Cystic Fibrosis Forum (EXP)

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  1. P

    Please Pray for Daine

    Thank you for the information. Please keep us posted and please let her know that we are all thinking of her!
  2. P

    Please Pray for Daine

    Thank you for the information. Please keep us posted and please let her know that we are all thinking of her!
  3. P

    To speak of CF or not...

    Another CF'er responding vs. a parent of a CF'er. I find it really difficult to tell people sometimes. When I first started working after college graduation, I worked within my department and made friends, etc for a year before I told anyone. I passed my cough off as allergies and sinus...
  4. P

    To speak of CF or not...

    Another CF'er responding vs. a parent of a CF'er. I find it really difficult to tell people sometimes. When I first started working after college graduation, I worked within my department and made friends, etc for a year before I told anyone. I passed my cough off as allergies and sinus...
  5. P

    To speak of CF or not...

    Another CF'er responding vs. a parent of a CF'er. I find it really difficult to tell people sometimes. When I first started working after college graduation, I worked within my department and made friends, etc for a year before I told anyone. I passed my cough off as allergies and sinus...
  6. P

    GREAT CHECK-UP

    Congratulations Jane! I don't really talk with you, but keep tabs on your sons' health through your threads. I feel a bit of kinship with those who also have CF siblings. Hope all your plans for your vacation go smoothly.
  7. P

    GREAT CHECK-UP

    Congratulations Jane! I don't really talk with you, but keep tabs on your sons' health through your threads. I feel a bit of kinship with those who also have CF siblings. Hope all your plans for your vacation go smoothly.
  8. P

    GREAT CHECK-UP

    Congratulations Jane! I don't really talk with you, but keep tabs on your sons' health through your threads. I feel a bit of kinship with those who also have CF siblings. Hope all your plans for your vacation go smoothly.
  9. P

    x

    not doing CPTs cf disease progression has <u>a lot </u>to do with genetics. genetics that dr./researchers/patients don't completely understand right now. cf patients and caregivers have to be okay with their own decisions on their care and live with their decisions. nothing is predictable...
  10. P

    x

    not doing CPTs cf disease progression has <u>a lot </u>to do with genetics. genetics that dr./researchers/patients don't completely understand right now. cf patients and caregivers have to be okay with their own decisions on their care and live with their decisions. nothing is predictable...
  11. P

    x

    not doing CPTs cf disease progression has <u>a lot </u>to do with genetics. genetics that dr./researchers/patients don't completely understand right now. cf patients and caregivers have to be okay with their own decisions on their care and live with their decisions. nothing is predictable...
  12. P

    Gathering info...

    Age: 29 Mutations: 2184delA & 1898+1G>A FEV1: 116% Also, my two brothers also have CF so with the same mutations we vary a fair amount. Also, none of us have had transplants. Middle Bro, Age: 31 Same Mutations FEV1: ~70% Oldest Bro, Age: 34 Same Mutations FEV1: ~80%
  13. P

    Gathering info...

    Age: 29 Mutations: 2184delA & 1898+1G>A FEV1: 116% Also, my two brothers also have CF so with the same mutations we vary a fair amount. Also, none of us have had transplants. Middle Bro, Age: 31 Same Mutations FEV1: ~70% Oldest Bro, Age: 34 Same Mutations FEV1: ~80%
  14. P

    Gathering info...

    Age: 29 Mutations: 2184delA & 1898+1G>A FEV1: 116% Also, my two brothers also have CF so with the same mutations we vary a fair amount. Also, none of us have had transplants. Middle Bro, Age: 31 Same Mutations FEV1: ~70% Oldest Bro, Age: 34 Same Mutations FEV1: ~80%
  15. P

    Mild CF?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>welshgirl</b></i> mel, please tell me to buzz off if i'm too nosy!!!! can you tell me a little about your history,seeing as both you and joe were diagnosed around the same age? i have wondered often whether joe's symptoms would...
  16. P

    Mild CF?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>welshgirl</b></i> mel, please tell me to buzz off if i'm too nosy!!!! can you tell me a little about your history,seeing as both you and joe were diagnosed around the same age? i have wondered often whether joe's symptoms would...
  17. P

    Mild CF?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>welshgirl</b></i> mel, please tell me to buzz off if i'm too nosy!!!! can you tell me a little about your history,seeing as both you and joe were diagnosed around the same age? i have wondered often whether joe's symptoms would...
  18. P

    x

    not doing CPTs Ratatosk - - Just wanted to add that it is SO GREAT that you make the CPT part of your routine. My parents did it for us every morning while we were kids and it became a bonding time for all of us. We would fight about who got to go "first" in the morning with our parents be/c...
  19. P

    x

    not doing CPTs Ratatosk - - Just wanted to add that it is SO GREAT that you make the CPT part of your routine. My parents did it for us every morning while we were kids and it became a bonding time for all of us. We would fight about who got to go "first" in the morning with our parents be/c...
  20. P

    x

    not doing CPTs Ratatosk - - Just wanted to add that it is SO GREAT that you make the CPT part of your routine. My parents did it for us every morning while we were kids and it became a bonding time for all of us. We would fight about who got to go "first" in the morning with our parents be/c...
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