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I also have some Tobi that I can send to you, If it can be out of the fridge for 28 days then maybe I can just send it regualr mail to you. Can you also tell me what I should put in the subject line of the customs sheet?

Well here is what they doctors told me, I actually have lived in both. Flordia is better for you. The first 3 days you may feel a little bit different if you are not used to the warm weather all the time but over all its better for your CF. My parents did a ton of reasearch on where wer should...

Can you post it for me, maybe I can figure out a way to get this tobi over there

Well I have been in the same situation before. If she can walk at all, that will be good for her, as you know. Are you talking about the one in FL or CA?

Hey i have tobi that I dont need. If you can use it then please it is all yours. I was on it but I cant take it anymore and I have almost a whole box that is just sitting in my fridge that I have been trying to find someone who could use it. If you would want to pay to have it shipped out to...

WOW 125% thats unreal. See that is what scares me the most is worrign about if I get pregnant then will my FEV1 go down. Right now when I am doing good I am around 88-92%. I thought that was really good but Im starting to think not. I want to be in the best health lung wise that I can be and Im...

Hi, Im 5'10 1/2 (gotta add that 1/2 in <img src="i/expressions/face-icon-small-smile.gif" border="0"> ) and I weigh 137

Im on it too www.myspace.com/asexyblond

I just heard about 2 months ago the Kentucky is doing it also. Which I am soooo for since they had no idea what was wrong with me for 2 months and untill one day they just did the sweat test b/c it was one of the test to do, and the doc even told my mom not to worry about it, it was just a test...

So far here are the two that I have, the cross is in honor of my dad who passed away. The other one is one that I wanted just because. I didnt want the normal tribal graphics so I went with something like tribal but different, like me <img src="i/expressions/face-icon-small-smile.gif"...

Wow really Laura!!! See I have never talked to anyone really who had it and another CF family that we know got it for her daughter and they liked it. I brought it up to my Doc and she said no. Which was where i was confused. But she is one of the leading top CF doctors for adults and runs the...

That would be aweseome, I have talked for years that a CF tatoo will be my next one. I would LOVE to see some Ideas!!!

I myself have only coughed up blood 3 times. The first time was about 3 years ago and it was maybe a tablespoon. I just coughed and tasted something funny. The 2nd time was the night of my cousins bachlorette party. We went out to a bar where it was sort of smoky. When we came home I slept on...

Well I am 24 and to all the CF teenagers and adluts they have us on 500 mg of zithromax 3 days a week. Its like a general one we are all on all the time. It has always worked great for me. I dont know about reversing damage but maybe you can ask about the constant taking of it and see if that...

Can you tell me morea bout the 2 kit thing from the CF pharmacy? I just started on it today and I can get the .09% from my military pharmancy but have to get the 10% from the Cf pharmacy.

Ok so I went in for my appt today and asked my doc about the new EFlow nebulizer that I have been hearing about. She tells me that it isnt really a nubulizer but a delivery system. It cant hold much fluid amounts, and it can only be used on certain types of fluids due to how they break down. She...

I was asked where I wanted my port put. I think you should have a right to ask if they can put it where you would like it and if they say no then ask why. There could be a good medical reason in certain cases why ports shouldnt be placed in certain areas for certain people. But I think you...

Hi, I had mine in my chest for 8 years. If you want to email me at asexyblond23@excite.com I can send you lots of pictures of my port. I would love to help out anyway that I can. I did have mine takes out after 8 years and they took it out and sticthed it up on teh same scar so I only have one...