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I would like to see them in t-shirts (kids & adult sizes) and infant creepers would be cute with the "Aren't I worth a cure" slogan. Who could resist a little one wearing that!

I love them, great idea. The other suggestions are great too, let us know if/when we can buy them.

Liza, We have just a regular pediatrician for my dd. When she is sick and I'm worried that it's cf related, I will usually call the cf clinic (almost 2 hours away) and let them know that I'm taking her to the ped. My ped. is great in that he always corresponds with the cf clinic, they send...

Wow, you guys are ruthless and I love it. I almost lost bladder control reading about the tears of stranded kids at Disney. By the way, I'm a newbie and don't offend easily so keep on attacking.

Thanks for the replies, I think I will have somebody from clinic try to help me out. I never think to ask them about this stuff, just the medical issues. I agree Melissa, it doesn't seem right that they can't help me because of the insurance, there has to be a way around it, now if I could just...

Does anybody get their scandishake through the Axcan Rx Complete program? We signed up for it at the first of the year and I've been battling with them to get the free scandishake ever since. There seems to be some discrepancy between their program and my prescription insurance. Insurance...

I was at a restaurant waiting for my friends to show up, I had some posters for Great Strides and my daughters picture on them. The waitress asked what they were for and I told her my daughter has cf and we are participating in a walk soon and working on some other fundraisers, etc. She said...

The walk is Saturday, May 20th at Haithco Recreation area. Registration starts at 11:00, the walk starts at noon. Hope to see you there. Abby sees Dr. Nasr at U of M. We absolutely love her, where do you go?

Hi, I saw you are from Midland, nice to see a local on this board! I'm chairing the Great Strides walk in Saginaw, will you be there?

We pay $5 co-pay on generic and $10 co-pay on brand name meds. Doctor appts are $15 and labs, hospitalizations are 100% covered. We thank GOD every day for great insurance.

Our clinic is just under 2 hours from home but so worth the trip. We make the drive every 3 months so it's not to bad.

Saginaw, Michigan

Why do they have to do another sweat test before she can be seen at a cf clinic? The clinic will have one done and a genetic test to see which genes she has. I'm sorry to be asking all these questions, it just seems as if you are getting the run around when all you want is answers and...

I don't think any of us meant to imply that you are not feeding Amber, I think we are all just a little surprised that she's not getting solid foods yet. I apologize if that is how my reply above came across. Have you contacted your closest CF care center to make an appointment or is your...

Amber is beautiful and looks like a very happy baby. What is the reason she hasn't been given solids yet? Have the doctors told you no solids? It's very difficult to get all the nutrients cf babies need at this age with only formula and cereal. I considered dd a late starter on solids (6...

Never mind, I tried typing it rather than cut and paste and that worked. Andrew and your daughter are adorable. I wish you the best of luck in your lawsuit.

Jen, I couldn't access using the user id/password. Is JROCK the password or user id?

Oh Leah, I feel for you. You sound like me, normally handle everything until it all starts piling up. Then I break down, question the why's of it all, cry and get back to business. We JUST finished a 28 day course of TOBI, along with a 20-day course of Cipro and Bactrim because dd cultured 3...

Nene, is that you? If left my e-mail in the Great Strides post where you asked for it, but here it is again. Feel free to e-mail me, just put something regarding cf in the subject so I don't delete you. e-mail is: dsengel@charter.net Hope to hear from you soon. I have a feeling that Allie...

In our house, it's definitely me, the mom that has the dominant role in dd's cf care. DH does what he can, but his job takes him away from home a couple of nights at a time and it just naturally falls to me. He tries to make it to most of her cf appointments. He has freely admitted that the...