Cystic Fibrosis Forum (EXP)

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  1. C

    Baby in NICU

    Jen, Glad you added the pic. He's a cutie and what a chubby little fella! I'm sure that extra weight will help him win his fight. Anonymous, Even though your daughter is no longer with you and I can't imagine the pain of losing your child, you must take some pride in the fact that she...
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    Can I vent?? Don't read if you are easily offended

    Careful Mockingbird, someone may turn you over to the G-man like they did WinAce <img src="i/expressions/face-icon-small-wink.gif" border="0">
  3. C

    Can I vent?? Don't read if you are easily offended

    Have No Balls, My plan would be to hit the streets and ask for help to get out. I'd try and hitch a ride, ask my church for assistance, or just plain and simple beg for money to leave town. I think in two days you could scrape up enough money for a bus ticket to higher ground. I see people...
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    Can I vent?? Don't read if you are easily offended

    Have No Balls, Speaking as someone who has come from behind to make a success of myself and as someone who has made bad choices along the way, I can with certainty tell you that everyone no matter what their situation has choices. Sometimes those choices aren't easy and sometimes they aren't...
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    Can I vent?? Don't read if you are easily offended

    Have No Balls, Did you read my post? I acknowledged that those who stayed behind were the poorest of the poor and/or medically bound to stay. I was in no way judging them except to say that if I saw that huge a$$ strom coming and had 2+ days notice, I would have done everything in my power to...
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    Can I vent?? Don't read if you are easily offended

    Geez it's just a post with your opinion. If Mike doesn't like it, so be it, but to keep e-mailing/bashing you, seems a bit over the top. Seems like he should just let it go already. With regard to your opinion, I too have mixed emotions about the tragedy. I feel sorry for people that have...
  7. C

    Baby in NICU

    Jen, Congratulations on the birth of you new baby. I'm so sorry he's having a rough start and my prayers are with you. Not that a law suit will change anything now but it certainly seems like you have grounds. I'm not a believer in suing just because things don't go your way but this is a...
  8. C

    warmer climate better?

    I think every CFer is different. Sean really suffers during the spring and fall; when the seasons are changing (we're in SE Michigan). The spring and fall tend to be pretty wet around here, lots of rain. This summer his allergies seem to be bothering him more, so summer has been a little...
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    Finding out the TRUE cost of a lung transplant to NC Medicaid...?

    Or my personal favorite, "Caution: Coffee may be hot!". I freakin hope so! I can't believe someone on here has absolutely nothing better to do with their time than to "turn you in"? <img src="i/expressions/face-icon-small-disgusted.gif" border="0"> It would seem that the information you're...
  10. C

    Reality TV

    Yeah, I noticed the same thing. Every once in a great while there's a smaller chested chick on there but it's pretty infrequent. And by Fear Factor standards a C cup is small. I thought I was the only one who noticed that and just assumed I was being too critical.
  11. C

    Saving for Colleage Disabled (SSI)

    Not sure if you have any other kids or not but our attorney advised us to save for both under our non-CFers namel.
  12. C

    Just paranoid?

    Just wanted to update you all... Neil had his sweat test today, only a 26. So, it does look like we were being a bit paranoid but we're still having the blood test done. If nothing else, we'll find out if he's a carrier and of what gene.
  13. C

    list?

    Here's a link to the article in the New Yorker but it's not a list... <a target=new class=ftalternatingbarlinklarge href="http://www.newyorker.com/fact/content?041206fa_fact">CF Centers</a>
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    Newborn screening

    I wish it was national that way I wouldn't have to keep arguing with family members about how important it is to have their babies screened. My husband and I have struggled in getting our siblings to have their kids tested at birth and it's not just our siblings; it's their OB's feeling it's...
  15. C

    Has anyone ever been sent home for coughing???

    Ask your boss if he'd send someone home with a smokers cough? I've had pneumonia and bronchitis a couple of times and have had a persistent cough for quite a while as a result, would he have sent me home? What about people that don't shower on a regular basis; that freaks me out. Would he...
  16. C

    I DID IT!

    Julie,I too learned at 10 and like you no one told me to let go in the event that I went under. So, the first try I didn't make it all the way up and ended up skiing under water. It took a while before it dawned on me to let go<img src="i/expressions/face-icon-small-confused.gif" border="0">...
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    CF Mutations

    I posted something a couple of weeks ago about a gene database I'd found. If you do a search of my posts you should find it.
  18. C

    Alternative healing practices

    A friend of ours uses therapeutic massage (pressure points, etc.) with her CF daughter. She says it helps quite a bit with her sinus trouble and abdominal discomfort/pain.
  19. C

    When will they learn?

    Unfortunately, there are people that will never learn. I'm a bit surprised to hear a comment like that from someone that's been so close to you and your CFer. When I hear people spew garbage like that (and I've heard my share) I've come to believe that they're saying it to make themselves feel...
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    Reality TV

    I'm a traditionalist; we watch Survivor, Big Brother, and the Amazing Race, although, I'm growing tired of Big Brother. Amazing Race is definitely my fave.
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