Cystic Fibrosis Forum (EXP)

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  1. L

    Question for Women Only

    I too had severe lower back pain when I had my period. Once I got on my birth control I hardly have any problems at all. Its quite nice actually. When I went off birth control to get pregnant the pain started again adn when I started labor my pain was exactly where the pain is when I have my...
  2. L

    Favorite Christmas Songs

    My all time favorite Christmas song is Oh Holy Night. I love Mariah Carey's version and also Josh Grobans FANTASTIC!!!! It always puts me in the Christmas spirit Emilee
  3. L

    Prilosec

    I too took prilosec and then due to insurance issues had to change to nexium. it works great now that I am on a higher dose. Emilee
  4. L

    Mild/Moderate/Severe

    I do agree with Emily on this subject. I however think of myself as an optimist but not naiive. I think that telling parents that there child is mild can give them and the children a faulty sense of security. I was considered "mild" and within 1 1/2 years went from mild to severe. I am...
  5. L

    What state do you live in?

    UTAH for me!!!!! Emilee
  6. L

    Problem with Parents who smoke

    I remember when I was in High School and really good friends would start smoking or try smoking. I felt that they had betrayed me in some way. Here I was fighting for every breath that I took and they were ruining the wonderful lungs that they were blessed with. I can't imagine what it would...
  7. L

    Hey Ladies....

    I am not sure the dose of my pills but I believe that it is low. I take Apri oral and I love it. There aren't too many side effects and it really does work well. It took me 4 months to conceive after I stopped taking it. I was on it for 1 1/2 years before I got off to get pregnant. Emilee
  8. L

    Rectal Prolapse in a child?

    I actually have this problem on occassion and I remember the first time it started. I was staying at some friends because my parents were out of town. They were horrified and didn't know what to do because they weren't aware of what was happening. They took me to the doc, anyway the dad made...
  9. L

    Newly Afraid

    I had a doc once that told me don't go so much by the number but by how you feel. If you feel good don't let anyone tell you that you shouldn't. It has really helped me to not have so much anxiety about that. I have had to be on oxygen which was difficult trying to chase my daughter around...
  10. L

    New HP movie!! *spoilers, I'm sure*

    I absolutely loved the movie. My husband doesn't read the books but he still really enjoys the movies and still gets the jist of it all. I understand why they had to cut some things out but they really needed to build up Harry and Sirius' relationship for the next one which wasn't done. Allie...
  11. L

    Do you ever wonder?

    Allie, I don't know that anyone will ever be able to answer that question. I handle CF much differently than my brother who is basically in denial about the whole thing because it hasn't effected his life the way it has mine. As for you and not dating when the other lady is I think it has...
  12. L

    Back In (sigh)

    Carey, Thanks so much! Things can get a little restless here, however, I have learned to just go with the flow and take the time for me to relax and catch up on sleep. My daughter and husband come up on the weekends so that absolutely brightens everything up! We live 2 hours from the...
  13. L

    What tv shows do you watch?

    I am with Melissa on the Starting Over. It is great. I enjoy the drama. It makes me feel so much better about my life and how I deal with things. It makes me feel like I am actually doing a good job with my life. Not that I needed a show to do that for me but you know. I also love Alias...
  14. L

    conveinent coughing

    Its funny because at this moment I am holding my cough in!!!! I certainly can't do it all of the time but its nice when you can. I am in the community computer lab at the hospital so I don't want everyone thinking they are going to get some deathly disease like the bird flu or something!!! I...
  15. L

    Back In (sigh)

    I just wanted all of you to know that I am doing very well and that my PFTs are at there highest point since before I got pregnant! It is amazing and my docs are absolutely shocked. They never thought it would happen. We are all very excited about this new "baseline" For christy, Hang in...
  16. L

    Spousal Patterns?

    I just have to give such amazing credit to my husband for the wonderful person that he is and all that he has been through. I have often times been worried that he would end up feeling some sort of resentment due to my illness. Especially since it was the cause of us uprooting our lives and...
  17. L

    Back In (sigh)

    We live in Fairview Ut which is about 1 hr and 45 min. from Salt Lake. For Christie, I never went in the hospital until I was 16 years old and then it was a yearly thing. After I had my baby I went in quite frequently but now I think I am stabilizing some and hadn't been in for 6 months...
  18. L

    Worried about PFT

    There is never a guarantee that someone will be able to get back up after such a decrease. I had an extreme decrease though and through much hard work, dedication, and patience. I have been able to bring my PFTs quite a bit. Keep encouraging her. It truly can be a struggle. If you have any...
  19. L

    Back In (sigh)

    Carey, I loved Dr. Chatfield!!! She is the best! I am actually at the University of Utah hospital. I really don't mind talking about anything so if you have any questions feel free to ask. I am doing very well and I thank you for your email. Good luck with your son. Emilee
  20. L

    religion

    I was born and raised LDS I still practice this religion and find myself to be quite a religious person. For those of you who don't know we are Christians and yes, my religion has given me much strength during my fight with CF. Emilee
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