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Lost in the mail? Man, that sucks! Hopefully they're guessing correctly with the two antibiotics your on now. Just curious; what CF center are you at? Saw the Dr. John Becker quote in your sig. My husband and I love that guy. Wish the show was still on. Thinking good thoughts for you...

When Sean was first diagnosed, we didn't mess around and called our CF Dr. whenever he got a cold. However, since then, I've learned some of his "signals" for colds that are getting more serious. Usually we don't worry too much about a dry cough or runny nose. Just because your CFer has a...

My husband is an avid USAtoday.com surfer and he noticed the ad some time last week. Glad to see it <img src="i/expressions/face-icon-small-smile.gif" border="0">

It's not required when we go to clinic but it is required when Sean is in the hospital.

Sean struggles with humidity/dampness. Spring and Fall are especially hard on him and if we have a humid summer it's tough on him too. We live in Michigan so summers vary but we can always count on dampness in the Spring and Fall. This summer has been particularly humid and as such, Sean's...

These are some fabulous accomplishments! I read these to Sean today, his 9th B-day <img src="i/expressions/face-icon-small-happy.gif" border="0"> , and he thought they were way cool. Thanks everyone for helping me teach Sean there's more to CF than being short! BTW... Here are a couple of...

OMG! What a CUTIE!!!

Yep, it's hard to get Dr's to think CF unless they've seen it before and even then I'm not so sure. My husband actually told our Ped that he suspected Sean had CF because he was salty. At the time we didn't know about the digestive issues but were aware of the lung issues and Sean certainly...

Hilarious! Thanks, I needed that <img src="i/expressions/face-icon-small-happy.gif" border="0">

My mother-in-law is one of those and it really frosts my husband and I. No matter what is going on in our lives (or anyone elses for that matter), she has to "one-up" it. She does this with just about everything but particularly about health related issues. According to her, she's had just...

Miesl said, <blockquote>Quote<br><hr>we're here to support other people who are affected by this disease - because it sucks for each and every one of us. <hr></blockquote> I don't think anyone can argue with that. Now let's move on.

Thanks Purple. My husband and I also got an early start (19ish) and much like you owned our own home by the time we were 23 so I know exactly what kind of an accomplishment that is. It's refreshing to see someone as responsible as you and your husband. Good luck to you and thanks for the...

No one is underestimating the impact that a serious illness (CF or otherwise) has on the loved ones of the person actually dealing with the disease. Luke is not saying that CF doesn't affect loved ones, he's simply saying that it isn't the same and for you to presume that it is or even that...

Ok, there's been a lot of negativity around here recently so I'm hoping this will help change directions... To the CF Adults, What are some of your biggest accomplishments/things you are most proud of? The reason I ask is that I would like to pass these stories on to my CFer. He's going into...

I don't necessarily think there's anything wrong with doing all the "disinfecting" but I've always felt that you can't keep your kids in a bubble. Sooner or later they're going to "get dirty". If memory serves, they're (the they in this case would be the scientific/medical community) are now...

Vote for Luke <img src="i/expressions/face-icon-small-cool.gif" border="0">

I agree, I think the original post could have been worded a bit better but that's the hazzard of the written word; sometimes your intent is misread or misunderstood. If Seana is looking for some support then this is the place but you need to ask for support not accuse the CFers of not...

Your social worker should also have some great booklets not only for your childs teacher but the school's staff (i.e. principal, nurse, etc.). Once we know who our teacher is going to be, I make an appointment with her/him before the school year starts to give them the info and discuss special...

I think 10 years is very optimistic. Our Dr. is telling us that a cure probably won't be in Sean's lifetime. I tend to agree. Not trying to be pessamistic but CF gene therapy is something we just don't know how to do yet. If we were able to perform gene therapy on animals right now, then I'd...

Great news! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Keep your chin up Lindsay, things will get better; Erin will be home and before you know it you'll have settled into a routine and CF won't seem so overwhelming. It takes time but you'll get there.