Cystic Fibrosis Forum (EXP)

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  1. A

    How to travel with all this stuff

    <b>I would never - ever - check a vest</b>. They are too hard/expensive to replace, and no, I wouldn't count on getting the airline to buy a new one for you. My daughter has flown with her Hill-Rom numerous times - she does not use their bag, but rather uses a rolling luggage bag that fits both...
  2. A

    How to travel with all this stuff

    <b>I would never - ever - check a vest</b>. They are too hard/expensive to replace, and no, I wouldn't count on getting the airline to buy a new one for you. My daughter has flown with her Hill-Rom numerous times - she does not use their bag, but rather uses a rolling luggage bag that fits both...
  3. A

    How to travel with all this stuff

    <b>I would never - ever - check a vest</b>. They are too hard/expensive to replace, and no, I wouldn't count on getting the airline to buy a new one for you. My daughter has flown with her Hill-Rom numerous times - she does not use their bag, but rather uses a rolling luggage bag that fits both...
  4. A

    How to travel with all this stuff

    <b>I would never - ever - check a vest</b>. They are too hard/expensive to replace, and no, I wouldn't count on getting the airline to buy a new one for you. My daughter has flown with her Hill-Rom numerous times - she does not use their bag, but rather uses a rolling luggage bag that fits both...
  5. A

    How to travel with all this stuff

    <b>I would never - ever - check a vest</b>. They are too hard/expensive to replace, and no, I wouldn't count on getting the airline to buy a new one for you. <br /> <br />My daughter has flown with her Hill-Rom numerous times - she does not use their bag, but rather uses a rolling luggage bag...
  6. A

    medicare and insurance

    You should check with Beth -- she is an attorney with CF. She will answer your questions for free. I have called her... she called me back and answered my questions and gave me advice. See below: Beth Sufian <a target=_blank class=ftalternatingbarlinklarge...
  7. A

    medicare and insurance

    You should check with Beth -- she is an attorney with CF. She will answer your questions for free. I have called her... she called me back and answered my questions and gave me advice. See below: Beth Sufian <a target=_blank class=ftalternatingbarlinklarge...
  8. A

    medicare and insurance

    You should check with Beth -- she is an attorney with CF. She will answer your questions for free. I have called her... she called me back and answered my questions and gave me advice. See below: Beth Sufian <a target=_blank class=ftalternatingbarlinklarge...
  9. A

    medicare and insurance

    You should check with Beth -- she is an attorney with CF. She will answer your questions for free. I have called her... she called me back and answered my questions and gave me advice. See below: Beth Sufian <a target=_blank class=ftalternatingbarlinklarge...
  10. A

    medicare and insurance

    You should check with Beth -- she is an attorney with CF. She will answer your questions for free. I have called her... she called me back and answered my questions and gave me advice. <br />See below: <br /> <br />Beth Sufian <br /> <br /><a target=_blank class=ftalternatingbarlinklarge...
  11. A

    I'm so sad

    They may just treat her at home with Tobi and Cypro. My daughter was quite a bit older when she cultured PA. She did not have to go to the hospital just the two meds at home... she never cultured it again -- that was about 5 years ago. Best wishes.
  12. A

    I'm so sad

    They may just treat her at home with Tobi and Cypro. My daughter was quite a bit older when she cultured PA. She did not have to go to the hospital just the two meds at home... she never cultured it again -- that was about 5 years ago. Best wishes.
  13. A

    I'm so sad

    They may just treat her at home with Tobi and Cypro. My daughter was quite a bit older when she cultured PA. She did not have to go to the hospital just the two meds at home... she never cultured it again -- that was about 5 years ago. Best wishes.
  14. A

    I'm so sad

    They may just treat her at home with Tobi and Cypro. My daughter was quite a bit older when she cultured PA. She did not have to go to the hospital just the two meds at home... she never cultured it again -- that was about 5 years ago. Best wishes.
  15. A

    I'm so sad

    They may just treat her at home with Tobi and Cypro. My daughter was quite a bit older when she cultured PA. She did not have to go to the hospital just the two meds at home... she never cultured it again -- that was about 5 years ago. <br /> <br />Best wishes.
  16. A

    Water....

    We too use the reverse osmosis system for all drinking water and foods. Not necessarily because our kids have CF, but because we are picky about the way our water tastes. We have purchased our latest system off of eBay, but like Jada said you can find them at Home Depot too. It is amazing how...
  17. A

    Water....

    We too use the reverse osmosis system for all drinking water and foods. Not necessarily because our kids have CF, but because we are picky about the way our water tastes. We have purchased our latest system off of eBay, but like Jada said you can find them at Home Depot too. It is amazing how...
  18. A

    Water....

    We too use the reverse osmosis system for all drinking water and foods. Not necessarily because our kids have CF, but because we are picky about the way our water tastes. We have purchased our latest system off of eBay, but like Jada said you can find them at Home Depot too. It is amazing how...
  19. A

    Water....

    We too use the reverse osmosis system for all drinking water and foods. Not necessarily because our kids have CF, but because we are picky about the way our water tastes. We have purchased our latest system off of eBay, but like Jada said you can find them at Home Depot too. It is amazing how...
  20. A

    Water....

    We too use the reverse osmosis system for all drinking water and foods. Not necessarily because our kids have CF, but because we are picky about the way our water tastes. <br /> <br />We have purchased our latest system off of eBay, but like Jada said you can find them at Home Depot too. It is...
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