Cystic Fibrosis Forum (EXP)

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  1. H

    Understanding respirtory symptoms

    I have a bit of an asthma component as well and hypertonic saline made me 10x worse. I went from being able to run 4 miles non-stop to maybe 1/4 mile and I was gasping for breath. Speak with her doc about stopping the HTS and see if that makes a difference.
  2. H

    Understanding respirtory symptoms

    I have a bit of an asthma component as well and hypertonic saline made me 10x worse. I went from being able to run 4 miles non-stop to maybe 1/4 mile and I was gasping for breath. Speak with her doc about stopping the HTS and see if that makes a difference.
  3. H

    Understanding respirtory symptoms

    I have a bit of an asthma component as well and hypertonic saline made me 10x worse. I went from being able to run 4 miles non-stop to maybe 1/4 mile and I was gasping for breath. Speak with her doc about stopping the HTS and see if that makes a difference.
  4. H

    Nasal Cannula Relief

    Is it the inside of your nose that's sore? There's a product called Ayr. It's a saline-based gel, which helps to moisturize the mucus membranes. You should be able to find it in any pharmacy. You could always inquire about viscous lidocaine as well. although I don't know if the glycerine...
  5. H

    Nasal Cannula Relief

    Is it the inside of your nose that's sore? There's a product called Ayr. It's a saline-based gel, which helps to moisturize the mucus membranes. You should be able to find it in any pharmacy. You could always inquire about viscous lidocaine as well. although I don't know if the glycerine...
  6. H

    Nasal Cannula Relief

    Is it the inside of your nose that's sore? There's a product called Ayr. It's a saline-based gel, which helps to moisturize the mucus membranes. You should be able to find it in any pharmacy. You could always inquire about viscous lidocaine as well. although I don't know if the glycerine...
  7. H

    PFT numbers...

    I blew a 118% in clinic today. They were kinda irritated that my weight had gone down, but then I'm eating better and working out, that's what happens.
  8. H

    PFT numbers...

    I blew a 118% in clinic today. They were kinda irritated that my weight had gone down, but then I'm eating better and working out, that's what happens.
  9. H

    PFT numbers...

    I blew a 118% in clinic today. They were kinda irritated that my weight had gone down, but then I'm eating better and working out, that's what happens.
  10. H

    Question on diagnosis

    On further reading, it does seem that one can have an atypical form of CF where CBAVD is present, but no respiratory or digestive symptoms. It did not say whether this was in the presence of just one or both recessive genes. That was a from a publication of Cornell Univ.
  11. H

    Question on diagnosis

    On further reading, it does seem that one can have an atypical form of CF where CBAVD is present, but no respiratory or digestive symptoms. It did not say whether this was in the presence of just one or both recessive genes. That was a from a publication of Cornell Univ.
  12. H

    Question on diagnosis

    On further reading, it does seem that one can have an atypical form of CF where CBAVD is present, but no respiratory or digestive symptoms. It did not say whether this was in the presence of just one or both recessive genes. That was a from a publication of Cornell Univ.
  13. H

    Question on diagnosis

    I think it's a very reasonable thing to do, for 2 reasons: 1. As she mentioned, if you truly do have CF, you'll want to know so you can manage it properly. 2. Having 2 mutations increases your chances of having a child with CF, should your wife also have a mutation, and it means that your...
  14. H

    Question on diagnosis

    I think it's a very reasonable thing to do, for 2 reasons: 1. As she mentioned, if you truly do have CF, you'll want to know so you can manage it properly. 2. Having 2 mutations increases your chances of having a child with CF, should your wife also have a mutation, and it means that your...
  15. H

    Question on diagnosis

    I think it's a very reasonable thing to do, for 2 reasons: <br /> <br />1. As she mentioned, if you truly do have CF, you'll want to know so you can manage it properly. <br /> <br />2. Having 2 mutations increases your chances of having a child with CF, should your wife also have a mutation...
  16. H

    PFT numbers...

    I think there are 2 factors at play that contribute to endurance. The overall capacity of the person to take in oxygen for gas exchange in the lungs and the efficacy with which the body uses that oxygen. I know many healthy-looking people who could not run an half marathon or full marathon...
  17. H

    PFT numbers...

    I think there are 2 factors at play that contribute to endurance. The overall capacity of the person to take in oxygen for gas exchange in the lungs and the efficacy with which the body uses that oxygen. I know many healthy-looking people who could not run an half marathon or full marathon...
  18. H

    PFT numbers...

    I think there are 2 factors at play that contribute to endurance. The overall capacity of the person to take in oxygen for gas exchange in the lungs and the efficacy with which the body uses that oxygen. I know many healthy-looking people who could not run an half marathon or full marathon...
  19. H

    My advice for teenagers

    Memberx, you make a very good point, but I would expand on it. Many people whom I have encountered here and elsewhere really don't seem to have a good grasp on Cf. What it is, how it works, what to expect. That's one of the great things about this forum, the ability to learn from one another...
  20. H

    My advice for teenagers

    Memberx, you make a very good point, but I would expand on it. Many people whom I have encountered here and elsewhere really don't seem to have a good grasp on Cf. What it is, how it works, what to expect. That's one of the great things about this forum, the ability to learn from one another...
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