Search results

Hi Stefani- Before our daughter was diagnosed I remember several episodes of sinus infections where she was throwing up tons of snot. I couldn't believe how much there was! Yuk..... As for the picky eating, it comes and goes. We try not to make a big deal out of it most of the time. I...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> Why is everything about CF do gosh darn difficult???????</end quote></div> I don't know; all I know is that I'm trying as hard as I can and it is still not enough. Our daughter has gotten much better about...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> Why is everything about CF do gosh darn difficult???????</end quote></div> I don't know; all I know is that I'm trying as hard as I can and it is still not enough. Our daughter has gotten much better about...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> Why is everything about CF do gosh darn difficult???????</end quote></div> I don't know; all I know is that I'm trying as hard as I can and it is still not enough. Our daughter has gotten much better about...

Our doc said he "wants to discuss Hypertonic Saline" at our next appointment, which is coming up next week! I have read everything I can get my hands on. I saw the recent post in the adult section and it reminded me that I needed to ask you guys if any of your kiddos are on it. I'm all for it...

Our doc said he "wants to discuss Hypertonic Saline" at our next appointment, which is coming up next week! I have read everything I can get my hands on. I saw the recent post in the adult section and it reminded me that I needed to ask you guys if any of your kiddos are on it. I'm all for it...

Our doc said he "wants to discuss Hypertonic Saline" at our next appointment, which is coming up next week! I have read everything I can get my hands on. I saw the recent post in the adult section and it reminded me that I needed to ask you guys if any of your kiddos are on it. I'm all for it...

This will be our first trial - in fact coming up this weekend we will go to a niece's birthday party. And it just keeps going from here on out. We've got one married-into person who has had a chronic cough for the last two years; and one who is in ESRD. I kind of worry about contamination...

This will be our first trial - in fact coming up this weekend we will go to a niece's birthday party. And it just keeps going from here on out. We've got one married-into person who has had a chronic cough for the last two years; and one who is in ESRD. I kind of worry about contamination...

This will be our first trial - in fact coming up this weekend we will go to a niece's birthday party. And it just keeps going from here on out. We've got one married-into person who has had a chronic cough for the last two years; and one who is in ESRD. I kind of worry about contamination...

Is there any way to do the sweat test earlier? I personally hate to see them wait so long when your child could start receiving the proper treatment sooner. CF expresses itself in so many different ways; it would not be completely unheard of for your child to not have digestive symptoms. I...

Is there any way to do the sweat test earlier? I personally hate to see them wait so long when your child could start receiving the proper treatment sooner. CF expresses itself in so many different ways; it would not be completely unheard of for your child to not have digestive symptoms. I...

Is there any way to do the sweat test earlier? I personally hate to see them wait so long when your child could start receiving the proper treatment sooner. CF expresses itself in so many different ways; it would not be completely unheard of for your child to not have digestive symptoms. I...

Good grief Cooki you must be terrified. I am so sorry you are going through a possible CF diagnosis in this way. The genetic testing definitely needs to be done. But - I see no reason why they can't start her right away on pancreatic enzymes at least, even if just for a trial period, to see...

Good grief Cooki you must be terrified. I am so sorry you are going through a possible CF diagnosis in this way. The genetic testing definitely needs to be done. But - I see no reason why they can't start her right away on pancreatic enzymes at least, even if just for a trial period, to see...

Good grief Cooki you must be terrified. I am so sorry you are going through a possible CF diagnosis in this way. The genetic testing definitely needs to be done. But - I see no reason why they can't start her right away on pancreatic enzymes at least, even if just for a trial period, to see...

Stay strong, Melissa. I'm thinking of you and sending POSITIVE thoughts your way. I hope they are treating you well and that you get better soon - I know you will be back with your family in no time. Dana Mom to Katy (3, cf) and Kyra (6, no cf)

Stay strong, Melissa. I'm thinking of you and sending POSITIVE thoughts your way. I hope they are treating you well and that you get better soon - I know you will be back with your family in no time. Dana Mom to Katy (3, cf) and Kyra (6, no cf)

Stay strong, Melissa. I'm thinking of you and sending POSITIVE thoughts your way. I hope they are treating you well and that you get better soon - I know you will be back with your family in no time. Dana Mom to Katy (3, cf) and Kyra (6, no cf)

I'm very sorry that you have these concerns; I know that this is an incredibly difficult time for you. How do you begin dealing with this - Breathe; read about CF, but know when to stop. Maybe focus for now just on reading about treatments for whatever symptoms are showing up. How do you...