Cystic Fibrosis Forum (EXP)

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  1. D

    What meds do you use for inflammation(inhaled or oral).

    Azithromycin is the best treatment we have had for inflammation...apart from the usual asthma related meds.
  2. D

    Question

    I think that people have their ups and downs...every day is different. Who can blame someone who is always sick from desiring a way to escape that? I certainly wouldnt judge them. Depression often manifests with actions such as not wanting to get out of bed in the morning, continuous feelings of...
  3. D

    Question

    I think that people have their ups and downs...every day is different. Who can blame someone who is always sick from desiring a way to escape that? I certainly wouldnt judge them. Depression often manifests with actions such as not wanting to get out of bed in the morning, continuous feelings of...
  4. D

    Question

    I think that people have their ups and downs...every day is different. Who can blame someone who is always sick from desiring a way to escape that? I certainly wouldnt judge them. Depression often manifests with actions such as not wanting to get out of bed in the morning, continuous feelings of...
  5. D

    azithromycin

    So does Levaquin act as an anti inflammatory in the same way Azithromycin does? Azithromycin is not used as an antibiotic for cf, but as an anti inflammatory agent. Side effects for Azithromycin can include stomach upsets. As others have said, see if 250mg every day works better for you, as...
  6. D

    azithromycin

    So does Levaquin act as an anti inflammatory in the same way Azithromycin does? Azithromycin is not used as an antibiotic for cf, but as an anti inflammatory agent. Side effects for Azithromycin can include stomach upsets. As others have said, see if 250mg every day works better for you, as...
  7. D

    azithromycin

    So does Levaquin act as an anti inflammatory in the same way Azithromycin does? Azithromycin is not used as an antibiotic for cf, but as an anti inflammatory agent. Side effects for Azithromycin can include stomach upsets. As others have said, see if 250mg every day works better for you, as...
  8. D

    GSH THERAPY

    I dont think oral GSH should effect you to the extent that you felt dizzy etc. Kat. The problem for cepacia people is with the nebulised GSH/ spasm thingo. People should start out at a low dose and work their way up to the recommended dose over 3-4 weeks. Maybe you took to much to start up...
  9. D

    GSH THERAPY

    I dont think oral GSH should effect you to the extent that you felt dizzy etc. Kat. The problem for cepacia people is with the nebulised GSH/ spasm thingo. People should start out at a low dose and work their way up to the recommended dose over 3-4 weeks. Maybe you took to much to start up...
  10. D

    GSH THERAPY

    I dont think oral GSH should effect you to the extent that you felt dizzy etc. Kat. The problem for cepacia people is with the nebulised GSH/ spasm thingo. People should start out at a low dose and work their way up to the recommended dose over 3-4 weeks. Maybe you took to much to start up...
  11. D

    trick to sterilizing nebs?

    I have been sterilizing spacers, pep-mask bits and un-boilable nebs in Milton...do you have it? Sterilising liquid that is used for babies bottles, any brand would be okay. I only sterilise them once or twice a week, and dont know if it's really necessary, but it is for the neb. I have one from...
  12. D

    trick to sterilizing nebs?

    I have been sterilizing spacers, pep-mask bits and un-boilable nebs in Milton...do you have it? Sterilising liquid that is used for babies bottles, any brand would be okay. I only sterilise them once or twice a week, and dont know if it's really necessary, but it is for the neb. I have one from...
  13. D

    trick to sterilizing nebs?

    I have been sterilizing spacers, pep-mask bits and un-boilable nebs in Milton...do you have it? Sterilising liquid that is used for babies bottles, any brand would be okay. I only sterilise them once or twice a week, and dont know if it's really necessary, but it is for the neb. I have one from...
  14. D

    Why does he keep getting sick?

    Hi Just thought I would ask if Reece has been put on Azithromycin yet? My son spent the last 18 months with constant recurring infections (pa flare ups)...as soon as we finished a course he became sick again. The feeling is so helpless and depressing...you do all you can and nothing works...
  15. D

    Why does he keep getting sick?

    Hi Just thought I would ask if Reece has been put on Azithromycin yet? My son spent the last 18 months with constant recurring infections (pa flare ups)...as soon as we finished a course he became sick again. The feeling is so helpless and depressing...you do all you can and nothing works...
  16. D

    Why does he keep getting sick?

    Hi Just thought I would ask if Reece has been put on Azithromycin yet? My son spent the last 18 months with constant recurring infections (pa flare ups)...as soon as we finished a course he became sick again. The feeling is so helpless and depressing...you do all you can and nothing works...
  17. D

    How does one manage....

    As a mum to two younger children, one with cf (I also have two grown up with cf), I understand where you are coming from, and I'm sure everyone else does too, even those without children!! IT IS SOOO HARD!! Last year I was doing a degree full time plus the house etc. and my cfer was not doing so...
  18. D

    How does one manage....

    As a mum to two younger children, one with cf (I also have two grown up with cf), I understand where you are coming from, and I'm sure everyone else does too, even those without children!! IT IS SOOO HARD!! Last year I was doing a degree full time plus the house etc. and my cfer was not doing so...
  19. D

    How does one manage....

    As a mum to two younger children, one with cf (I also have two grown up with cf), I understand where you are coming from, and I'm sure everyone else does too, even those without children!! IT IS SOOO HARD!! Last year I was doing a degree full time plus the house etc. and my cfer was not doing so...
  20. D

    Tobramycin for Inhalation

    Hi Kat I think at 38 you are wise enough and have had plenty of experience with treatments etc. to know what you are doing!! We always use ventolin (Salbutomal) (1ml with either 80mg= 1 vial/ampoule, or 160mg=2 vials/ampoules) with our nebbed Tobra, and that may be due to the reason stated by...
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