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Hey julie, Oh I am so happy for you. I cant even say it in words. It really sounds like all 3 are doing great and loving being out in the world! I bet you and Mark cant stop smiling all day. But make sure to take care of yourself too. We dont need you not feeling well. You need to get all the...

I am so sorry for your loss. But please know that all of us here are here to help and talk with you. Please feel free to talk to us, ask questions and be free here. We all have to deal with this in our daily life and as you can see from all the post already, we are a big support group!! You will...

I was thinking that same thing tonight when I saw it on TV. Yea I agree I dont want to play a pity card, but heck they rasied 61 million dollars this year, 61 MILLION!!! Can you imagine how that would help us all and research. I dont want to do it a pity way but wow how money like that would...

Well trust me they didnt believe me either, not sure if they do now or not. My friend started hers the day before me. She told me that night that her lips were numb. I was like well where in the hell is that comming from. The next day they started mine. By that night it felt a little weird but i...

Yep been there done that, your not alone! I had a flare up about 6 months ago. So bad that it actually is about the size of a pencil eraser and its and outside one so it just is there all the time. It started inside and I would see blood everyonce in awhile and feel pain when it would flare up...

Yea that does alot, thank you for sharing it with me. See I just switched to a adult clinic back in may and they put me on IV's right away b/c my numbers were down like 20%. But I got a bad batch of tobra and had an allergic realtion to it (my friend was put on tobra at the same time as me and...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>amy</b></i> I'm going with PO antibiotics not working as well as IV's. Otherwise IV's wouldn't exist and none of us would ever be in the hospital. Quinolones work on PA, but not as well as Tobra IV.</end quote></div> I agree they...

Well I havent taken the generic zoloft just the regular but if there is a generic out there for a drug my insurance makes me have it. I have done fine on all generic the only one i had a problem with was the enzymes, which is prob because they arent FDA so they are not help up to the same...

sorry i hit replyi nstead of quote, that was quote to anonymous

You said that you are on oral meds every 3 months. How does that seem to work for you. That was the question that I posted on page 2 of this forum. Can you do oral instead of iv's every 3 months for the people who cant risk going on iv's every 3 months. How long are you on the oral meds? 2...

Do you think that you would get some of the same effect if you did oral anitbodics every 3 months? I know alot of us are on zithromax every other day as a normal now. But what if you didn't do IV's and you did oral meds. Do you think that would help you out also. For the people that are resitant...

As of my last test about a month ago. My FVC was around 108% and my FEV1 was around 96%. This was the best I have been in over 10 years. I accredit it to the HS that I started on 2 months ago. But my FVC has always been 10-20% higher then my FEV1

Thanks for updating us. I will be thinking about all 5 of you and hopefully you will soon have 3 troublemakers in your arms!!!

Wont the states places ship it to you?

Aww thats great to hear julie!!! Im so glad that they are all doing well and growing and getting ready to make their big debu into the world. Now you make sure and rest up!!! It sounds like everything is going good and pretty soon you will have your 3 little wonders to hold!

Hi, I recently the past 3 months went thru 3 different times of pain in both sides of my lungs. They tested and tested me and nothing turned up. One thing that they did think was causing my pain for a couple of months was plursey. Has your doc ever talked to you about it. My old Doc never told...

2 1/2 years ago they flushed my port when they admited me for a routine tune up and it sent me into respitory arrest. I had to be put on a vent. I was only on for 2 days but I came off of it fine and had no scars from it. After talking to my doc he said that alot of the time the docs will resort...

Thats a great story!!

Has your doc ever put you on zithromax 3 times a week? Seems like a lot of adults are on it now.

WOW thank you all for sharing your personal stories. Yuo have really reassured me. I read that it didnt really hurt you but I guess hearing it from real people that I can talk to ment a whole lot more!!! Really thank you so much! And in the near future I will prob be messaging you all to ask...