This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!
Another CF'er responding vs. a parent of a CF'er.
I find it really difficult to tell people sometimes. When I first started working after college graduation, I worked within my department and made friends, etc for a year before I told anyone. I passed my cough off as allergies and sinus...
Another CF'er responding vs. a parent of a CF'er.
I find it really difficult to tell people sometimes. When I first started working after college graduation, I worked within my department and made friends, etc for a year before I told anyone. I passed my cough off as allergies and sinus...
Another CF'er responding vs. a parent of a CF'er.
I find it really difficult to tell people sometimes. When I first started working after college graduation, I worked within my department and made friends, etc for a year before I told anyone. I passed my cough off as allergies and sinus...
Congratulations Jane! I don't really talk with you, but keep tabs on your sons' health through your threads. I feel a bit of kinship with those who also have CF siblings. Hope all your plans for your vacation go smoothly.
Congratulations Jane! I don't really talk with you, but keep tabs on your sons' health through your threads. I feel a bit of kinship with those who also have CF siblings. Hope all your plans for your vacation go smoothly.
Congratulations Jane! I don't really talk with you, but keep tabs on your sons' health through your threads. I feel a bit of kinship with those who also have CF siblings. Hope all your plans for your vacation go smoothly.
not doing CPTs
cf disease progression has <u>a lot </u>to do with genetics. genetics that dr./researchers/patients don't completely understand right now.
cf patients and caregivers have to be okay with their own decisions on their care and live with their decisions. nothing is predictable...
not doing CPTs
cf disease progression has <u>a lot </u>to do with genetics. genetics that dr./researchers/patients don't completely understand right now.
cf patients and caregivers have to be okay with their own decisions on their care and live with their decisions. nothing is predictable...
not doing CPTs
cf disease progression has <u>a lot </u>to do with genetics. genetics that dr./researchers/patients don't completely understand right now.
cf patients and caregivers have to be okay with their own decisions on their care and live with their decisions. nothing is predictable...
Age: 29
Mutations: 2184delA & 1898+1G>A
FEV1: 116%
Also, my two brothers also have CF so with the same mutations we vary a fair amount. Also, none of us have had transplants.
Middle Bro, Age: 31
Same Mutations
FEV1: ~70%
Oldest Bro, Age: 34
Same Mutations
FEV1: ~80%
Age: 29
Mutations: 2184delA & 1898+1G>A
FEV1: 116%
Also, my two brothers also have CF so with the same mutations we vary a fair amount. Also, none of us have had transplants.
Middle Bro, Age: 31
Same Mutations
FEV1: ~70%
Oldest Bro, Age: 34
Same Mutations
FEV1: ~80%
Age: 29
Mutations: 2184delA & 1898+1G>A
FEV1: 116%
Also, my two brothers also have CF so with the same mutations we vary a fair amount. Also, none of us have had transplants.
Middle Bro, Age: 31
Same Mutations
FEV1: ~70%
Oldest Bro, Age: 34
Same Mutations
FEV1: ~80%
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>welshgirl</b></i>
mel, please tell me to buzz off if i'm too nosy!!!! can you tell me a little about your history,seeing as both you and joe were diagnosed around the same age? i have wondered often whether joe's symptoms would...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>welshgirl</b></i>
mel, please tell me to buzz off if i'm too nosy!!!! can you tell me a little about your history,seeing as both you and joe were diagnosed around the same age? i have wondered often whether joe's symptoms would...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>welshgirl</b></i>
mel, please tell me to buzz off if i'm too nosy!!!! can you tell me a little about your history,seeing as both you and joe were diagnosed around the same age? i have wondered often whether joe's symptoms would...
not doing CPTs
Ratatosk - -
Just wanted to add that it is SO GREAT that you make the CPT part of your routine. My parents did it for us every morning while we were kids and it became a bonding time for all of us. We would fight about who got to go "first" in the morning with our parents be/c...
not doing CPTs
Ratatosk - -
Just wanted to add that it is SO GREAT that you make the CPT part of your routine. My parents did it for us every morning while we were kids and it became a bonding time for all of us. We would fight about who got to go "first" in the morning with our parents be/c...
not doing CPTs
Ratatosk - -
Just wanted to add that it is SO GREAT that you make the CPT part of your routine. My parents did it for us every morning while we were kids and it became a bonding time for all of us. We would fight about who got to go "first" in the morning with our parents be/c...
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.