Cystic Fibrosis Forum (EXP)

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  1. K

    still waiting

    I am as alarmed as you at the amount of weight loss. Thank goodness they are at least testing for pancreatic insufficieny. They can also do blood work and test for vitamin levels (fat soluble vitamins are going to be low, if she is unable to digest fats). They can also test for Celiac via a...
  2. K

    still waiting

    I am as alarmed as you at the amount of weight loss. Thank goodness they are at least testing for pancreatic insufficieny. They can also do blood work and test for vitamin levels (fat soluble vitamins are going to be low, if she is unable to digest fats). They can also test for Celiac via a...
  3. K

    still waiting

    I am as alarmed as you at the amount of weight loss. Thank goodness they are at least testing for pancreatic insufficieny. They can also do blood work and test for vitamin levels (fat soluble vitamins are going to be low, if she is unable to digest fats). They can also test for Celiac via a...
  4. K

    still waiting

    I am as alarmed as you at the amount of weight loss. Thank goodness they are at least testing for pancreatic insufficieny. They can also do blood work and test for vitamin levels (fat soluble vitamins are going to be low, if she is unable to digest fats). They can also test for Celiac via a...
  5. K

    still waiting

    I am as alarmed as you at the amount of weight loss. Thank goodness they are at least testing for pancreatic insufficieny. They can also do blood work and test for vitamin levels (fat soluble vitamins are going to be low, if she is unable to digest fats). They can also test for Celiac via a...
  6. K

    still waiting

    I am as alarmed as you at the amount of weight loss. Thank goodness they are at least testing for pancreatic insufficieny. They can also do blood work and test for vitamin levels (fat soluble vitamins are going to be low, if she is unable to digest fats). They can also test for Celiac via a...
  7. K

    Worried sick...

    Hi - Protocol varies by clinic. I would say that if they can't get enough sweat again, then it is time to push for the full Ambry panel. If they resist, have them do the fecal fat test to see if she is pancreatic insufficient. Have them do blood work to check her vitamin levels. If the sweat...
  8. K

    Worried sick...

    Hi - Protocol varies by clinic. I would say that if they can't get enough sweat again, then it is time to push for the full Ambry panel. If they resist, have them do the fecal fat test to see if she is pancreatic insufficient. Have them do blood work to check her vitamin levels. If the sweat...
  9. K

    Worried sick...

    Hi - Protocol varies by clinic. I would say that if they can't get enough sweat again, then it is time to push for the full Ambry panel. If they resist, have them do the fecal fat test to see if she is pancreatic insufficient. Have them do blood work to check her vitamin levels. If the sweat...
  10. K

    Worried sick...

    Hi - Protocol varies by clinic. I would say that if they can't get enough sweat again, then it is time to push for the full Ambry panel. If they resist, have them do the fecal fat test to see if she is pancreatic insufficient. Have them do blood work to check her vitamin levels. If the sweat...
  11. K

    Worried sick...

    Hi - Protocol varies by clinic. I would say that if they can't get enough sweat again, then it is time to push for the full Ambry panel. If they resist, have them do the fecal fat test to see if she is pancreatic insufficient. Have them do blood work to check her vitamin levels. If the sweat...
  12. K

    Worried sick...

    Hi - Protocol varies by clinic. I would say that if they can't get enough sweat again, then it is time to push for the full Ambry panel. If they resist, have them do the fecal fat test to see if she is pancreatic insufficient. Have them do blood work to check her vitamin levels. If the sweat...
  13. K

    Just diagnosed

    Hi Kimberly - Don't beat yourself up about not being pushier with the docs. There are many of us on here that had similar situations - the doctors wouldn't listen and wrote us off as hysterical moms. The good news is that your son will now be getting the treatment he needs. I especially...
  14. K

    Just diagnosed

    Hi Kimberly - Don't beat yourself up about not being pushier with the docs. There are many of us on here that had similar situations - the doctors wouldn't listen and wrote us off as hysterical moms. The good news is that your son will now be getting the treatment he needs. I especially...
  15. K

    Just diagnosed

    Hi Kimberly - Don't beat yourself up about not being pushier with the docs. There are many of us on here that had similar situations - the doctors wouldn't listen and wrote us off as hysterical moms. The good news is that your son will now be getting the treatment he needs. I especially...
  16. K

    Just diagnosed

    Hi Kimberly - Don't beat yourself up about not being pushier with the docs. There are many of us on here that had similar situations - the doctors wouldn't listen and wrote us off as hysterical moms. The good news is that your son will now be getting the treatment he needs. I especially...
  17. K

    Just diagnosed

    Hi Kimberly - Don't beat yourself up about not being pushier with the docs. There are many of us on here that had similar situations - the doctors wouldn't listen and wrote us off as hysterical moms. The good news is that your son will now be getting the treatment he needs. I especially...
  18. K

    Just diagnosed

    Hi Kimberly - Don't beat yourself up about not being pushier with the docs. There are many of us on here that had similar situations - the doctors wouldn't listen and wrote us off as hysterical moms. The good news is that your son will now be getting the treatment he needs. I especially...
  19. K

    Clinic Appointment

    Wow Rebecca I'm sorry Maggie is having these problems. I HATE CLINIC! The anticipation before, the being there and finding out something is wrong, and then waiting for the stupid culture results. Every two months. Over and over. Hopefully it was just that virus and she'll be better soon...
  20. K

    Clinic Appointment

    Wow Rebecca I'm sorry Maggie is having these problems. I HATE CLINIC! The anticipation before, the being there and finding out something is wrong, and then waiting for the stupid culture results. Every two months. Over and over. Hopefully it was just that virus and she'll be better soon...
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