Cystic Fibrosis Forum (EXP)

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  1. D

    Tobramycin for Inhalation

    Hi Kat I think at 38 you are wise enough and have had plenty of experience with treatments etc. to know what you are doing!! We always use ventolin (Salbutomal) (1ml with either 80mg= 1 vial/ampoule, or 160mg=2 vials/ampoules) with our nebbed Tobra, and that may be due to the reason stated by...
  2. D

    Tobramycin for Inhalation

    Hi Kat I think at 38 you are wise enough and have had plenty of experience with treatments etc. to know what you are doing!! We always use ventolin (Salbutomal) (1ml with either 80mg= 1 vial/ampoule, or 160mg=2 vials/ampoules) with our nebbed Tobra, and that may be due to the reason stated by...
  3. D

    Tobramycin for Inhalation

    The Tobramycin Emma and I use are the same thing...I don't know if there are different formulations in other countries, but we are both from Australia, where Tob. is always used via nebuliser, my son is 10, he has no problems with it. It is prescribed at the clinic, when he has had IVs it is...
  4. D

    Tobramycin for Inhalation

    The Tobramycin Emma and I use are the same thing...I don't know if there are different formulations in other countries, but we are both from Australia, where Tob. is always used via nebuliser, my son is 10, he has no problems with it. It is prescribed at the clinic, when he has had IVs it is...
  5. D

    Tobramycin for Inhalation

    The Tobramycin Emma and I use are the same thing...I don't know if there are different formulations in other countries, but we are both from Australia, where Tob. is always used via nebuliser, my son is 10, he has no problems with it. It is prescribed at the clinic, when he has had IVs it is...
  6. D

    Tobramycin for Inhalation

    My son has exactly the same Tobra for IV and nebuliser. The same as someone above...160mg twice daily with 1ml of ventolin. My kids have had inhaled Tobra for years (via nebs). We just squirt the entire contends of each ampule into the neb...it is a particular neb but my (older) son uses the...
  7. D

    Tobramycin for Inhalation

    My son has exactly the same Tobra for IV and nebuliser. The same as someone above...160mg twice daily with 1ml of ventolin. My kids have had inhaled Tobra for years (via nebs). We just squirt the entire contends of each ampule into the neb...it is a particular neb but my (older) son uses the...
  8. D

    Tobramycin for Inhalation

    My son has exactly the same Tobra for IV and nebuliser. The same as someone above...160mg twice daily with 1ml of ventolin. My kids have had inhaled Tobra for years (via nebs). We just squirt the entire contends of each ampule into the neb...it is a particular neb but my (older) son uses the...
  9. D

    Coughing videos

    Is there really such a thing as the definitive 'cf cough'? I know my kids are all completely different sounding in their coughs...eg. my son (27, pa) has a tight fairly mucusless type of cough..it varies on whether there's an active infection. My daughter (25, mostly staph) has a moist loose...
  10. D

    Coughing videos

    Is there really such a thing as the definitive 'cf cough'? I know my kids are all completely different sounding in their coughs...eg. my son (27, pa) has a tight fairly mucusless type of cough..it varies on whether there's an active infection. My daughter (25, mostly staph) has a moist loose...
  11. D

    Coughing videos

    Is there really such a thing as the definitive 'cf cough'? I know my kids are all completely different sounding in their coughs...eg. my son (27, pa) has a tight fairly mucusless type of cough..it varies on whether there's an active infection. My daughter (25, mostly staph) has a moist loose...
  12. D

    Glutathione

    Okay, I checked out the Theranaturals site, and I think the one you have IS okay. There's another one there with 'sodium bi carbonate' on the front under 'buffered', which is the one I was referring to earlier (and is the one I have for nebulising plus the cur-caps for oral)...it says its for...
  13. D

    Glutathione

    Okay, I checked out the Theranaturals site, and I think the one you have IS okay. There's another one there with 'sodium bi carbonate' on the front under 'buffered', which is the one I was referring to earlier (and is the one I have for nebulising plus the cur-caps for oral)...it says its for...
  14. D

    Glutathione

    Okay, I checked out the Theranaturals site, and I think the one you have IS okay. There's another one there with 'sodium bi carbonate' on the front under 'buffered', which is the one I was referring to earlier (and is the one I have for nebulising plus the cur-caps for oral)...it says its for...
  15. D

    Glutathione

    Im not sure this is the correct one. The reduced one is for NEBULISING only, and not to be taken orally. Mine actually says on the back that they are not to be taken orally. The GSH you want from Theranaturals are called Cur-caps. They have curcummin, GSH and selenium in them. Recommended dose...
  16. D

    Glutathione

    Im not sure this is the correct one. The reduced one is for NEBULISING only, and not to be taken orally. Mine actually says on the back that they are not to be taken orally. The GSH you want from Theranaturals are called Cur-caps. They have curcummin, GSH and selenium in them. Recommended dose...
  17. D

    Glutathione

    Im not sure this is the correct one. The reduced one is for NEBULISING only, and not to be taken orally. Mine actually says on the back that they are not to be taken orally. The GSH you want from Theranaturals are called Cur-caps. They have curcummin, GSH and selenium in them. Recommended dose...
  18. D

    messages for bengismum

    Hi bengismum Hope you read this post. There are messages of encouragement and support on the families forum (under title baby needs our prayers I think) in case you havent read them. Hope things have improved for bengi...you are in our thoughts and prayers.
  19. D

    messages for bengismum

    Hi bengismum Hope you read this post. There are messages of encouragement and support on the families forum (under title baby needs our prayers I think) in case you havent read them. Hope things have improved for bengi...you are in our thoughts and prayers.
  20. D

    messages for bengismum

    Hi bengismum Hope you read this post. There are messages of encouragement and support on the families forum (under title baby needs our prayers I think) in case you havent read them. Hope things have improved for bengi...you are in our thoughts and prayers.
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