them for further testing. Not to mention the doc had me upset enough that I was in a 'fighting mood'. When we left the clinic he actually handed CJ and myself...

thanks. I'm just so damn frustrated with it all. I really disliked the doctor...gosh I hate saying that. I really felt like he didn't take me seriously and he seemed to not believe me when I told him about CJ's uncle who has CF. His uncle is healthy for the most part, has a very mild variation...

thanks. I'm just so damn frustrated with it all. I really disliked the doctor...gosh I hate saying that. I really felt like he didn't take me seriously and he seemed to not believe me when I told him about CJ's uncle who has CF. His uncle is healthy for the most part, has a very mild variation...

thanks. I'm just so damn frustrated with it all. I really disliked the doctor...gosh I hate saying that. I really felt like he didn't take me seriously and he seemed to not believe me when I told him about CJ's uncle who has CF. His uncle is healthy for the most part, has a very mild variation...

thanks. I'm just so damn frustrated with it all. I really disliked the doctor...gosh I hate saying that. I really felt like he didn't take me seriously and he seemed to not believe me when I told him about CJ's uncle who has CF. His uncle is healthy for the most part, has a very mild variation...

thanks. <br />I'm just so damn frustrated with it all. I really disliked the doctor...gosh I hate saying that. I really felt like he didn't take me seriously and he seemed to not believe me when I told him about CJ's uncle who has CF. His uncle is healthy for the most part, has a very mild...

CJ's sweat test results came back borderline so I spoke to the doc and they ok'd the genetic testing. We have to wait for insurance approval but that should only take a few days. They did a full exam on him at the CF center today, throat cultures PFT test and the works. They had him do the PFT 3...

CJ's sweat test results came back borderline so I spoke to the doc and they ok'd the genetic testing. We have to wait for insurance approval but that should only take a few days. They did a full exam on him at the CF center today, throat cultures PFT test and the works. They had him do the PFT 3...

CJ's sweat test results came back borderline so I spoke to the doc and they ok'd the genetic testing. We have to wait for insurance approval but that should only take a few days. They did a full exam on him at the CF center today, throat cultures PFT test and the works. They had him do the PFT 3...

CJ's sweat test results came back borderline so I spoke to the doc and they ok'd the genetic testing. We have to wait for insurance approval but that should only take a few days. They did a full exam on him at the CF center today, throat cultures PFT test and the works. They had him do the PFT 3...

CJ's sweat test results came back borderline so I spoke to the doc and they ok'd the genetic testing. We have to wait for insurance approval but that should only take a few days. <br />They did a full exam on him at the CF center today, throat cultures PFT test and the works. They had him do the...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>pjspiegle</b></i> If you are like me, there is a part of you hoping it is because at least you will have an answer, and another part hoping it isn't. Can so relate. </end quote></div> Patty thats totally how I feel right now. I am...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>pjspiegle</b></i> If you are like me, there is a part of you hoping it is because at least you will have an answer, and another part hoping it isn't. Can so relate. </end quote></div> Patty thats totally how I feel right now. I am...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>pjspiegle</b></i> If you are like me, there is a part of you hoping it is because at least you will have an answer, and another part hoping it isn't. Can so relate. </end quote></div> Patty thats totally how I feel right now. I am...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>pjspiegle</b></i> If you are like me, there is a part of you hoping it is because at least you will have an answer, and another part hoping it isn't. Can so relate. </end quote> Patty thats totally how I feel right now. I am...