Cystic Fibrosis Forum (EXP)

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  1. C

    Growth Study

    Does anyone here have a child that is participating or has participated in the growth hormone study?
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    Suggestions to tell my Daughter

    I used to hate being called a Tomboy. No doubt I was a Tomboy but why does it have to have a derogatory implication. Like you say, it's a good thing to be able to climb trees or play with dolls. It also expands her circle of friends. Instead of just hanging out with the girls she can fit in...
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    Help! Looking at adopting cf child

    I think it's GREAT that you're hoping to adopt a CF'er! <img src="i/expressions/face-icon-small-happy.gif" border="0"> Yes, she can go to school and do anything kids without CF do. My CF'er plays travel hockey <img src="i/expressions/face-icon-small-smile.gif" border="0"> Unfortunately no one...
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    Pregestimil question

    Hi Jen, We were sent home on Pregestimil and enzymes. I think that's pretty standard but I have heard conflicting info on this. Since the formula is technically "pre-digested", some Docs say enzymes aren't necessary. Definitely ask your CF Dr. once you have an appointment or even before; I'd...
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    Baby in NICU

    Jen, I still cry when I read your posts but am so happy that you have this time with Andrew. I hope he continues to defy the odds. You and Andrew are still in my prayers.
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    CF women and Hysterectomy?!

    Cutecurlz, Are you considering a hysterectomy simply for birth control reasons or others? I don't think any Gyno would do a hysterectomy simply as a means of BC. A tubal ligation is more appropriate. In either case, you should speak with your Gyno about all your options, and as always, get a...
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    a game!!!

    Truck! Chocolate or Vanilla?
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    Can I vent?? Don't read if you are easily offended

    Yes, I'd heard about the debit cards being put to "good" use like strip clubs and some moron buying an $800 Louis Vatton (sp?) purse. Ignorance is all you can say. Unfortunately these folks are stealing from you and I (i.e. tax payers) and people that really need it. I'm always amazed at how...
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    Glyconutrients...

    Here's what CFF has to say about them... <a target=new class=ftalternatingbarlinklarge href="http://www.cff.org/news/consumer_alerts/index.cfm?ID=5293&blnShowBack=False&idContentType=1207">CFF and Glyconutrients</a> I'm suspicious. Perhaps if there were any more data other than their own...
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    Pics - Let's see 'em

    I saw on the Adult section that people were posting pics of themselves. I thought it would be nice if us proud family members could post some pics of our beloved CFers. So, here goes... Neil's the big one, Sean's the little one and the floating head is our dog Yukon swimming in Lake Huron.
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    Baby in NICU

    Jen, I feel just awful for you and your family. This is truly a tragedy. Know that whatever you decide for Andrew you will have the full support of everyone here. I, in no way, could ever pretend to know what you are going through but if it were me, I think I'd lean toward removing the...
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    Am I being selfish?

    Jen, Go for it. Not only have you worked too hard to just let your dream pass you by but you can't let CF run your life. Yes, it's a part of your life and a part of your loved one's lives but if you don't follow your heart you will always regret it. The day may come that you feel differently...
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    Nervous about flying

    I've flown tons of times starting from when I was very young. I take several flights a year and it seems that every time I fly, I get more and more nervous about it. I don't start getting nervous until a day or two before and then by the night before the flight, I've got myself worked into a...
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    Can I vent?? Don't read if you are easily offended

    Renee P, yes I definitely think you're right in that there was the attitude of "it'll never happen to me". Even the gov/mayor must have subscribed to this because the hospitals were not evacuated nor were any plans made beyond opening the doors to the Superdome which in my opinion was a total...
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    Can I vent?? Don't read if you are easily offended

    Luke, good to see you. I thought about you last night and wondered if you'd chime in. Yes, it sucks when I have to fill up my Tahoe for $75. I know compared to other countries gas is still cheap for us but, come on, compared to our prices 1 year ago, this is a scam.
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    Can I vent?? Don't read if you are easily offended

    Jacobus, I see your point about acknowledging the issue as a means to rectifying the problem. However, once someone has broken the law you must be consistent and certain with your punishment. I don't believe our current "corrections" system is properly set up to "rehabilitate" the lawless. I...
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    Can I vent?? Don't read if you are easily offended

    Lilith, how 'bout a link to your Blog. I'd love to check it out.
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    Can I vent?? Don't read if you are easily offended

    Well, illegal is illegal no matter how you got there. I think in America we tend to rationalize why someone may have done something illegal whether it be stealing, drug use, child molestation, etc... Yes, there are reasons why people commit illegal acts and maybe some of those reasons you...
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    Can I vent?? Don't read if you are easily offended

    <blockquote>Quote<br><hr>OUr country does a lot to help them become productive. It's abuse of the system that keeps the problems going. It's the fact that people have more luxuries in prision than most people have in their homes. My husband can't get a free education, I can't get a free...
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    Can I vent?? Don't read if you are easily offended

    Just to lighten things up a bit... <i>There are only two things I hate; those who are intolerant of other people's cultures........and the Dutch</i> - Nigel Powers from Austin Powers in Goldmember Of course I don't really hate the Dutch but I think of that line whenever someone mentions them.
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