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I'm nowhere near the point of needing a port, but if I had the choice, I would choose something that's more aesthetically pleasing.

I'm nowhere near the point of needing a port, but if I had the choice, I would choose something that's more aesthetically pleasing.

I think it's more likely that you are desaturating at night and not that you suffer from sleep apnea. Even though it's kind of scary, it might be a bit of a blessing. You may feel rested, but I have heard patients say to me that they didn't realize how badly they actually felt until they started...

I think it's more likely that you are desaturating at night and not that you suffer from sleep apnea. Even though it's kind of scary, it might be a bit of a blessing. You may feel rested, but I have heard patients say to me that they didn't realize how badly they actually felt until they started...

Where is the pneumothorax occurring? Is a (partial) lobectomy an option?

Where is the pneumothorax occurring? Is a (partial) lobectomy an option?

Personally, I dislike psychotropic meds, you would be better off to find a cognitive therapist than drugging yourself into a numb state.

Personally, I dislike psychotropic meds, you would be better off to find a cognitive therapist than drugging yourself into a numb state.

colored washable

colored washable

I was just fitted for a vest (the 105) and they sent a RT out to set it up and make sure I was using it correctly. He said that you should be able to slide you arm up under the vest (while uninflated, obviously). So the fit should be snug but not skin tight. Could you perhaps increase the...

I was just fitted for a vest (the 105) and they sent a RT out to set it up and make sure I was using it correctly. He said that you should be able to slide you arm up under the vest (while uninflated, obviously). So the fit should be snug but not skin tight. Could you perhaps increase the...

Cipro can be associated with higher risk of tendonitis and even rupture, just keep that in mind.

Cipro can be associated with higher risk of tendonitis and even rupture, just keep that in mind.

I look at this cycle as an endless vortex. You're depressed and you don't do your treatments, which makes you depressed because you are sick and feel your PFT's could be higher and then you continue to not do treatments ad infinitum. You're going to have to make a choice to break that cycle...

I look at this cycle as an endless vortex. You're depressed and you don't do your treatments, which makes you depressed because you are sick and feel your PFT's could be higher and then you continue to not do treatments ad infinitum. You're going to have to make a choice to break that cycle...

I've only seen my new doc once. He seems pretty aggressive, but the rest of the team....eh. The nurse coordinator is great, though. If I were to just rate my doc, 4. If I were to rate the whole system, 3.

I've only seen my new doc once. He seems pretty aggressive, but the rest of the team....eh. The nurse coordinator is great, though. If I were to just rate my doc, 4. If I were to rate the whole system, 3.

I liked Ultrase as well. Ultresa has been approved, but when I tried to get it a few weeks ago I was told it wasn't available for order yet. We had a look at the breakdown of Lipase, Amylase and Protease for Ultresa and it is similar to Ultrase. I have an appointment in May and I will check...

Sildenafil and vardenafil has been studied in mice with homozygous DF508 with some positive results. There are still some issues that need addressed, particularly dosing. I don't think it's been studied in humans yet.