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My husband works for the railroad and has great insurance. We pay $15 co-pay for office visits, $30 for emergency room visits. All hospitalizations, labs are 100% covered. Prescription co-pays are $5 for generic and $10 for name brand. Something I am very grateful for when picking up things...

I too noticed that the phone numbers were wrong on our local suppliers page. I ended up finding the correct numbers on my own and then was told that they were not suppliers of PARI products anyway. Very frustrating. I then just started calling all the home med suppliers in the area and found...

It's called Early On in Michigan. We took advantage of it with Abby and what a blessing it was. We didn't need any therapists, doctors, etc, but I was more than happy getting the assistance with Abby's Pediasure for the first years. She drinks 3-4 cans a day and the Early On program...

We had a terrible experience at Childrens Hospital of Michigan in Detroit when my daughter was first diagnosed. She was diagnosed at our local hospital and our pediatrician was very honest in saying that he had no experience with CF. He ran through the list of CF clinics in Michigan and we...

I'd be happy to share our story of a cf center we absolutely hated. I cringe when I hear of other parents taking their children there but never know how much I should say to them.

Emily, Thanks for sharing, my little Abby will be thrilled to see that. She's amazed that other children have the same name as her.

Way to go Courtney!!!! Let's pray she maintains the two pounds and gains more.

Sheli, My heart broke just reading about your situation. I think you did the right thing. Just tell them the truth, in a way that they can understand. My daughter is almost 4 and I know the question is coming my way someday. We have never hid the fact that she has cf from her, but to this...

Beautiful view. My dream has always been to live near the water, it's so soothing. I envy you.

We were lucky to have a doctor that listened to us. She wanted to give Abby a feeding tube but we begged her to give us a chance to get her weight up on our own. She was only a little over 10 pounds at diagnosis (5 months old) so we desperately needed to get weight on her, but I knew if we...

Lindsey, I believe you are right. I've noticed the same about my daughter and she is only 3. She has some sort of magnetism that just draws people to her. She's happy, spunky, opinionated, strong and brave. We are always stopped in public by complete strangers that just want to talk to her...

Abby was 8 pounds, 1 oz and nearly 21 inches long, my doctor was amazed when they weighed her because they kept telling me in my long 5 days of labor that she was no more than 7 pounds. She was just all arms and legs!

Congratulations Emily!!!! Most couples don't get engaged at 3:45am so this has to be a great story. Can't wait to read it. Have fun with all the planning.

My daughter had her first infant pft done when she was just over a year old. It was an interesting process and they explained everything as they went along. Unfortunately, her first results were so bad that we had to rush to the hospital the next morning when they got the results. Her lung...

Abby was diagnosed at 5 months of age because of a urinary tract infection. She was hospitalized on a Monday night because of the infection, the bacteria found in her urine was Pseudomonas. I spent all night Monday, Tuesday and Wednesday with her in the hospital. On Thursday, my husband told...

He's adorable and happy. Great job on the montage, I'm inspired to do one for my little peanut.

Terrible Starbucks habit Hi, my name is Sherri and I'm also a caramel machiatto addict However, I don't have cf, have to drink the non-fat version and still gain weight from it. Too bad I can't get my 3 year old cfer to drink it. She is however getting a taste for the Strawberry Creme...

Hi Craig, The never ending struggle of cpt on infants gets to the best of us. We started making up songs to sing while doing cpt (which we call thump thumps). One of them is the Frosty the Snowman song, Thumpity, thump, thump, thumpity thump thump look at Frosty go. We just sing the same...

I think it's great that Allie called to see if funds could be diverted to CFF chapter offices for you. To bad they can't but it probably would be a nightmare if they tried. You may however, be able to purchase office supplies for your local CFF chapter office, which would be the same? Maybe...

Abby's doctor told us we could neb albuterol and pulmicort together. Wish the same were true with some of the others.