Am I feeling good or is it a facade?

[CowTown]

For the past several years I do all my treatments/vest the way I'm suppose to, not like when I was younger and skipped often. When I was younger I could hardly tell I had CF whether I did treatments or not.

My question is when I'm late on a treatment now, or skip one I feel it and it effects my breathing for sure. It's discouraging to feel <b>so good lately in between treatments</b>, exercise the way I'm suppose to, building strength etc, and then notice if I'm late a few hours on doing a treatment my breathing goes back to square one, gets very shallow, suddenly I can't walk very far.....it's like I hit a wall and have to do it asap.

I just wonder if my feeling good is more like a facade, it isn't real, and no matter how I feel during that window of having albuterol/meds in my system, it still comes down to how you feel right before needing a treatment? Should I believe in how I feel while my airways are open, or should I go by how my airways are when I need a treatment? Or maybe this is just the way it goes with fev1 at 41%?

What do you guys go by?

 

[CowTown]

For the past several years I do all my treatments/vest the way I'm suppose to, not like when I was younger and skipped often. When I was younger I could hardly tell I had CF whether I did treatments or not.

My question is when I'm late on a treatment now, or skip one I feel it and it effects my breathing for sure. It's discouraging to feel <b>so good lately in between treatments</b>, exercise the way I'm suppose to, building strength etc, and then notice if I'm late a few hours on doing a treatment my breathing goes back to square one, gets very shallow, suddenly I can't walk very far.....it's like I hit a wall and have to do it asap.

I just wonder if my feeling good is more like a facade, it isn't real, and no matter how I feel during that window of having albuterol/meds in my system, it still comes down to how you feel right before needing a treatment? Should I believe in how I feel while my airways are open, or should I go by how my airways are when I need a treatment? Or maybe this is just the way it goes with fev1 at 41%?

What do you guys go by?

 

[CowTown]

For the past several years I do all my treatments/vest the way I'm suppose to, not like when I was younger and skipped often. When I was younger I could hardly tell I had CF whether I did treatments or not.

My question is when I'm late on a treatment now, or skip one I feel it and it effects my breathing for sure. It's discouraging to feel <b>so good lately in between treatments</b>, exercise the way I'm suppose to, building strength etc, and then notice if I'm late a few hours on doing a treatment my breathing goes back to square one, gets very shallow, suddenly I can't walk very far.....it's like I hit a wall and have to do it asap.

I just wonder if my feeling good is more like a facade, it isn't real, and no matter how I feel during that window of having albuterol/meds in my system, it still comes down to how you feel right before needing a treatment? Should I believe in how I feel while my airways are open, or should I go by how my airways are when I need a treatment? Or maybe this is just the way it goes with fev1 at 41%?

What do you guys go by?

 

[CowTown]

For the past several years I do all my treatments/vest the way I'm suppose to, not like when I was younger and skipped often. When I was younger I could hardly tell I had CF whether I did treatments or not.

My question is when I'm late on a treatment now, or skip one I feel it and it effects my breathing for sure. It's discouraging to feel <b>so good lately in between treatments</b>, exercise the way I'm suppose to, building strength etc, and then notice if I'm late a few hours on doing a treatment my breathing goes back to square one, gets very shallow, suddenly I can't walk very far.....it's like I hit a wall and have to do it asap.

I just wonder if my feeling good is more like a facade, it isn't real, and no matter how I feel during that window of having albuterol/meds in my system, it still comes down to how you feel right before needing a treatment? Should I believe in how I feel while my airways are open, or should I go by how my airways are when I need a treatment? Or maybe this is just the way it goes with fev1 at 41%?

What do you guys go by?

 

[CowTown]

For the past several years I do all my treatments/vest the way I'm suppose to, not like when I was younger and skipped often. When I was younger I could hardly tell I had CF whether I did treatments or not.
<br />
<br />My question is when I'm late on a treatment now, or skip one I feel it and it effects my breathing for sure. It's discouraging to feel <b>so good lately in between treatments</b>, exercise the way I'm suppose to, building strength etc, and then notice if I'm late a few hours on doing a treatment my breathing goes back to square one, gets very shallow, suddenly I can't walk very far.....it's like I hit a wall and have to do it asap.
<br />
<br />I just wonder if my feeling good is more like a facade, it isn't real, and no matter how I feel during that window of having albuterol/meds in my system, it still comes down to how you feel right before needing a treatment? Should I believe in how I feel while my airways are open, or should I go by how my airways are when I need a treatment? Or maybe this is just the way it goes with fev1 at 41%?
<br />
<br />What do you guys go by?
<br />

 

[Skye]

hey, if the meds and modern CF treatments are making you feel well between treatments, I think that is great! Use all those tools and feel well! I think that is like comparing a diabetic after a few days without insulin. Well of course they won't do well. That doesn't mean they are getting worse or are in bad shape, it just means they need to take their insulin. We just have more tools we have to use to keep our lungs as close to open and normal as we can. Also, as we age, we probably do have to work a little harder at it. Newsflash, everyone has to work harder at their health as they age<img src="i/expressions/face-icon-small-sad.gif" border="0"> Feel good and keep your routine. Don't worry about your lungs with no meds just be glad you have em<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Skye]

hey, if the meds and modern CF treatments are making you feel well between treatments, I think that is great! Use all those tools and feel well! I think that is like comparing a diabetic after a few days without insulin. Well of course they won't do well. That doesn't mean they are getting worse or are in bad shape, it just means they need to take their insulin. We just have more tools we have to use to keep our lungs as close to open and normal as we can. Also, as we age, we probably do have to work a little harder at it. Newsflash, everyone has to work harder at their health as they age<img src="i/expressions/face-icon-small-sad.gif" border="0"> Feel good and keep your routine. Don't worry about your lungs with no meds just be glad you have em<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Skye]

hey, if the meds and modern CF treatments are making you feel well between treatments, I think that is great! Use all those tools and feel well! I think that is like comparing a diabetic after a few days without insulin. Well of course they won't do well. That doesn't mean they are getting worse or are in bad shape, it just means they need to take their insulin. We just have more tools we have to use to keep our lungs as close to open and normal as we can. Also, as we age, we probably do have to work a little harder at it. Newsflash, everyone has to work harder at their health as they age<img src="i/expressions/face-icon-small-sad.gif" border="0"> Feel good and keep your routine. Don't worry about your lungs with no meds just be glad you have em<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Skye]

hey, if the meds and modern CF treatments are making you feel well between treatments, I think that is great! Use all those tools and feel well! I think that is like comparing a diabetic after a few days without insulin. Well of course they won't do well. That doesn't mean they are getting worse or are in bad shape, it just means they need to take their insulin. We just have more tools we have to use to keep our lungs as close to open and normal as we can. Also, as we age, we probably do have to work a little harder at it. Newsflash, everyone has to work harder at their health as they age<img src="i/expressions/face-icon-small-sad.gif" border="0"> Feel good and keep your routine. Don't worry about your lungs with no meds just be glad you have em<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Skye]

hey, if the meds and modern CF treatments are making you feel well between treatments, I think that is great! Use all those tools and feel well! I think that is like comparing a diabetic after a few days without insulin. Well of course they won't do well. That doesn't mean they are getting worse or are in bad shape, it just means they need to take their insulin. We just have more tools we have to use to keep our lungs as close to open and normal as we can. Also, as we age, we probably do have to work a little harder at it. Newsflash, everyone has to work harder at their health as they age<img src="i/expressions/face-icon-small-sad.gif" border="0"> Feel good and keep your routine. Don't worry about your lungs with no meds just be glad you have em<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[CowTown]

Thanks Skye. That makes sense. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's such a strange duo though.

 

[CowTown]

Thanks Skye. That makes sense. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's such a strange duo though.

 

[CowTown]

Thanks Skye. That makes sense. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's such a strange duo though.

 

[CowTown]

Thanks Skye. That makes sense. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's such a strange duo though.

 

[CowTown]

Thanks Skye. That makes sense. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's such a strange duo though.

 

[ERINSBIZ]

I feel your frustrations. I have been so healthy all through my childhood and it wasn't until getting older that I started to experience lung function decline. I feel like your average 33 year old mom; however I have learned that how I feel can be subtly different than what is actually going on in my lungs. I feel healthy so I skip my treatments but than wham I feel it too. I am learning that I have to do the tx. even if I feel good. It's all in the head. I really have to analyze my whole health situation and almost talk myself into the fact that I have this disease and it creeps up if you let it. No matter how good you might feel.

That's why this website is so wonderful. It has really opened my eyes. I was always so closed off from cf and ignored it because it never affected me. But, now I realize I need this support to feel normal and validate how I am feeling is real.

 

[ERINSBIZ]

I feel your frustrations. I have been so healthy all through my childhood and it wasn't until getting older that I started to experience lung function decline. I feel like your average 33 year old mom; however I have learned that how I feel can be subtly different than what is actually going on in my lungs. I feel healthy so I skip my treatments but than wham I feel it too. I am learning that I have to do the tx. even if I feel good. It's all in the head. I really have to analyze my whole health situation and almost talk myself into the fact that I have this disease and it creeps up if you let it. No matter how good you might feel.

That's why this website is so wonderful. It has really opened my eyes. I was always so closed off from cf and ignored it because it never affected me. But, now I realize I need this support to feel normal and validate how I am feeling is real.

 

[ERINSBIZ]

I feel your frustrations. I have been so healthy all through my childhood and it wasn't until getting older that I started to experience lung function decline. I feel like your average 33 year old mom; however I have learned that how I feel can be subtly different than what is actually going on in my lungs. I feel healthy so I skip my treatments but than wham I feel it too. I am learning that I have to do the tx. even if I feel good. It's all in the head. I really have to analyze my whole health situation and almost talk myself into the fact that I have this disease and it creeps up if you let it. No matter how good you might feel.

That's why this website is so wonderful. It has really opened my eyes. I was always so closed off from cf and ignored it because it never affected me. But, now I realize I need this support to feel normal and validate how I am feeling is real.

 

[ERINSBIZ]

I feel your frustrations. I have been so healthy all through my childhood and it wasn't until getting older that I started to experience lung function decline. I feel like your average 33 year old mom; however I have learned that how I feel can be subtly different than what is actually going on in my lungs. I feel healthy so I skip my treatments but than wham I feel it too. I am learning that I have to do the tx. even if I feel good. It's all in the head. I really have to analyze my whole health situation and almost talk myself into the fact that I have this disease and it creeps up if you let it. No matter how good you might feel.

That's why this website is so wonderful. It has really opened my eyes. I was always so closed off from cf and ignored it because it never affected me. But, now I realize I need this support to feel normal and validate how I am feeling is real.

 

[ERINSBIZ]

I feel your frustrations. I have been so healthy all through my childhood and it wasn't until getting older that I started to experience lung function decline. I feel like your average 33 year old mom; however I have learned that how I feel can be subtly different than what is actually going on in my lungs. I feel healthy so I skip my treatments but than wham I feel it too. I am learning that I have to do the tx. even if I feel good. It's all in the head. I really have to analyze my whole health situation and almost talk myself into the fact that I have this disease and it creeps up if you let it. No matter how good you might feel.
<br />
<br />That's why this website is so wonderful. It has really opened my eyes. I was always so closed off from cf and ignored it because it never affected me. But, now I realize I need this support to feel normal and validate how I am feeling is real.