Cystic Fibrosis Forum (EXP)

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  1. K

    Helf-advice needed

    Someone to talk to that understood what I was going through. And don't forget, sometimes things can't be solved - your friends may just need to vent, rage, cry. A group of parents from the school brought us dinner for a month of Mondays as we were struggling to adjust to the treatment regimen...
  2. K

    Helf-advice needed

    Someone to talk to that understood what I was going through. And don't forget, sometimes things can't be solved - your friends may just need to vent, rage, cry. A group of parents from the school brought us dinner for a month of Mondays as we were struggling to adjust to the treatment regimen...
  3. K

    Quick question

    Based on what I've read from others here, I understand that the absolute best thing is to have a different neb for each medicine and to wash, then boil each neb between uses (the boiling part is in the Pari literature, for CF patients). We had a hodge podge of nebs, some given to us by the doc...
  4. K

    Quick question

    Based on what I've read from others here, I understand that the absolute best thing is to have a different neb for each medicine and to wash, then boil each neb between uses (the boiling part is in the Pari literature, for CF patients). We had a hodge podge of nebs, some given to us by the doc...
  5. K

    Quick question

    Based on what I've read from others here, I understand that the absolute best thing is to have a different neb for each medicine and to wash, then boil each neb between uses (the boiling part is in the Pari literature, for CF patients). We had a hodge podge of nebs, some given to us by the doc...
  6. K

    Quick question

    Based on what I've read from others here, I understand that the absolute best thing is to have a different neb for each medicine and to wash, then boil each neb between uses (the boiling part is in the Pari literature, for CF patients). We had a hodge podge of nebs, some given to us by the doc...
  7. K

    Quick question

    Based on what I've read from others here, I understand that the absolute best thing is to have a different neb for each medicine and to wash, then boil each neb between uses (the boiling part is in the Pari literature, for CF patients). We had a hodge podge of nebs, some given to us by the doc...
  8. K

    Quick question

    Based on what I've read from others here, I understand that the absolute best thing is to have a different neb for each medicine and to wash, then boil each neb between uses (the boiling part is in the Pari literature, for CF patients). We had a hodge podge of nebs, some given to us by the doc...
  9. K

    concerned

    Katy still has a pot belly, but it has subsided somewhat (we are 10 months into our diganosis). I do have a few thoughts - is Ainsley on an acid blocker (to help the enzymes work more effectively) and have you considered a probiotic like Culturelle? We just started Culturelle for Katy, in the...
  10. K

    concerned

    Katy still has a pot belly, but it has subsided somewhat (we are 10 months into our diganosis). I do have a few thoughts - is Ainsley on an acid blocker (to help the enzymes work more effectively) and have you considered a probiotic like Culturelle? We just started Culturelle for Katy, in the...
  11. K

    concerned

    Katy still has a pot belly, but it has subsided somewhat (we are 10 months into our diganosis). I do have a few thoughts - is Ainsley on an acid blocker (to help the enzymes work more effectively) and have you considered a probiotic like Culturelle? We just started Culturelle for Katy, in the...
  12. K

    concerned

    Katy still has a pot belly, but it has subsided somewhat (we are 10 months into our diganosis). I do have a few thoughts - is Ainsley on an acid blocker (to help the enzymes work more effectively) and have you considered a probiotic like Culturelle? We just started Culturelle for Katy, in the...
  13. K

    concerned

    Katy still has a pot belly, but it has subsided somewhat (we are 10 months into our diganosis). I do have a few thoughts - is Ainsley on an acid blocker (to help the enzymes work more effectively) and have you considered a probiotic like Culturelle? We just started Culturelle for Katy, in the...
  14. K

    concerned

    Katy still has a pot belly, but it has subsided somewhat (we are 10 months into our diganosis). I do have a few thoughts - is Ainsley on an acid blocker (to help the enzymes work more effectively) and have you considered a probiotic like Culturelle? We just started Culturelle for Katy, in the...
  15. K

    Clinic Appointment

    I remember the first time Katy didn't cry for the throat culture, <b>I almost cried</b> I was so proud of her! Now blood draws - she is still fighting those. We'll see how that goes in August at our annual visit. Here's to our big girls......... <img src="i/expressions/heart.gif" border="0">
  16. K

    Clinic Appointment

    I remember the first time Katy didn't cry for the throat culture, <b>I almost cried</b> I was so proud of her! Now blood draws - she is still fighting those. We'll see how that goes in August at our annual visit. Here's to our big girls......... <img src="i/expressions/heart.gif" border="0">
  17. K

    Clinic Appointment

    I remember the first time Katy didn't cry for the throat culture, <b>I almost cried</b> I was so proud of her! Now blood draws - she is still fighting those. We'll see how that goes in August at our annual visit. Here's to our big girls......... <img src="i/expressions/heart.gif" border="0">
  18. K

    Clinic Appointment

    I remember the first time Katy didn't cry for the throat culture, <b>I almost cried</b> I was so proud of her! Now blood draws - she is still fighting those. We'll see how that goes in August at our annual visit. Here's to our big girls......... <img src="i/expressions/heart.gif" border="0">
  19. K

    Clinic Appointment

    I remember the first time Katy didn't cry for the throat culture, <b>I almost cried</b> I was so proud of her! Now blood draws - she is still fighting those. We'll see how that goes in August at our annual visit. Here's to our big girls......... <img src="i/expressions/heart.gif" border="0">
  20. K

    Clinic Appointment

    I remember the first time Katy didn't cry for the throat culture, <b>I almost cried</b> I was so proud of her! Now blood draws - she is still fighting those. We'll see how that goes in August at our annual visit. Here's to our big girls......... <img src="i/expressions/heart.gif" border="0">
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