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not doing CPTs SORRY LONG POST! I can relate to this, but from a different perspective. I grew up with daily CPT - except on weekends. That was our "vacation" from it. My parents completed CPT manually on all three of us (both my brothers have CF as well). We were all dx young so CPT was...

not doing CPTs SORRY LONG POST! I can relate to this, but from a different perspective. I grew up with daily CPT - except on weekends. That was our "vacation" from it. My parents completed CPT manually on all three of us (both my brothers have CF as well). We were all dx young so CPT was...

not doing CPTs SORRY LONG POST! I can relate to this, but from a different perspective. I grew up with daily CPT - except on weekends. That was our "vacation" from it. My parents completed CPT manually on all three of us (both my brothers have CF as well). We were all dx young so CPT was...

I've had plenty of people comment on my weight. They are critical of me and my eating habits, even family. In college a classmate within my program, who knew I had CF, asked me which eating disorder was my forte. Super insulting and of course I replied that duh, no eating disorder - remember...

I've had plenty of people comment on my weight. They are critical of me and my eating habits, even family. In college a classmate within my program, who knew I had CF, asked me which eating disorder was my forte. Super insulting and of course I replied that duh, no eating disorder - remember...

I've had plenty of people comment on my weight. They are critical of me and my eating habits, even family. In college a classmate within my program, who knew I had CF, asked me which eating disorder was my forte. Super insulting and of course I replied that duh, no eating disorder - remember...

Happy Birthday Jennifer!! To many more years. Cheers! <img src="i/expressions/beer.gif" border="0">

Happy Birthday Jennifer!! To many more years. Cheers! <img src="i/expressions/beer.gif" border="0">

Happy Birthday Jennifer!! To many more years. Cheers! <img src="i/expressions/beer.gif" border="0">

I haven't posted very often lately, but I check the site daily.  I wanted to post because tomorrow is my birthday.  .  It will be my 29th year here and I keep hoping to stay behind the median CF curve.

Happy Birthday Lynda!  Very excellent - -

Wanted to bring this thread back up.  One of my mutations is the same as Emily's, 1898+1G>A and the other is 2184delA. Anyone out there have the 2184delA??

Happy Birthday Luke!  Have a great year!!!!

Thanks for posting this.  I've read every response so far today while I was at work.  All of your responses hinge on a balance of living and maintaining.  I also have bros. with CF.  My one bros. is regularly taking TOBI and Pulmozyme.  It is oddly comforting to read your words.  They remind me...

Congratulations Jennifer - - You have done a wonderful job. Enjoy this time and revel in your accomplishments. Way To GO!!!

Great news Liz! Doctors are doctors and then their is our own health. Way to be the advocate for yourself. Enjoy your vacation to your home sweet home!

Teri - - You just made my day. I am here. I check the website daily to check the forums and check blogs - usually while I am at work though. I work full time and have a pretty large family with my in-laws so we are usually running all over our state to visit family on weekends. I haven't...

Hi Doug, Here is some basic info that I have available for Norcardia.... Organisms in the N. asteroides complex cause approximately 90% of huma Noracrdia cinfections. They cause bronchopulmonary disease in immunocompromised patients, with a high predilection for hematogenous spread to the...

Back in the day, when I was a kid, we regularly did the CF Bike-A-Thon. The shirts always had a balloon on them with the following saying "Give a Child Some Breathing Room". Maybe we can make a shirt like this that keeps Child but it is stricken through and says Adult.

Kaitsmom -- My CF center is not surgery happy and actually suggested the use of a sinus lavage using saline. I have an attachment that I received from the ENT doctor and it hooks up into a family size water pik. I then make a saline solution with regular water and salt and "wash" my sinuses...