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Sean's teeth are a bit more yellow than I'd like. His dentist told us he did have some staining from his meds. Always make sure your kids brush after any kind of breathing treatment. Inhaled meds are really hard on their teeth.

Liza, I've been where you are and it's awful. Last March we had to have my border collie, Taz, euthanized for a very similar reason. She was 13, hard of hearing, eyes glazed over with cataracts, had suffered a bout with vestibular syndrome and hadn't fully recovered but was still pretty...

Ok, Sean had his orthodontic consultation today. He's been going to the orthodontist for a while now but this was his first official consultation (i.e. the Dr. let us know the extent of work needed to be done). Sean needs a ton of work. He's got an under bite, a small palate, missing adult...

<div class="FTQUOTE"><begin quote>I just hope they think back to those of us who gave our lives, to be studied and monitored and fights be documented by the cf team so they could find a way to defeat c.f, and say Thank You.</end quote></div> Thank You, Jamey. Rest in peace.

According to our Dr., PFT results on kids are still very inconsistent. They look for overall trends until they have confidence in the childs ability to perform the test correctly visit after visit. The fact that your son has a cough at the end of the test is probably "something" and oral...

I believe the D stands for diagnosed, as in diagnosed with CF.

I know this has been asked before but I don't remember if it was ever answered? Does anyone have any average data suggesting the time it takes for new drugs to complete trials? Obviously the research phase is very open ended but I was wondering about how long it takes to complete Phase 1...

Emily, When Sean was diagnosed, our CF doc immeadiately sweat tested our older son. The test was very negative. We were satisfied and went on our way. In spite of the negative sweat test, over the next 8 years , we had some indicators that our older son could be CF positive. I was worried...

Hi Nicole, Not sure if you saw in my post but we also had a false positive triple screen during my "CF pregnancy". There have been a couple other people on here that experienced the same thing. I know most don't but there must be something that occasionally throws it off for CFers...

Sterilizing? I thought that went out in the 60's? I guess it's a personal choice but I bet there are tons of CFers out there who's mom's didn't sterilize a thing. I bet they even let them crawl on the floor once in a while too <GASP>. My brother's wife just had a premie (2 mos. early) and...

Yipee!!!! Congrats Emily and Mike! <img src="i/expressions/wine.gif" border="0"> Can't wait to see the blog!!!

I'm guessing that anon (@ 3:50) also went to a nonaccredited college! There is a reason some clinics are accredited while others are not. I don't think anyone is saying that you can't get good care outside of an accredited center but you should try and understand why that center isn't...

Aria, I think what Craig was questioning wasn't about the value of FEV numbers but the fact that they were trying to obtain them from an infant. For many this technology is an unknown. People come here to learn and not all of us know it all, hence the reason Craig asked, <div...

Like many of the other posts, this is a long story. I'll try to keep it as short as possible. I truly hope that our stories of diagnosis/misdiagnosis can help new parents out there still stuck in the system. Here goes... I guess it all started when I had a test during pregnancy. You know...

Welcome to this site Addison's Mom. There is a lot of good information here and a lot of support so I hope you stick around. Yes, the first year is very trying but once you get into a routine things will be just fine. The initial diagnosis is very devistating and you'll need time to "mourn"...

Hi Tracy, 6 to 7 enzymes seems like a lot for only 27kg. Sean takes 3 and he's ~24kg. We asked about increasing his enzymes a bit because he's been experiencing a lot of stomach pain lately but the Dr. prescribed Zantac instead. She said he was already on the borderline of his enzyme dose.

Here's a good place to get BMI info... <a target=_blank class=ftalternatingbarlinklarge href="http://www.cdc.gov/nccdphp/dnpa/bmi/">BMI calculator</a>

Like lots have said, a chart is just a chart. It's my understanding, however, that Cfers are supposed to carry a little extra weight (reserves) for when they are battling infections. Does that necessarily mean you need a G-tube? I don't think so. If the Dr. thinks you need a few extra pound...

Hi Michael, Welcome to the site. I know what you are trying to say (I think). Paraphrasing here... Quit your b!tching, things can always get worse. Think positively. Am I close? I do take exception with you judging people by reading a few posts. We've got all ranges of health status here...

Sandra, Do a search on here for Quest Diagnostics. They perform a much more extensive test.