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Hi Kat
you can buy the vest part for about $500 new here in Australia. Its only just become available. I think it would be better to buy the vest part new, but maybe (I was thinking about this too...) could buy the machine/pump second hand?
The whole system costs about $15000 Aus. dollars all...
Hi Kat
you can buy the vest part for about $500 new here in Australia. Its only just become available. I think it would be better to buy the vest part new, but maybe (I was thinking about this too...) could buy the machine/pump second hand?
The whole system costs about $15000 Aus. dollars all...
Hi Kat
you can buy the vest part for about $500 new here in Australia. Its only just become available. I think it would be better to buy the vest part new, but maybe (I was thinking about this too...) could buy the machine/pump second hand?
The whole system costs about $15000 Aus. dollars all...
This seems pretty interesting..my kids all have G551D...does anyone know anything more about it? I've just done a google search but have only come up with the trial info.
A journal article would be good. Okay, I found this on the cff.org site...
VX-770 (Vertex Pharmaceuticals, Inc.) - This...
This seems pretty interesting..my kids all have G551D...does anyone know anything more about it? I've just done a google search but have only come up with the trial info.
A journal article would be good. Okay, I found this on the cff.org site...
VX-770 (Vertex Pharmaceuticals, Inc.) - This...
This seems pretty interesting..my kids all have G551D...does anyone know anything more about it? I've just done a google search but have only come up with the trial info.
A journal article would be good. Okay, I found this on the cff.org site...
VX-770 (Vertex Pharmaceuticals, Inc.) - This...
I think you should give it a go too Peter. It's not very expensive, and the protocol is one drop every 15 mins for first hour, and one drop every hour for the first day. After that it is one drop four times daily I think.
We have some, and I have my older son trying it...he's been on it only...
I think you should give it a go too Peter. It's not very expensive, and the protocol is one drop every 15 mins for first hour, and one drop every hour for the first day. After that it is one drop four times daily I think.
We have some, and I have my older son trying it...he's been on it only...
I think you should give it a go too Peter. It's not very expensive, and the protocol is one drop every 15 mins for first hour, and one drop every hour for the first day. After that it is one drop four times daily I think.
We have some, and I have my older son trying it...he's been on it only...
Hi Caitlin
The thread on Mucolyxir might be of interest to you...check out this link:
<a target=_blank class=ftalternatingbarlinklarge href="http://members5.boardhost.com/CFGSHStories/msg/1177337029.html">http://members5.boardhost.com/...es/msg/1177337029.html</a>
Hi Caitlin
The thread on Mucolyxir might be of interest to you...check out this link:
<a target=_blank class=ftalternatingbarlinklarge href="http://members5.boardhost.com/CFGSHStories/msg/1177337029.html">http://members5.boardhost.com/...es/msg/1177337029.html</a>
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