Cystic Fibrosis Forum (EXP)

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  1. A

    Siblings with CF

    Sorry to hear that the doctor made statements that sound confusing... here's what I'm thinking he was talking about... yes, every case is different even with siblings with the same gene combination. So you don't know for sure what you will have to deal with until it happens...that is true for...
  2. A

    Siblings with CF

    Sorry to hear that the doctor made statements that sound confusing... here's what I'm thinking he was talking about... yes, every case is different even with siblings with the same gene combination. So you don't know for sure what you will have to deal with until it happens...that is true for...
  3. A

    Siblings with CF

    Sorry to hear that the doctor made statements that sound confusing... here's what I'm thinking he was talking about... yes, every case is different even with siblings with the same gene combination. So you don't know for sure what you will have to deal with until it happens...that is true for...
  4. A

    Siblings with CF

    Sorry to hear that the doctor made statements that sound confusing... here's what I'm thinking he was talking about... yes, every case is different even with siblings with the same gene combination. So you don't know for sure what you will have to deal with until it happens...that is true for...
  5. A

    Siblings with CF

    Sorry to hear that the doctor made statements that sound confusing... here's what I'm thinking he was talking about... yes, every case is different even with siblings with the same gene combination. So you don't know for sure what you will have to deal with until it happens...that is true for...
  6. A

    What do I say?

    I would email her back and let her know you are sorry for her loss, and ask if she would like for you to pass on the information to the other people at the meeting. That's of course a very short version, but just the two main points of discussion...along with an offer for any other assistance...
  7. A

    What do I say?

    I would email her back and let her know you are sorry for her loss, and ask if she would like for you to pass on the information to the other people at the meeting. That's of course a very short version, but just the two main points of discussion...along with an offer for any other assistance...
  8. A

    What do I say?

    I would email her back and let her know you are sorry for her loss, and ask if she would like for you to pass on the information to the other people at the meeting. That's of course a very short version, but just the two main points of discussion...along with an offer for any other assistance...
  9. A

    What do I say?

    I would email her back and let her know you are sorry for her loss, and ask if she would like for you to pass on the information to the other people at the meeting. That's of course a very short version, but just the two main points of discussion...along with an offer for any other assistance...
  10. A

    What do I say?

    I would email her back and let her know you are sorry for her loss, and ask if she would like for you to pass on the information to the other people at the meeting. <br /> <br />That's of course a very short version, but just the two main points of discussion...along with an offer for any other...
  11. A

    General Update

    Emily - I too think that the doctor may have said that just to get an idea of how much function the CFTR is putting out, but it shouldn't/isn't going to change much else as far as knowing what to expect or deciding about preventative care. For what it's worth - my kids sweat test numbers are...
  12. A

    General Update

    Emily - I too think that the doctor may have said that just to get an idea of how much function the CFTR is putting out, but it shouldn't/isn't going to change much else as far as knowing what to expect or deciding about preventative care. For what it's worth - my kids sweat test numbers are...
  13. A

    General Update

    Emily - I too think that the doctor may have said that just to get an idea of how much function the CFTR is putting out, but it shouldn't/isn't going to change much else as far as knowing what to expect or deciding about preventative care. For what it's worth - my kids sweat test numbers are...
  14. A

    General Update

    Emily - I too think that the doctor may have said that just to get an idea of how much function the CFTR is putting out, but it shouldn't/isn't going to change much else as far as knowing what to expect or deciding about preventative care. For what it's worth - my kids sweat test numbers are...
  15. A

    General Update

    Emily - I too think that the doctor may have said that just to get an idea of how much function the CFTR is putting out, but it shouldn't/isn't going to change much else as far as knowing what to expect or deciding about preventative care. <br /> <br />For what it's worth - my kids sweat test...
  16. A

    Crazy weird pressure in my ear

    My son has had something that sounds very similar to what you are describing - it turned out to be a big wad of ear wax, smashed flat against the ear drum. I tried the over the counter stuff and it didn't work, had to take him to the regular doctor at the clinic and they did a wash multiple...
  17. A

    Crazy weird pressure in my ear

    My son has had something that sounds very similar to what you are describing - it turned out to be a big wad of ear wax, smashed flat against the ear drum. I tried the over the counter stuff and it didn't work, had to take him to the regular doctor at the clinic and they did a wash multiple...
  18. A

    Crazy weird pressure in my ear

    My son has had something that sounds very similar to what you are describing - it turned out to be a big wad of ear wax, smashed flat against the ear drum. I tried the over the counter stuff and it didn't work, had to take him to the regular doctor at the clinic and they did a wash multiple...
  19. A

    Crazy weird pressure in my ear

    My son has had something that sounds very similar to what you are describing - it turned out to be a big wad of ear wax, smashed flat against the ear drum. I tried the over the counter stuff and it didn't work, had to take him to the regular doctor at the clinic and they did a wash multiple...
  20. A

    Crazy weird pressure in my ear

    My son has had something that sounds very similar to what you are describing - it turned out to be a big wad of ear wax, smashed flat against the ear drum. I tried the over the counter stuff and it didn't work, had to take him to the regular doctor at the clinic and they did a wash multiple...
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