Cystic Fibrosis Forum (EXP)

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  1. L

    IVF/IUI to get pregnant

    Are either of these procedures extremely expensive? My husband and I have been trying for a baby for about a year now. But I haven't used any sort of birth control for about 3 years!! And nothing has ever happened. If I understand correctly, the IVF is more expensive?? Could someone fill me...
  2. L

    Is what I have TOBI or Tobramycin?

    I remember before TOBI came out I would get vials of tobramycin and vials of sodium chloride that I had to draw up with a syringe and mix in my nebulizer. It was actual tobra for injection that I would breathe in. Could this be what they sent you?
  3. L

    Can I mix....

    I've been mixing my hypertonic saline with the albuterol. I figured it was okay since I always had to dilute the albuterol with 0.9% saline anyway. What is the reason this shouldn't be done?
  4. L

    Port question

    What's the longest you've ever gone without accessing your port to flush it when it isn't being used for meds? One month, two months...?
  5. L

    Handicap Sign

    All I did was print out the form from the DMV website and brought it to my doctor and said, "Here, can you fill this out?" Easy as that. I told him I have trouble walking long distances and he said okay. My PFT's were probably in the 70's or so. I'm not sure what the requirement is, but he...
  6. L

    where are you from?

    I'm in the O.C. too...Tustin, Ca
  7. L

    Ports -- Just Curious

    My husband accesses mine for me. I gave myself insulin shots for years, but I couldn't see myself accessing my own port. He likes to do it for me - it makes him feel special because he's taking care of me!!
  8. L

    Anyone in California have experience with GHPP?

    Here's my situation: I got married in May and my husbands insurance (HMO) isn't really that good. Not bad, but not good. The social worker at the CF center I go to told me to apply to GHPP because everything that my HMO won't pay for GHPP will. When I called and spoke to the lady at GHPP she...
  9. L

    What is your copay on TOBI?

    I only pay $10 for every prescription I get. After reading how much all of you pay, I'm stoked! I couldn't imagine paying over $500 for one prescription!
  10. L

    What is your copay on TOBI?

    I only pay $10 for every prescription I get. After reading how much all of you pay, I'm stoked! I couldn't imagine paying over $500 for one prescription!
  11. L

    My girl is here!

    This is too weird...I was just thinking today that I hadn't seen you post in awhile and I was wondering if you had your baby yet! Congrats, she is very precious!
  12. L

    My girl is here!

    This is too weird...I was just thinking today that I hadn't seen you post in awhile and I was wondering if you had your baby yet! Congrats, she is very precious!
  13. L

    Getting a port...

    I have a funny story about when I got my port... They just gave my some verced (sp?) to knock me out a little but I was still somewhat aware of what was going on . It was like I was sleeping but could still hear the docs talking. They had a sheet covering my face, so they couldn't see me and...
  14. L

    Getting a port...

    I have a funny story about when I got my port... They just gave my some verced (sp?) to knock me out a little but I was still somewhat aware of what was going on . It was like I was sleeping but could still hear the docs talking. They had a sheet covering my face, so they couldn't see me and...
  15. L

    license plates

    My husband and I both have CF plates. In California you can put symbols on your plates like a heart, star, hand, etc.... Mine says 6 (hand) ROZES for 65 roses. And my husbands says BRTH4CF for "breathe for CF"
  16. L

    license plates

    My husband and I both have CF plates. In California you can put symbols on your plates like a heart, star, hand, etc.... Mine says 6 (hand) ROZES for 65 roses. And my husbands says BRTH4CF for "breathe for CF"
  17. L

    Update on Greg's tx

    That's great news! I'm glad he is doing so well.
  18. L

    Update on Greg's tx

    That's great news! I'm glad he is doing so well.
  19. L

    Anyone got myspace?

    <a target=new class=ftalternatingbarlinklarge href="http://www.myspace.com/six5rozes">http://www.myspace.com/six5rozes</a>
  20. L

    Had to get another PICC today...

    I just got a port in August. I was beginning to question whether or not I should get one when I got PICCs a few times a year. Having a PICC was fine, it was getting it inserted that was the hard part. I would be in the hospital for a few days with peripheral iv's before I could even get a...
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