Cystic Fibrosis Forum (EXP)

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  1. D

    Inhaled Aztreonam Lysinate

    Hi evewryone Hey Caitlen, I was wondering how you're going (I just read you blog...), you're finished the trial now arent you? Are you still on the Aztreonam as follow up?
  2. D

    Inhaled Aztreonam Lysinate

    Hi evewryone Hey Caitlen, I was wondering how you're going (I just read you blog...), you're finished the trial now arent you? Are you still on the Aztreonam as follow up?
  3. D

    Technion scientists develop material to treat genetic diseases

    Isnt this the PC124 (whatever it is) gene thingo? I seem to remember that they had done experiemnts using gentamycin.
  4. D

    Technion scientists develop material to treat genetic diseases

    Isnt this the PC124 (whatever it is) gene thingo? I seem to remember that they had done experiemnts using gentamycin.
  5. D

    Technion scientists develop material to treat genetic diseases

    Isnt this the PC124 (whatever it is) gene thingo? I seem to remember that they had done experiemnts using gentamycin.
  6. D

    Newborn screening

    It's ridiculous that you dont have new born screening, we have had it here since before 1981, every child born in Australia is tested for CF and other genetic diseases (on the down side of that, it turns out that all of the blood tests have been kept on file, so they have a blood sample of every...
  7. D

    Newborn screening

    It's ridiculous that you dont have new born screening, we have had it here since before 1981, every child born in Australia is tested for CF and other genetic diseases (on the down side of that, it turns out that all of the blood tests have been kept on file, so they have a blood sample of every...
  8. D

    Newborn screening

    It's ridiculous that you dont have new born screening, we have had it here since before 1981, every child born in Australia is tested for CF and other genetic diseases (on the down side of that, it turns out that all of the blood tests have been kept on file, so they have a blood sample of every...
  9. D

    A CF comment towards me....

    This is an eight year old child. You are 29, I'm sure you're old enough and mature enough to laugh off any comments an eight year old might be saying. I think you're taking it all too seriously. I have an eight year old...sure, he's not walking around reminding people they might die etc., but...
  10. D

    A CF comment towards me....

    This is an eight year old child. You are 29, I'm sure you're old enough and mature enough to laugh off any comments an eight year old might be saying. I think you're taking it all too seriously. I have an eight year old...sure, he's not walking around reminding people they might die etc., but...
  11. D

    A CF comment towards me....

    This is an eight year old child. You are 29, I'm sure you're old enough and mature enough to laugh off any comments an eight year old might be saying. I think you're taking it all too seriously. I have an eight year old...sure, he's not walking around reminding people they might die etc., but...
  12. D

    gsh and valerie hudson

    My son is on GSH and has had a huge improvement in his health. he started Azithro at the same time (Nov 2006), so I cant say for sure it is the GSH, but I think both the Azithro and GSH have made a big difference. He has put on seven kilos since he began, and is really well and energetic. Not...
  13. D

    gsh and valerie hudson

    My son is on GSH and has had a huge improvement in his health. he started Azithro at the same time (Nov 2006), so I cant say for sure it is the GSH, but I think both the Azithro and GSH have made a big difference. He has put on seven kilos since he began, and is really well and energetic. Not...
  14. D

    gsh and valerie hudson

    My son is on GSH and has had a huge improvement in his health. he started Azithro at the same time (Nov 2006), so I cant say for sure it is the GSH, but I think both the Azithro and GSH have made a big difference. He has put on seven kilos since he began, and is really well and energetic. Not...
  15. D

    CF Liver Disease - Any Therapies in the Pipeline

    It's just the way it is, Amy cant change it. It's the lung disease that leads to death and causes loss of quality of life, if my kids could be cured of their lung disease putting up with the digestive side for the rest of their lives would be no problem. It would be nice to see more emphasis on...
  16. D

    CF Liver Disease - Any Therapies in the Pipeline

    It's just the way it is, Amy cant change it. It's the lung disease that leads to death and causes loss of quality of life, if my kids could be cured of their lung disease putting up with the digestive side for the rest of their lives would be no problem. It would be nice to see more emphasis on...
  17. D

    CF Liver Disease - Any Therapies in the Pipeline

    It's just the way it is, Amy cant change it. It's the lung disease that leads to death and causes loss of quality of life, if my kids could be cured of their lung disease putting up with the digestive side for the rest of their lives would be no problem. It would be nice to see more emphasis on...
  18. D

    To G Tube or not?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>karon72</b></i> Jo, Thanks for the links!</end quote></div> No worries Karon Hope it is helpful to some of you!
  19. D

    To G Tube or not?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>karon72</b></i> Jo, Thanks for the links!</end quote></div> No worries Karon Hope it is helpful to some of you!
  20. D

    To G Tube or not?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>karon72</b></i> Jo, Thanks for the links!</end quote></div> No worries Karon Hope it is helpful to some of you!
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