Cystic Fibrosis Forum (EXP)

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  1. B

    NO EPILEPSY!

    The neuro called it WBS. Weird Baby Stuff. Avery was just making these tics that we thought looked strange. We video taped her and took it into the neuro. He said he couldn't rule it out as a seizure. Since the EEG her tics have become few and far between. I saw one yesterday. It is...
  2. B

    NO EPILEPSY!

    We got back from the hospital yesterday. We were in for two days for Avery's EEG testing. We got word that she does not have epilepsy! Yeah! I don't know if we could have handled it if she did. On a side note I am terrified that she will culture something after the visit. We were in a...
  3. B

    NO EPILEPSY!

    We got back from the hospital yesterday. We were in for two days for Avery's EEG testing. We got word that she does not have epilepsy! Yeah! I don't know if we could have handled it if she did. On a side note I am terrified that she will culture something after the visit. We were in a...
  4. B

    NO EPILEPSY!

    We got back from the hospital yesterday. We were in for two days for Avery's EEG testing. We got word that she does not have epilepsy! Yeah! I don't know if we could have handled it if she did. On a side note I am terrified that she will culture something after the visit. We were in a...
  5. B

    NO EPILEPSY!

    We got back from the hospital yesterday. We were in for two days for Avery's EEG testing. We got word that she does not have epilepsy! Yeah! I don't know if we could have handled it if she did. On a side note I am terrified that she will culture something after the visit. We were in a...
  6. B

    NO EPILEPSY!

    We got back from the hospital yesterday. We were in for two days for Avery's EEG testing. We got word that she does not have epilepsy! Yeah! I don't know if we could have handled it if she did. <br /> <br />On a side note I am terrified that she will culture something after the visit. We...
  7. B

    Zoe going in tomorrow...

    You guys are in my thoughts and prayers! Thank you for the updates!
  8. B

    Zoe going in tomorrow...

    You guys are in my thoughts and prayers! Thank you for the updates!
  9. B

    Zoe going in tomorrow...

    You guys are in my thoughts and prayers! Thank you for the updates!
  10. B

    Zoe going in tomorrow...

    You guys are in my thoughts and prayers! Thank you for the updates!
  11. B

    Zoe going in tomorrow...

    You guys are in my thoughts and prayers! <br /> <br /> <br />Thank you for the updates!
  12. B

    G-tube surgery today

    You guys are in my thoughts today. Take a deep breath and give your girl lots of hugs and kisses! Before you know it she will be out of surgery, at home, and gaining tons of weight<img src="i/expressions/face-icon-small-smile.gif" border="0">
  13. B

    G-tube surgery today

    You guys are in my thoughts today. Take a deep breath and give your girl lots of hugs and kisses! Before you know it she will be out of surgery, at home, and gaining tons of weight<img src="i/expressions/face-icon-small-smile.gif" border="0">
  14. B

    G-tube surgery today

    You guys are in my thoughts today. Take a deep breath and give your girl lots of hugs and kisses! Before you know it she will be out of surgery, at home, and gaining tons of weight<img src="i/expressions/face-icon-small-smile.gif" border="0">
  15. B

    G-tube surgery today

    You guys are in my thoughts today. Take a deep breath and give your girl lots of hugs and kisses! Before you know it she will be out of surgery, at home, and gaining tons of weight<img src="i/expressions/face-icon-small-smile.gif" border="0">
  16. B

    G-tube surgery today

    You guys are in my thoughts today. Take a deep breath and give your girl lots of hugs and kisses! Before you know it she will be out of surgery, at home, and gaining tons of weight<img src="i/expressions/face-icon-small-smile.gif" border="0">
  17. B

    Having a hard time...

    I hope you don't mind me adding to this. I am a parent with a CF child. We didn't know we were carriers, nor did we have a clue as to what CF was. I look at my little girl each and thank God for her to be here with me each day. I am so grateful that I have her. I also pray each day for...
  18. B

    Having a hard time...

    I hope you don't mind me adding to this. I am a parent with a CF child. We didn't know we were carriers, nor did we have a clue as to what CF was. I look at my little girl each and thank God for her to be here with me each day. I am so grateful that I have her. I also pray each day for...
  19. B

    Having a hard time...

    I hope you don't mind me adding to this. I am a parent with a CF child. We didn't know we were carriers, nor did we have a clue as to what CF was. I look at my little girl each and thank God for her to be here with me each day. I am so grateful that I have her. I also pray each day for...
  20. B

    Having a hard time...

    I hope you don't mind me adding to this. I am a parent with a CF child. We didn't know we were carriers, nor did we have a clue as to what CF was. I look at my little girl each and thank God for her to be here with me each day. I am so grateful that I have her. I also pray each day for...
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