Cystic Fibrosis Forum (EXP)

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  1. D

    GSH??

    Hi Jody Sorry to get off topic a little, but how often do you neb GSH? Once a day? And do you give him 200mg neb with saline or boiled water? Just for interest sake, do you give him oral and nebbed? I dont give Sam the full protocol either, but have just been giving him oral lately. If the...
  2. D

    GSH??

    Hi Jody Sorry to get off topic a little, but how often do you neb GSH? Once a day? And do you give him 200mg neb with saline or boiled water? Just for interest sake, do you give him oral and nebbed? I dont give Sam the full protocol either, but have just been giving him oral lately. If the...
  3. D

    GSH??

    Hi Jody Sorry to get off topic a little, but how often do you neb GSH? Once a day? And do you give him 200mg neb with saline or boiled water? Just for interest sake, do you give him oral and nebbed? I dont give Sam the full protocol either, but have just been giving him oral lately. If the...
  4. D

    Herbal Suppliments

    I have my son on oral GSH, probiotics, something similar to ADEKS (that you have over there), DHA, and at the moment to boost his immune system a product with shiitake mushroom, astragalus and olive leaf extract (about six weeks now, but will finish it up and have arest from it for a month or so...
  5. D

    Herbal Suppliments

    I have my son on oral GSH, probiotics, something similar to ADEKS (that you have over there), DHA, and at the moment to boost his immune system a product with shiitake mushroom, astragalus and olive leaf extract (about six weeks now, but will finish it up and have arest from it for a month or so...
  6. D

    Herbal Suppliments

    I have my son on oral GSH, probiotics, something similar to ADEKS (that you have over there), DHA, and at the moment to boost his immune system a product with shiitake mushroom, astragalus and olive leaf extract (about six weeks now, but will finish it up and have arest from it for a month or so...
  7. D

    first time on site

    Hi Helen I am from Aus. also, NSW...as mum2kj says, the Aus. forum is not very good, not many people use it (pity!). Anyhow, this forum is very good, you will find out plenty of useful info., and is friendly and supportive.
  8. D

    first time on site

    Hi Helen I am from Aus. also, NSW...as mum2kj says, the Aus. forum is not very good, not many people use it (pity!). Anyhow, this forum is very good, you will find out plenty of useful info., and is friendly and supportive.
  9. D

    first time on site

    Hi Helen I am from Aus. also, NSW...as mum2kj says, the Aus. forum is not very good, not many people use it (pity!). Anyhow, this forum is very good, you will find out plenty of useful info., and is friendly and supportive.
  10. D

    Elevated Liver Enzymes

    Well, thanks for your concern, and I probably might think differently if Sam was a small child, however, he is 10 and weighs over 30kgs. The use of milkthistle is very beneficial for liver support, as I have said, and children with cf are always dosed at double the normal child strength for...
  11. D

    Elevated Liver Enzymes

    Well, thanks for your concern, and I probably might think differently if Sam was a small child, however, he is 10 and weighs over 30kgs. The use of milkthistle is very beneficial for liver support, as I have said, and children with cf are always dosed at double the normal child strength for...
  12. D

    Elevated Liver Enzymes

    Well, thanks for your concern, and I probably might think differently if Sam was a small child, however, he is 10 and weighs over 30kgs. The use of milkthistle is very beneficial for liver support, as I have said, and children with cf are always dosed at double the normal child strength for...
  13. D

    balance damaged by tobramycin?

    You should get checked by your cf team. Tobramycin can cause deafness, which is why levels are taken while you are on it. I also thought that it was not reversible ( which is on the leaflet enclosed with Tob.), and can occur even after the course has finished.
  14. D

    balance damaged by tobramycin?

    You should get checked by your cf team. Tobramycin can cause deafness, which is why levels are taken while you are on it. I also thought that it was not reversible ( which is on the leaflet enclosed with Tob.), and can occur even after the course has finished.
  15. D

    balance damaged by tobramycin?

    You should get checked by your cf team. Tobramycin can cause deafness, which is why levels are taken while you are on it. I also thought that it was not reversible ( which is on the leaflet enclosed with Tob.), and can occur even after the course has finished.
  16. D

    Age to join forums/kids forum

    Thanks everyone for replying to my post. I dont know how it all works (if there is a chat space???), but maybe the teenage one would be okay. A camp would be fantastic, but ofcourse they have been dropped due to infection issues. Thanks Laurie, maybe email would be good...email friends instead...
  17. D

    Age to join forums/kids forum

    Thanks everyone for replying to my post. I dont know how it all works (if there is a chat space???), but maybe the teenage one would be okay. A camp would be fantastic, but ofcourse they have been dropped due to infection issues. Thanks Laurie, maybe email would be good...email friends instead...
  18. D

    Age to join forums/kids forum

    Thanks everyone for replying to my post. I dont know how it all works (if there is a chat space???), but maybe the teenage one would be okay. A camp would be fantastic, but ofcourse they have been dropped due to infection issues. Thanks Laurie, maybe email would be good...email friends instead...
  19. D

    Elevated Liver Enzymes

    I've used milkthistle with Sam, the best way to use any type of supplement (so they say!), is to use for say a month (or two), and have a break for a few weeks. I havent had his alt levels checked afterward, but know that it does work to support and rejuvenate the liver. I would usually use it...
  20. D

    Elevated Liver Enzymes

    I've used milkthistle with Sam, the best way to use any type of supplement (so they say!), is to use for say a month (or two), and have a break for a few weeks. I havent had his alt levels checked afterward, but know that it does work to support and rejuvenate the liver. I would usually use it...
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