Cystic Fibrosis Forum (EXP)

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  1. W

    my tummy

    I was looking at Julie's tummy and was amazed, so I thought I'd post mine. Here is the difference between one baby, and three! <a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosismaleinfertility.com">Julie's site</a> me: <img...
  2. W

    Meds

    ok - inhaled nebs- (when I actually do it): hypertonic saline inhaled: advair - one puff twice a day albuteral - two puffs twice a day (sometimes I use it more) oral: creon 20s 3-4 with snack and meals prenatal vitamin (when not pregnant I still take a multi vit for women) alfalfa tablets - 2...
  3. W

    Night Sweats?

    could be hormone related. I always used to get night sweats during my period - and when I first got pregnant.
  4. W

    Cystic Fibrosis - Exercise - Pregnancy

    Jennifer My health is about the same as yours - and I am on baby #2 - don't let anyone keep you from making a choice that may b ethe greatest choice you could make! And keep trying. it took us 18 months to concived this one (and an IUI), but the first was a one shot deal!
  5. W

    Cystic Fibrosis - Exercise - Pregnancy

    I was only practicing yoga with thsi pregnancy. I say keep exercising - it isn't usually harmful at all to pregnancy and the better shape you're in when you get pregnanct the better off you'll be!
  6. W

    CF Centers in Philly

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i> Shannon, That's crazy?! I think I'll print out one of your pictures from you blog and show it to him next time I'm there. It will probably make his day. He's such a good man and so smart!</end quote></div> sure - I...
  7. W

    CF Centers in Philly

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i> I see Dr. Holsclaw who is one of the doctors at UPenn (actually practices out of Presby Hospital which I believe is where all UPenn ADULT CFers are seen). The chair of the group is Dr. Lipson. Candice, Is Dr...
  8. W

    Symptomatic Carriers

    I find symptomatic carriers interesting. My dad has horrible ashtma and sinus issues, my grandfather on that side died of emphysema at 62 - he was a smoker, though still 62 seems young to die from emphysema - so perhaps some lung issues there? Also, my uncle on my mothers side is infertile -...
  9. W

    Related to Jennifershope survey

    I've never done nebs, so I am not really skipping them. I did start on HS, but I fins that unless I am feeling a bit under the weather and congested, it is more irritating than helpful. When i am congested, I think it works great at loosening things up and making my cough more productive. I...
  10. W

    Hardwood floor stains and CF lungs

    lots of dust with sanding. Cover everything before they do it and that will make clean up easier, you can also get in and dust before she gets home. We had our floors done and it didn't bother me, but she is pretty little.
  11. W

    IUI and multiples IVF/ and one egg

    IUI can be done without clomid, and would in fact reduce the risk of multiples, but as stated beofre, this risk isn't actually all that high. I can tell you that on my first IUI, I had 4 eggs, only one of which was fertilized (sadly, I misacarried). On my second IUI, I had 3 follicles and...
  12. W

    An Honest survey

    well, I don't do too many meds - inhalers , enzymes and now I got on the hypertonic saline train. I rarely miss my inhalers, almost NEVER my enzymes (and I am great at taking them covertly, so even when i went on dates I never missed them without the explanation as to what they were), but the...
  13. W

    Going to the pool

    yes, yes go! I have never had any problems with the heat and the pool, and I have lived my summers at the pool since childhood. Just stay hydrated!
  14. W

    is this a weird cf sympton

    I don't get blotchy, but when I exercise hard or cough, I turn really really red - it freaks some people out thinking I am going ot have a heart attack or something, but I don't - it's just what happens. Cf related? I dunno, but I sure get redder than anyone else I know.
  15. W

    Prunning up fast

    Well, I checked it out, and after about an hour swimming in the lake the other day, neither my hands nor my sons were particularily pruney, so I guess this possible Cf side effect has eluded me...but now I am wondering if different waters might make a difference - lake water vs pool water vs...
  16. W

    Prunning up fast

    I've spent my whole life around pools and I can't say that I ave ever paid any attention to this...I think next time I go swimming I will check and see how quickly I get pruney, maybe compared to my son. Interesting.
  17. W

    New, scared, and African American

    wow. CF isn't too common in African Americans, but not unheard of. I would guess that if you have it or if he does, you have some of the rarer mutations, which you might want to ask for a genetic test anyway, if your sweat tests are showing positives. Hang in there until you have an actual...
  18. W

    psuedomonas

    I played in the mud, dirt, gardens, anywhere I please, and though I do have PA, I only got it in the last few years and I am not yet colonized, so it goes away (and comes back!). Point being, he may get it, he may not, he may get it from dirt, he might not get it until he is 27, like I...
  19. W

    any good advice for parents of cfers????

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i> Finding the right balance is smart. Make sure he KNOWS what his meds and stuff mean, but do NOT push. I know that will be harder than hell, but if you push him to do his meds, you will also push him away. You...
  20. W

    swimming questions

    I guess I didn't actually read your post very closely, as your child is 17 months and you aren't talking about pools - so I'll just keep rambling in saying that I also grew up around lakes and beaches, and again, no ill effects from that.
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