Cystic Fibrosis Forum (EXP)

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  1. R

    frustrated...son is sick AGAIN..it never ends

    Ive been taking watercress, spinach and brussel sprout juice and it seems to help keep me clear. <br />Also maybe if you talk to an ENT doc to see about sinus surgery. <br />ALos look at taking probiotics to re-establish good bacteria <br />
  2. R

    Sports Organization Discriminating against my daughter w/CF

    I think you have to take a step back and look at how upset you are. Not worth it. Out line your case and talk to the people in charge. Not letting a 6 yo not eat is just stupid. In fact not letting any of them not eat is not a good idea. They are young and need food.I recently went to my neices...
  3. R

    Sports Organization Discriminating against my daughter w/CF

    I think you have to take a step back and look at how upset you are. Not worth it. Out line your case and talk to the people in charge. Not letting a 6 yo not eat is just stupid. In fact not letting any of them not eat is not a good idea. They are young and need food.I recently went to my neices...
  4. R

    Sports Organization Discriminating against my daughter w/CF

    <p>I think you have to take a step back and look at how upset you are. Not worth it. <p>Out line your case and talk to the people in charge. Not letting a 6 yo not eat is just stupid. In fact not letting any of them not eat is not a good idea. They are young and need food.<p>I recently went to...
  5. R

    Green Sputum

    I have always had green junk. I think that is the lovely shade of our lovely friend pseudomonas! Its like the Mucinex commercials with the sputum characters. LIttle Jaba the Huts in our lungs great!
  6. R

    Green Sputum

    I have always had green junk. I think that is the lovely shade of our lovely friend pseudomonas! Its like the Mucinex commercials with the sputum characters. LIttle Jaba the Huts in our lungs great!
  7. R

    Green Sputum

    I have always had green junk. I think that is the lovely shade of our lovely friend pseudomonas! <br />Its like the Mucinex commercials with the sputum characters. LIttle Jaba the Huts in our lungs great! <br />
  8. R

    What do you do for your cf'r when her parent has given up?

    Wow, yeah the mom has her own issues, how selfish. But you cant expect her to do anything different. Hopefully your niece will be stronger than her mother. Moms are broken sometimes too. I think she needs to isolate and search for someone else that can give her support. Maybe a professional...
  9. R

    What do you do for your cf'r when her parent has given up?

    Wow, yeah the mom has her own issues, how selfish. But you cant expect her to do anything different. Hopefully your niece will be stronger than her mother. Moms are broken sometimes too. I think she needs to isolate and search for someone else that can give her support. Maybe a professional...
  10. R

    What do you do for your cf'r when her parent has given up?

    Wow, yeah the mom has her own issues, how selfish. But you cant expect her to do anything different. Hopefully your niece will be stronger than her mother. Moms are broken sometimes too. I think she needs to isolate and search for someone else that can give her support. Maybe a professional...
  11. R

    Can't seem to shake the PA.. 5th hosp visit this year.

    Her nutritional needs need to be looked at. Most Cf's are not getting the right nutrition. I avoid gluten, sugar and processed foods. Try one month on a paleo diet and see if it helps. <br>I also juice greens - brussel sprouts, broccoli, spinach etc <br>I agressively get nutrients via g-tube -...
  12. R

    Can't seem to shake the PA.. 5th hosp visit this year.

    Her nutritional needs need to be looked at. Most Cf's are not getting the right nutrition. I avoid gluten, sugar and processed foods. Try one month on a paleo diet and see if it helps. <br>I also juice greens - brussel sprouts, broccoli, spinach etc <br>I agressively get nutrients via g-tube -...
  13. R

    Can't seem to shake the PA.. 5th hosp visit this year.

    <p>Her nutritional needs need to be looked at. Most Cf's are not getting the right nutrition. I avoid gluten, sugar and processed foods. Try one month on a paleo diet and see if it helps. <br>I also juice greens - brussel sprouts, broccoli, spinach etc <br>I agressively get nutrients via g-tube...
  14. R

    Do you lead a normal life: Please check the best answer.

    Puts it in perspective. I too feel grateful for what I have and who in mylife, what I can do and have done. But deep down Cf makes us not normal. Someone that does not live with a chronic illness gets on with their life, they take the day to day for granted. Go to work, have kids, vacation and...
  15. R

    Do you lead a normal life: Please check the best answer.

    Puts it in perspective. I too feel grateful for what I have and who in mylife, what I can do and have done. But deep down Cf makes us not normal. Someone that does not live with a chronic illness gets on with their life, they take the day to day for granted. Go to work, have kids, vacation and...
  16. R

    Do you lead a normal life: Please check the best answer.

    Puts it in perspective. I too feel grateful for what I have and who in mylife, what I can do and have done. But deep down Cf makes us not normal. Someone that does not live with a chronic illness gets on with their life, they take the day to day for granted. Go to work, have kids, vacation and...
  17. R

    Gastrointestional

    Chronic constipation can be caused by gluten. Please look at this article regarding gluten intolerance. Most Cf's are affected by gluten. <br><a...
  18. R

    Gastrointestional

    Chronic constipation can be caused by gluten. Please look at this article regarding gluten intolerance. Most Cf's are affected by gluten. <br><a...
  19. R

    Gastrointestional

    <p>Chronic constipation can be caused by gluten. Please look at this article regarding gluten intolerance. Most Cf's are affected by gluten. <p><br><a...
  20. R

    Vertex drugs show promise with DF508

    How many of those "investors" have CF or have a kid with CF, hey we'll take anything in the lines of improvement. CF is so complex that they tend to miss some of it. If it is not a homerun then it is discounted, look at Denofusol could help lower airways and it was shevled in Phase III why...
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