Cystic Fibrosis Forum (EXP)

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  1. R

    Vertex drugs show promise with DF508

    How many of those "investors" have CF or have a kid with CF, hey we'll take anything in the lines of improvement. CF is so complex that they tend to miss some of it. If it is not a homerun then it is discounted, look at Denofusol could help lower airways and it was shevled in Phase III why...
  2. R

    Vertex drugs show promise with DF508

    How many of those "investors" have CF or have a kid with CF, hey we'll take anything in the lines of improvement. CF is so complex that they tend to miss some of it. If it is not a homerun then it is discounted, look at Denofusol could help lower airways and it was shevled in Phase III why? <br...
  3. R

    OMG, I'm doing it!

    Ok I am going back to the gym! Thanks for the inspiration! Make sure you are making nutrition a fundamental part of your training. We are very deficient in nutrients make sure your electrolytes and such are replenished. ie sea salt, coconut water and such. One thing to look at if you are...
  4. R

    OMG, I'm doing it!

    Ok I am going back to the gym! Thanks for the inspiration! Make sure you are making nutrition a fundamental part of your training. We are very deficient in nutrients make sure your electrolytes and such are replenished. ie sea salt, coconut water and such. One thing to look at if you are...
  5. R

    OMG, I'm doing it!

    Ok I am going back to the gym! Thanks for the inspiration! <br />Make sure you are making nutrition a fundamental part of your training. We are very deficient in nutrients make sure your electrolytes and such are replenished. ie sea salt, coconut water and such. One thing to look at if you are...
  6. R

    Heading back to 60+ FEV1 from 26.

    Besides exercise and treatments what are you doing. Does anyone have ideas for inflammation. Has anyone ever looked at Bosweilla(frankinsense) for inflammation.
  7. R

    Heading back to 60+ FEV1 from 26.

    Besides exercise and treatments what are you doing. Does anyone have ideas for inflammation. Has anyone ever looked at Bosweilla(frankinsense) for inflammation.
  8. R

    Heading back to 60+ FEV1 from 26.

    Besides exercise and treatments what are you doing. Does anyone have ideas for inflammation. <br />Has anyone ever looked at Bosweilla(frankinsense) for inflammation. <br />
  9. R

    Finger nails

    Yeah it is a common issue. My finger nails get vertical lines. I have mild clubbing. The lines are due to protein and nutritional deficiency.
  10. R

    Finger nails

    Yeah it is a common issue. My finger nails get vertical lines. I have mild clubbing. The lines are due to protein and nutritional deficiency.
  11. R

    Finger nails

    Yeah it is a common issue. My finger nails get vertical lines. I have mild clubbing. The lines are due to protein and nutritional deficiency.
  12. R

    Alternative lifestyles and diets

    I am gluten free, soy free - 80% grain free, 95% sugar free. Try to eat healthy and 30% raw. I get lots of calories via g-tube because it is hard to eat gross stuff but we need the nutrition it provides. LIke a hard bolied egg, olive oil, and squash smoothie yum! <br>Look here for some of my...
  13. R

    Alternative lifestyles and diets

    I am gluten free, soy free - 80% grain free, 95% sugar free. Try to eat healthy and 30% raw. I get lots of calories via g-tube because it is hard to eat gross stuff but we need the nutrition it provides. LIke a hard bolied egg, olive oil, and squash smoothie yum! <br>Look here for some of my...
  14. R

    Alternative lifestyles and diets

    <p>I am gluten free, soy free - 80% grain free, 95% sugar free. Try to eat healthy and 30% raw. I get lots of calories via g-tube because it is hard to eat gross stuff but we need the nutrition it provides. LIke a hard bolied egg, olive oil, and squash smoothie yum! <br>Look here for some of my...
  15. R

    We are suffering from a perfect storm of health problems

    <br>Please see these other posts<a href="http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=611811&enterthread=y">http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=611811&enterthread=y</a>G-tube advantageWhen is the last time you had a hard boiled egg, olive...
  16. R

    We are suffering from a perfect storm of health problems

    <br>Please see these other posts<a href="http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=611811&enterthread=y">http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=611811&enterthread=y</a>G-tube advantageWhen is the last time you had a hard boiled egg, olive...
  17. R

    We are suffering from a perfect storm of health problems

    <p><br>Please see these other posts<p><a href="http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=611811&enterthread=y">http://forums.cysticfibrosis.com/messageview.cfm?catid=903&threadid=611811&enterthread=y</a><p>G-tube advantage<p>When is the last time you had a hard boiled...
  18. R

    We are suffering from a perfect storm of health problems

    <br><p style="margin: 0in 0in 10pt;" class="MsoNormal"><font color="#000000" size="3" face="Calibri"></font> <font color="#000000" face="Times New Roman"></font><p style="margin: 0in 0in 0pt 0.5in; text-indent: -0.25in; mso-list: l0 level1 lfo2;" class="MsoListParagraphCxSpFirst"><font...
  19. R

    We are suffering from a perfect storm of health problems

    <br><p style="margin: 0in 0in 10pt;" class="MsoNormal"><font color="#000000" size="3" face="Calibri"></font><font color="#000000" face="Times New Roman"></font><p style="margin: 0in 0in 0pt 0.5in; text-indent: -0.25in; mso-list: l0 level1 lfo2;" class="MsoListParagraphCxSpFirst"><font...
  20. R

    We are suffering from a perfect storm of health problems

    <br><p style="margin: 0in 0in 10pt;" class="MsoNormal"><font color="#000000" size="3" face="Calibri"></font><font color="#000000" face="Times New Roman"></font><p style="margin: 0in 0in 0pt 0.5in; text-indent: -0.25in; mso-list: l0 level1 lfo2;" class="MsoListParagraphCxSpFirst"><font...
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