Cystic Fibrosis Forum (EXP)

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  1. D

    Has anyone had a BAD experience with pulmozyme?

    Hi Caitlin The thread on Mucolyxir might be of interest to you...check out this link: <a target=_blank class=ftalternatingbarlinklarge href="http://members5.boardhost.com/CFGSHStories/msg/1177337029.html">http://members5.boardhost.com/...es/msg/1177337029.html</a>
  2. D

    Hearing loss, aminoglycoside, antioxidant what you should know.

    Thanks for this...again, could you put this on a blog please???? It would be great to be able to access it readily.
  3. D

    Hearing loss, aminoglycoside, antioxidant what you should know.

    Thanks for this...again, could you put this on a blog please???? It would be great to be able to access it readily.
  4. D

    Hearing loss, aminoglycoside, antioxidant what you should know.

    Thanks for this...again, could you put this on a blog please???? It would be great to be able to access it readily.
  5. D

    Gene therapy

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lflatford</b></i> I for one can understand the excitement of the possibility, but also I can understand the wait and see aspect as well. I tell everyone that I run across that when my little girl is 10 or maybe 15 that CF will be a...
  6. D

    Gene therapy

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lflatford</b></i> I for one can understand the excitement of the possibility, but also I can understand the wait and see aspect as well. I tell everyone that I run across that when my little girl is 10 or maybe 15 that CF will be a...
  7. D

    Gene therapy

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lflatford</b></i> I for one can understand the excitement of the possibility, but also I can understand the wait and see aspect as well. I tell everyone that I run across that when my little girl is 10 or maybe 15 that CF will be a...
  8. D

    Gene therapy

    I think there's a few different things being spoken about here: The cf gene was isolated in 1989, ages ago...they thought there would be a cure etc, as Emily said... As Amy mentioned, the drug in the pipe line only works for a small percentage of the cf population, mainly of Jewish descent...
  9. D

    Gene therapy

    I think there's a few different things being spoken about here: The cf gene was isolated in 1989, ages ago...they thought there would be a cure etc, as Emily said... As Amy mentioned, the drug in the pipe line only works for a small percentage of the cf population, mainly of Jewish descent...
  10. D

    Gene therapy

    I think there's a few different things being spoken about here: The cf gene was isolated in 1989, ages ago...they thought there would be a cure etc, as Emily said... As Amy mentioned, the drug in the pipe line only works for a small percentage of the cf population, mainly of Jewish descent...
  11. D

    who posted about taking high dose vit c

    Hey Drama (feel so ridiculous calling you that!!!) Do you have a blog at all? I just thought it would be great if you could post this info somewhere more accessible...
  12. D

    who posted about taking high dose vit c

    Hey Drama (feel so ridiculous calling you that!!!) Do you have a blog at all? I just thought it would be great if you could post this info somewhere more accessible...
  13. D

    who posted about taking high dose vit c

    Hey Drama (feel so ridiculous calling you that!!!) Do you have a blog at all? I just thought it would be great if you could post this info somewhere more accessible...
  14. D

    Lindsey update

    great and wonderful news, thanks very much.
  15. D

    Lindsey update

    great and wonderful news, thanks very much.
  16. D

    Lindsey update

    great and wonderful news, thanks very much.
  17. D

    mucolyxir

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>moxie1</b></i> My mucolyxir arrived yesterday. I used it every hour until bedtime. I was a bit phlegmy but I had been anyway due to my allergies acting up. I did notice that when I went to bed, I coughed for a little while...
  18. D

    mucolyxir

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>moxie1</b></i> My mucolyxir arrived yesterday. I used it every hour until bedtime. I was a bit phlegmy but I had been anyway due to my allergies acting up. I did notice that when I went to bed, I coughed for a little while...
  19. D

    mucolyxir

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>moxie1</b></i> My mucolyxir arrived yesterday. I used it every hour until bedtime. I was a bit phlegmy but I had been anyway due to my allergies acting up. I did notice that when I went to bed, I coughed for a little while...
  20. D

    Lindsey update

    Talked to Lindsey's mom . . . Thinking of you Lindsey and Cindy...our thoughts and prayers are with you both.
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