Cystic Fibrosis Forum (EXP)

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  1. G

    pancreatic insufficiency

    I have been having major stomache issue and was wondering the same thing. I always took enzymes but never had stomache problems, ate whatever I wanted and I did get occasional stomache aches but nothing consistent or interrupted my life. Now it is a whole other story and ironically I was also...
  2. G

    pancreatic insufficiency

    I have been having major stomache issue and was wondering the same thing. I always took enzymes but never had stomache problems, ate whatever I wanted and I did get occasional stomache aches but nothing consistent or interrupted my life. Now it is a whole other story and ironically I was also...
  3. G

    pancreatic insufficiency

    I have been having major stomache issue and was wondering the same thing. I always took enzymes but never had stomache problems, ate whatever I wanted and I did get occasional stomache aches but nothing consistent or interrupted my life. Now it is a whole other story and ironically I was also...
  4. G

    Do you go into the hospital 3-4 times a year even if your feeling well?

    I use the ( I think this is what you are talking about) Eclipse balls. They are balls filled with your medications and you hook the tubing from the ball to the tubing in your picc line and then release this plastic thing that is pinching the tube and the medicine goes into your picc line via...
  5. G

    Do you go into the hospital 3-4 times a year even if your feeling well?

    I use the ( I think this is what you are talking about) Eclipse balls. They are balls filled with your medications and you hook the tubing from the ball to the tubing in your picc line and then release this plastic thing that is pinching the tube and the medicine goes into your picc line via...
  6. G

    Do you go into the hospital 3-4 times a year even if your feeling well?

    I use the ( I think this is what you are talking about) Eclipse balls. They are balls filled with your medications and you hook the tubing from the ball to the tubing in your picc line and then release this plastic thing that is pinching the tube and the medicine goes into your picc line via...
  7. G

    Proper order in which to do inhaled meds?

    I typically do the treatments and meds in the following order: Flutter ( get all mucus out that I can) Albuterol Vest Pulmozyme Tobi Then cough out if I can anymore stuff Hope that helps. Jennifer 34 years old with CF and CFRD
  8. G

    Proper order in which to do inhaled meds?

    I typically do the treatments and meds in the following order: Flutter ( get all mucus out that I can) Albuterol Vest Pulmozyme Tobi Then cough out if I can anymore stuff Hope that helps. Jennifer 34 years old with CF and CFRD
  9. G

    Proper order in which to do inhaled meds?

    I typically do the treatments and meds in the following order: Flutter ( get all mucus out that I can) Albuterol Vest Pulmozyme Tobi Then cough out if I can anymore stuff Hope that helps. Jennifer 34 years old with CF and CFRD
  10. G

    total healing from CF

    I always say this: I rather live my life as though there is a GOD and come to find out that there is NOT, then to live my life as though there is NO GOD and come to find out there is. All you need is a mustard seed of faith and GOD will show you HIS undeserving LOVE. It is all about FAITH...
  11. G

    total healing from CF

    I always say this: I rather live my life as though there is a GOD and come to find out that there is NOT, then to live my life as though there is NO GOD and come to find out there is. All you need is a mustard seed of faith and GOD will show you HIS undeserving LOVE. It is all about FAITH...
  12. G

    total healing from CF

    I always say this: I rather live my life as though there is a GOD and come to find out that there is NOT, then to live my life as though there is NO GOD and come to find out there is. All you need is a mustard seed of faith and GOD will show you HIS undeserving LOVE. It is all about FAITH...
  13. G

    ssi denial

    If you want to win your disability case you need to call Beth Sufian. She has CF, she is a lawyer who specializes in CF disability cases and has NEVER lost a case. She is out of Texas and takes cases all over the country. WIth no doubt you have to call her if you want to win otherwise, I feel...
  14. G

    ssi denial

    If you want to win your disability case you need to call Beth Sufian. She has CF, she is a lawyer who specializes in CF disability cases and has NEVER lost a case. She is out of Texas and takes cases all over the country. WIth no doubt you have to call her if you want to win otherwise, I feel...
  15. G

    ssi denial

    If you want to win your disability case you need to call Beth Sufian. She has CF, she is a lawyer who specializes in CF disability cases and has NEVER lost a case. She is out of Texas and takes cases all over the country. WIth no doubt you have to call her if you want to win otherwise, I feel...
  16. G

    Do you go into the hospital 3-4 times a year even if your feeling well?

    I am a firm believer in regularly scheduled tune ups. I NEVER use to go into the hospital til I was sick as a dog and then it was so HARD to get back to my baseline because I was starting from such a LOW point due to being so ill. Now I go in no matter what every fall to gear up for winter. And...
  17. G

    Do you go into the hospital 3-4 times a year even if your feeling well?

    I am a firm believer in regularly scheduled tune ups. I NEVER use to go into the hospital til I was sick as a dog and then it was so HARD to get back to my baseline because I was starting from such a LOW point due to being so ill. Now I go in no matter what every fall to gear up for winter. And...
  18. G

    Do you go into the hospital 3-4 times a year even if your feeling well?

    I am a firm believer in regularly scheduled tune ups. I NEVER use to go into the hospital til I was sick as a dog and then it was so HARD to get back to my baseline because I was starting from such a LOW point due to being so ill. Now I go in no matter what every fall to gear up for winter. And...
  19. G

    Help New Disability question

    Google Beth Sufian and find out her contact information. SHe is a lawyer out of Texas that specializes in CF Disability cases and she has CF. She has a hotline that you can ask all kinds of disability questions and medicare questions. You can also find her at the CF ROundtable online. Hope that...
  20. G

    Disability

    Beth Sufian is a attorney for CF disability cases and has Cf herself. She runs a hotline where you can ask questions. I do not have the number off hand but you can google her and get to her website and call. You can also go to the CF Roundtable and her information is there too and you can call...
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