Cystic Fibrosis Forum (EXP)

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  1. W

    swimming questions

    Just to add, I was a competitive swimmer for about 10 years, all through high school. It did wonders for my health (never hospitalized - few people even knew I had CF) and I never had any problems from being around water, locker rooms, etc. I highly recommend swimming programs for CFers - in...
  2. W

    What will happen?

    I have delta F508 and ....I always forget - S549 or something like that. I belive they are both class II mutations. I have been pretty healthy so far - no IVs or hospitalizations as of yet, minimal time spent on antibiotics, no inahled meds - except hypertonic saline - don't know how much is...
  3. W

    Humid Climates

    Northern Indiana - humid yuck yuck. I don't use my AC except when the humidity gets too high - if it feels like I am trying to breathe through molasses, I know it is time to crank the AC. that's about all I do though. I would prefer, if I had to live somewhere humid, it be Florida near the...
  4. W

    new information about CF "ideal weight"

    new information about CF "ideal weight my prepregnancy was 21.4 for fun I did it now, and it was 23.6 - I thought it would be higher. I am a bit surprized as that chart puts me in the normal arena, but I was a wee bit chunky before pregnancy - even the CF dietician supported me wanting to lose...
  5. W

    natural supplements

    I can't afford juice plus, but I have heard wonderful things from those who use it. I would love to add it to my diet...after I win the lottery maybe!
  6. W

    potty question

    I hate talking about poop. Too much of my life has been spent describing my stools, but I must ask. I am constipated. It's pregnancy related, but probably combined with CF. I have always been regular and had well formed stools, so this is out of the ordinary. I might go a little tiny drop...
  7. W

    Taking enzymes alone

    I started on my own about age 5-6, when I started school. I have to say though, I did go through a spell at school where I did not take them - I didn't want to, it wasn't really irresponsibility, as in forgetting, and I ended up with a bowel obstruction! So I'd say as long as you talk about it...
  8. W

    Pregnancy and antibiotics

    I just got a call from my clinic regarding my sputum results and I am growing PA but I am not colonized, so they want to treat it with antibiotics, but said they would have to call me back to see what I could take, as cipro and levaquin were out for pregnancy. I have taken augmentin and...
  9. W

    pregnancy and albueteral

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JohnnaMarie</b></i> Luke: Bronchosol, I wish I had known that med sooner on. I did quite a bit of research innitially on the Albuteral when I first found out I was pregnant. I was concerned about it causing any possible birth...
  10. W

    Full Time Teacher

    I am a full time teacher and have been for 7 years. It is demanding. I don't know what your Cf schedule is like. I don't do any neb treatments (well, now I do hypertonic saline sometimes), and no IVs as of yet, so absences and treatments have not been a problem for me. OUr school gives 11...
  11. W

    pregnancy and albueteral

    I use an albuterol inahler only, but I haven't noticed any extra kicking in conjunction with it. I am 23 weeks.
  12. W

    Lung Damage

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>amy</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>wanderlost</b></i> my lung damage is all upper right now, and I was told that that was "better" only in the sense that since it easier to bring that stuff...
  13. W

    IVF/IUI to get pregnant

    Irishgirl: I don't have CFRD either, but I did fail the glucose tolerance test (barely, they wanted the bloodsugar under 160 and mine was 166) when I was pregnant with my first. I was sent to a dietician who assumed, just because I had CF, that I would have trouble gaining weight and put me on...
  14. W

    A Real Inspiration...

    I still rarely tell, and I too use the asthma thing - it's easier and people just nod and say oh. You say CF and you get the big eyes and a sort of oh no! response that I hate. I have been lucky enough that I haven't really had to tell a lot of people. All my close friends know, but no one...
  15. W

    CF Pregnant Women

    I'm not exactly sure what mine was prior to having my son, as I wasn't a frequent clinic goer at that time, but I would guess lower 80s upper 70s, as it has been in the mid to upper 70s since he was born - almost seven years ago. At my last clinic visit in May, I was at 74 with this baby, so...
  16. W

    Lung Damage

    my lung damage is all upper right now, and I was told that that was "better" only in the sense that since it easier to bring that stuff up it is also more easy to treat sometimes, as it doesn't settle as well as it does in the lower lubes.
  17. W

    IVF/IUI to get pregnant

    With my son, I wasn't trying, I just got pregnant. With this baby, we tried for over a year and then went to IUI. We got pregnant on our first IUI - but sadly, I miscarried that baby. A month later we had another IUI and I got pregnant again. I am now 22 weeks. I was on humibid (guafinisin)...
  18. W

    Advice on health effect having 2nd child

    HI! I am pregnant with my second child, and sound much like you - I have only been in the hospital for childbirth as well, and have PFTs in the 70s. My son was also 5 weeks early, but went right home! This pregnancy has not affected my health much at all - I had one sinus infection requiring...
  19. W

    salt

    This is interesting to me simply because I rarely use salt and I NEVER crave salt. I don't actuallt like very salty things. I'm sure I have plenty of salt in my diet though, as I eat plenty of junk food! I also sweat out a ton of salt if I am working out or if it is just a hot day, though I...
  20. W

    Life Changes, Movie Moments, Disapointments and Surprises

    well, as they say in the TTC world, lots of babydust to you!! congratulations!
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