Cystic Fibrosis Forum (EXP)

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  1. C

    Flying with vest and meds

    We fly pretty regularly and haven't had any problems/issues with bringing meds on the plane. Sean doesn't have a vest so I can't help you there but one piece of advice do have is to make sure you bring all of your "must have" meds with you on the plane as a carry on. Luggage does get lost...
  2. C

    The I game

    True love... If I could be anybody it would be...
  3. C

    8 month old signs of Malabsorption

    I think a balance is important an we make Sean eat his fair share of veggies/fruits. He loves them so it's not really making him eat them. We don't however let him fill up on those low calorie foods. Even with cheese sauce or dips, fruits and veggies aren't great for weight gain. They are...
  4. C

    Ance linked to Vitamins

    Make sure your vitamin doesn't contain any iodine. People with acne prone skin should lay off the iodine. Also check out this website for acne info... <a target=new class=ftalternatingbarlinklarge href="http://www.clearskin.net/">Clearskin.net</a>
  5. C

    Merry Christmas!!!

    Meppy ChristmaHanuKwanzadan!!! That's short for Merry Christmas, Happy Hanaukah, Kwanza, Ramamdan <img src="i/expressions/face-icon-small-happy.gif" border="0">
  6. C

    G-Tube, need some help.

    Hey Jen, Andrew looks so good <img src="i/expressions/face-icon-small-happy.gif" border="0"> How are things going for you guys?
  7. C

    Dr Phil

    Dr. Phil is indeed a Dr. He has a PhD in psychology. So, although he's not a doctor of medicine he is a doctor. Personally, I preferred him when he was a regular guest on Oprah. He seemed much more insightful then. I think that the pressure to have a successful show (that airs 5 days a...
  8. C

    Ultrase ????

    It was in the Families section. Here's the link... <a target=new class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=6&threadid=4846&FTVAR_MSGDBTABLE=">Enzyme issue</a>
  9. C

    Ultrase ???

    This was just mentioned a few days ago. Here's the link... <a target=new class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=6&threadid=4846&FTVAR_MSGDBTABLE=">Enzyme issue</a>
  10. C

    Cipro (again)...

    Sean was just put on Cipro for the first time. He's had a cough for a while now and started coughing up "greenies". His Dr. put him on Cipro based mostly on what she's been seeing in other patients, Sean's history, and the fact that it's the holidays (a lot of people contact). Anyway, he's...
  11. C

    Checking out for the big move

    Have a good trip and enjoy the holidays. We'll miss you!
  12. C

    Ultrase ????

    There's a thread on here about that very issue. I think it was about a week ago. Maybe in the adults section?
  13. C

    flu shot response

    From what I understand, the shot is a dead form of the virus so from what "they" say, you can't actually get the flu from the flu shot. Of course, I'm not discounting anyone's reaction to the shot. Sean no longer gets the flu shot because every year his reaction to the shot got worse and...
  14. C

    Pharmacy problems

    Well, as Julie and Melissa stated, CVS shouldn't have been billing Medicaid as our primary insurance when we had private insurance. I talked with some folks at Medicaid today and they were very helpful. In fact they mentioned that they have the ability to actually take money back from CVS...
  15. C

    Pharmacy problems

    <blockquote>Quote<br><hr>They don't care one bit whether they do things right when it comes to customer service because the only thing they want is MONEY and as much of it as possible. Why should they care where it comes from? One of the biggest industries in the country and it is so DARN...
  16. C

    Pharmacy problems

    Well, I just got off the phone with my contact from CVS and according to her there is nothing they can do for me. It seems they can no longer bill my insurance company because the claims are too old. I explained to her that there is no reason for CVS to bill my insurance company because CVS...
  17. C

    Pharmacy problems

    Yeah, I suspect this is pretty common when people have some form of private insurance and medicaid. The solution seems so simple - list on the reciept who paid what - but the pharmacies just don't do it. I think I'm going to give our pharmacy, which incidentally is a large chain and should...
  18. C

    Pharmacy problems

    Ok, this is a little complicated but I'll try and keep it simple. We live in Michigan and unti this year received Children's Special Health Care (like Medicaid) to help offset the cost of Sean's medical expenses. Basically, everything was billed through my or my husband's health insurance and...
  19. C

    I found something that might help other CF's

    Welcome Sean. I haven't tried Tea Tree Oil myself but it does come highly recommended from the "acne community". I've got quite a few on-line friends that have used it with great success in fighting acne. No worries Sean, I don't think anyone here will crucify you for recommending a natural...
  20. C

    Sex, Religion, and Politics...

    I enjoy reading through and responding to all the different kinds of posts on here. What I don't like is when people start tossing around personal attacks. I don't think the prayer folder necessarily means all religious discussion belongs there. It's simply a folder for prayer requests...
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