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My little girl gets the on again, off again cough. It will go away while on oral antibiotics, but comes back again a few days later. I don't usually notice a change in the color of her sputum, it's always clear to white, but the cough is a definite sign she's culturing pseudomonas for us. She...

Wow, sounds like you had a rough night. Glad to hear everything has worked out.

My daughter has the same routine in the winter months. Sick, well, sick, well. It seems like we are always on antibiotics. Usually by the 3rd or 4th phone call to the doc, they say it's time for a clean out. She does get a culture done at her 3 month check-up so it's easier for them to...

Hi Christi, My daughter had reflux when she was an infant also. Milk would come shooting out of her mouth and nose and spray about 18 inches across the room. Pretty gross, I know. The doctor didn't realize it was as bad as it was until she did it on him. After that, she was put on Zantac...

My mom has horses and had one of her farm t-shirts on at the hospital when dd was there. One of the doctors asked if Abby was exposed to horses and we said yes, she is. She never said horse back riding was something that she couldn't do, just advised that she wear a mask when around the barn...

Congrats Sean!! Biking for 12 hours a day, great exercise for the lungs and legs. Maybe that's the kind of job I need. Glad to hear everything worked out well for you. I've been wondering how Aetna insurance was for cfers, you kinda just answered my question. We had it in the past before dd...

In the past, dd was the only cfer there so it was no big deal. Now we are joining another walk and I know there will be others in attendance. I'm leary about taking her, but probably will and just keep her with my family on the other side of the pavilion or something. I have met the others so...

Why won't my picture show up all the time? It seems like I have to redo everything when I sign in again. Is it because I sign in on 2 different computers?

This kind of discrimination has me very worried. I will soon be looking for a new job and don't know how I will handle my daughters cf in the interview. Do I not say anything and tell them when something comes up or do I tell them in the interivew that I will need time off for doctors appt's...

My daughter started her respiratory problems at 2 months old, the foul-smelling, greasy poo came when she was about 4 months old, Christmas Day to be exact. She was diagnosed at 5 months old, she weighed just over 10 lbs at the time and was 8 lbs when she was born. I only notice the salty...

SCANDISHAKE is a powder you mix with whole milk. Once mixed, it contains approximately 600 calories and 20 grams of fat! It comes in chocolate, vanilla or strawberry. It can be purchased through Axcan Pharmacies. Just type scandishake in your search engine and it should come right up. They...

Great news Sean, I'm sure you'll choose the position that's right for you. I haven't been a part of this site for long, but you make me laugh every time I read your posts. It's too bad some people are here only to bash what you say and not offer anything constructive to cfers or those caring...

My daughter was diagnosed at 5 months old because of a UTI. She'd been sick and underweight since she was 2 months old and we took her to the gp several times but was told she just had colds or viral infections. My mother-in-law suggested testing for cf, she had a cousin with cf, but I was the...

Hi Carrie, I too was somewhat jealous of people with "healthy" children after my daughter was diagnosed. There were 5 women in my life that all had babies around the same time my daughter was born and when she was diagnosed at 5 months. Their babies were happy, healthy and fat. My daughter...

My daughters cf doctor treated her for asthma tendencies a while ago. Same thing, cough that wouldn't go away, but healthy other than that. They never said she has asthma, just treated it as such the one time. The cought didn't respond to the asthma meds like they wanted it to, so it must...

My husbands mother had a cousin with cf, he lived into his 30's and was born in the 50's. Pretty good for that generation. As far as we know, he's the only known cf on that side. There are now lots of questions on my side of the family and we've talked about my parents being tested to see who...

My little girl went from formula to Pediasure at a year old. She drinks 3-4 8oz cans a day. It's expensive, but so worth the cost. It keeps her weight up even though she's not always a great eater. Michigan has an Early 5 program which reimbursed us for the pediasure on a monthly basis until...

This is something I should not have watched at work! Thankfully, nobody else is in the office to see my crying. He is absolutely precious and a true gift from God. I wish you and your family well and will keep you all in my prayers.

I'm a fairly new poster to the site but have been a lurker for some time. I haven't made a formal introduction yet so here it is. My name is Sherri, I have a beautiful 3 year old daughter, Abby with CF. She was diagnosed at 5 months, she has the Delta F508 gene and the other is 1898+1GA. I...

At our first walk three years ago, we bought t-shirts that had our team name on the front and the CF Great Strides logo on the back for all 60 walkers on our team. I'm lucky enough to know somebody with a screen printing business, he donated his time and the t-shirts and we paid for the ink he...