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Thank you for the responses. It makes me feel much better talking to other CF parents and confirming my thoughts. We have made appts at a private pulm and the other CF center an hour and a half away. We will see what is a better fit.
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We moved recently and had our first CF Center appt. It was very different than what we are used to at our old center. At our old center we went back immediately instead of waiting in the waiting room. Our clinic visits were only an hour long. We also were not scheduled at the same time as...
We moved recently and had our first CF Center appt. It was very different than what we are used to at our old center. At our old center we went back immediately instead of waiting in the waiting room. Our clinic visits were only an hour long. We also were not scheduled at the same time as...
We moved recently and had our first CF Center appt. It was very different than what we are used to at our old center. At our old center we went back immediately instead of waiting in the waiting room. Our clinic visits were only an hour long. We also were not scheduled at the same time as...
We moved recently and had our first CF Center appt. It was very different than what we are used to at our old center. At our old center we went back immediately instead of waiting in the waiting room. Our clinic visits were only an hour long. We also were not scheduled at the same time as...
We moved recently and had our first CF Center appt. It was very different than what we are used to at our old center. At our old center we went back immediately instead of waiting in the waiting room. Our clinic visits were only an hour long. We also were not scheduled at the same time as...
Welcome to the site. You will find so much helpful information and support here. It has been my lifesaver many a night! I remember my first post here. I think I actually felt my heart breaking as I wrote it. Many people posted that I would feel better over time. It is so true. My daughter...
Welcome to the site. You will find so much helpful information and support here. It has been my lifesaver many a night! I remember my first post here. I think I actually felt my heart breaking as I wrote it. Many people posted that I would feel better over time. It is so true. My daughter...
Welcome to the site. You will find so much helpful information and support here. It has been my lifesaver many a night! I remember my first post here. I think I actually felt my heart breaking as I wrote it. Many people posted that I would feel better over time. It is so true. My daughter...
Welcome to the site. You will find so much helpful information and support here. It has been my lifesaver many a night! I remember my first post here. I think I actually felt my heart breaking as I wrote it. Many people posted that I would feel better over time. It is so true. My daughter...
Welcome to the site. You will find so much helpful information and support here. It has been my lifesaver many a night! I remember my first post here. I think I actually felt my heart breaking as I wrote it. Many people posted that I would feel better over time. It is so true. My daughter...
The neuro called it WBS. Weird Baby Stuff. Avery was just making these tics that we thought looked strange. We video taped her and took it into the neuro. He said he couldn't rule it out as a seizure. Since the EEG her tics have become few and far between. I saw one yesterday. It is...
The neuro called it WBS. Weird Baby Stuff. Avery was just making these tics that we thought looked strange. We video taped her and took it into the neuro. He said he couldn't rule it out as a seizure. Since the EEG her tics have become few and far between. I saw one yesterday. It is...
The neuro called it WBS. Weird Baby Stuff. Avery was just making these tics that we thought looked strange. We video taped her and took it into the neuro. He said he couldn't rule it out as a seizure. Since the EEG her tics have become few and far between. I saw one yesterday. It is...
The neuro called it WBS. Weird Baby Stuff. Avery was just making these tics that we thought looked strange. We video taped her and took it into the neuro. He said he couldn't rule it out as a seizure. Since the EEG her tics have become few and far between. I saw one yesterday. It is...
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