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Josh's pancrease is no longer producing insuline......

J

JazzysMom

New member
Given his circumstances its not unusual for his sugars to be so high. Stress & infection will aggrivate diabetes.

I am not that familiar with pancreases being removed. I have heard of some diabetics (not CFRD tho) having pancrease transplants.

Given his bugs etc I would think (total non professional & only personal opinion here) that surgery of any kind right now isnt a good idea.

They would need to regulate his sugars properly whether they remove/transplant the pancrease or not.

I hope they arent throwing this out there for "the future" at a time of "now" when you are already overwhelmed. Removing the pancrease wont help NOW with the high sugars.

What type of sugar control is in place NOW?
 
J

JazzysMom

New member
Given his circumstances its not unusual for his sugars to be so high. Stress & infection will aggrivate diabetes.

I am not that familiar with pancreases being removed. I have heard of some diabetics (not CFRD tho) having pancrease transplants.

Given his bugs etc I would think (total non professional & only personal opinion here) that surgery of any kind right now isnt a good idea.

They would need to regulate his sugars properly whether they remove/transplant the pancrease or not.

I hope they arent throwing this out there for "the future" at a time of "now" when you are already overwhelmed. Removing the pancrease wont help NOW with the high sugars.

What type of sugar control is in place NOW?
 
J

JazzysMom

New member
Given his circumstances its not unusual for his sugars to be so high. Stress & infection will aggrivate diabetes.

I am not that familiar with pancreases being removed. I have heard of some diabetics (not CFRD tho) having pancrease transplants.

Given his bugs etc I would think (total non professional & only personal opinion here) that surgery of any kind right now isnt a good idea.

They would need to regulate his sugars properly whether they remove/transplant the pancrease or not.

I hope they arent throwing this out there for "the future" at a time of "now" when you are already overwhelmed. Removing the pancrease wont help NOW with the high sugars.

What type of sugar control is in place NOW?
 
J

JazzysMom

New member
Given his circumstances its not unusual for his sugars to be so high. Stress & infection will aggrivate diabetes.

I am not that familiar with pancreases being removed. I have heard of some diabetics (not CFRD tho) having pancrease transplants.

Given his bugs etc I would think (total non professional & only personal opinion here) that surgery of any kind right now isnt a good idea.

They would need to regulate his sugars properly whether they remove/transplant the pancrease or not.

I hope they arent throwing this out there for "the future" at a time of "now" when you are already overwhelmed. Removing the pancrease wont help NOW with the high sugars.

What type of sugar control is in place NOW?
 
J

JazzysMom

New member
Given his circumstances its not unusual for his sugars to be so high. Stress & infection will aggrivate diabetes.
<br />
<br />I am not that familiar with pancreases being removed. I have heard of some diabetics (not CFRD tho) having pancrease transplants.
<br />
<br />Given his bugs etc I would think (total non professional & only personal opinion here) that surgery of any kind right now isnt a good idea.
<br />
<br />They would need to regulate his sugars properly whether they remove/transplant the pancrease or not.
<br />
<br />I hope they arent throwing this out there for "the future" at a time of "now" when you are already overwhelmed. Removing the pancrease wont help NOW with the high sugars.
<br />
<br />What type of sugar control is in place NOW?
 
C

CFkitty

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ShannonB</b></i>

So today we found out that Josh's pancrease is failing. It is no longer working to help with the insuline. his blood sugars are all over reaching 700.....they r talking taking it out. Has anyone had any experience with this. We r bothvery worried.</end quote></div>

<b>Let me first ask - are his sugars getting to 700 WITH insulin?</b> He should be taking a short-acting insulin (such as Novolog or Humalog) in addition to Lantus (long-acting). It doesn't make a lot of sense. Interesting that the doctors are discussing taking the Pancreas out because of diabetes. I have heard of transplanting islet cells (google that for more info).

What did the doctors actually say? Did they give reasons, statistics or evidence as to the benefit of removing the pancreas? I've been diabetic for years and have never heard of this.

I have chronic pancreatitis that causes pain every day, that worsens with eating any type of food. I begged my gastroenterologists (two of the top in the country, one in Boston and one at Yale) to take my pancreas out, but they said that removing part or all of the pancreas is rarely done except in cases of cancer, citing the risks of - get this - pancreatic insufficiency and diabetes, both of which I have.

I would ask for specifics. That way, we can try to speak to clinical information.
 
C

CFkitty

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ShannonB</b></i>

So today we found out that Josh's pancrease is failing. It is no longer working to help with the insuline. his blood sugars are all over reaching 700.....they r talking taking it out. Has anyone had any experience with this. We r bothvery worried.</end quote></div>

<b>Let me first ask - are his sugars getting to 700 WITH insulin?</b> He should be taking a short-acting insulin (such as Novolog or Humalog) in addition to Lantus (long-acting). It doesn't make a lot of sense. Interesting that the doctors are discussing taking the Pancreas out because of diabetes. I have heard of transplanting islet cells (google that for more info).

What did the doctors actually say? Did they give reasons, statistics or evidence as to the benefit of removing the pancreas? I've been diabetic for years and have never heard of this.

I have chronic pancreatitis that causes pain every day, that worsens with eating any type of food. I begged my gastroenterologists (two of the top in the country, one in Boston and one at Yale) to take my pancreas out, but they said that removing part or all of the pancreas is rarely done except in cases of cancer, citing the risks of - get this - pancreatic insufficiency and diabetes, both of which I have.

I would ask for specifics. That way, we can try to speak to clinical information.
 
C

CFkitty

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ShannonB</b></i>

So today we found out that Josh's pancrease is failing. It is no longer working to help with the insuline. his blood sugars are all over reaching 700.....they r talking taking it out. Has anyone had any experience with this. We r bothvery worried.</end quote></div>

<b>Let me first ask - are his sugars getting to 700 WITH insulin?</b> He should be taking a short-acting insulin (such as Novolog or Humalog) in addition to Lantus (long-acting). It doesn't make a lot of sense. Interesting that the doctors are discussing taking the Pancreas out because of diabetes. I have heard of transplanting islet cells (google that for more info).

What did the doctors actually say? Did they give reasons, statistics or evidence as to the benefit of removing the pancreas? I've been diabetic for years and have never heard of this.

I have chronic pancreatitis that causes pain every day, that worsens with eating any type of food. I begged my gastroenterologists (two of the top in the country, one in Boston and one at Yale) to take my pancreas out, but they said that removing part or all of the pancreas is rarely done except in cases of cancer, citing the risks of - get this - pancreatic insufficiency and diabetes, both of which I have.

I would ask for specifics. That way, we can try to speak to clinical information.
 
C

CFkitty

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ShannonB</b></i>

So today we found out that Josh's pancrease is failing. It is no longer working to help with the insuline. his blood sugars are all over reaching 700.....they r talking taking it out. Has anyone had any experience with this. We r bothvery worried.</end quote>

<b>Let me first ask - are his sugars getting to 700 WITH insulin?</b> He should be taking a short-acting insulin (such as Novolog or Humalog) in addition to Lantus (long-acting). It doesn't make a lot of sense. Interesting that the doctors are discussing taking the Pancreas out because of diabetes. I have heard of transplanting islet cells (google that for more info).

What did the doctors actually say? Did they give reasons, statistics or evidence as to the benefit of removing the pancreas? I've been diabetic for years and have never heard of this.

I have chronic pancreatitis that causes pain every day, that worsens with eating any type of food. I begged my gastroenterologists (two of the top in the country, one in Boston and one at Yale) to take my pancreas out, but they said that removing part or all of the pancreas is rarely done except in cases of cancer, citing the risks of - get this - pancreatic insufficiency and diabetes, both of which I have.

I would ask for specifics. That way, we can try to speak to clinical information.
 
C

CFkitty

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ShannonB</b></i>
<br />
<br />So today we found out that Josh's pancrease is failing. It is no longer working to help with the insuline. his blood sugars are all over reaching 700.....they r talking taking it out. Has anyone had any experience with this. We r bothvery worried.</end quote>
<br />
<br /><b>Let me first ask - are his sugars getting to 700 WITH insulin?</b> He should be taking a short-acting insulin (such as Novolog or Humalog) in addition to Lantus (long-acting). It doesn't make a lot of sense. Interesting that the doctors are discussing taking the Pancreas out because of diabetes. I have heard of transplanting islet cells (google that for more info).
<br />
<br />What did the doctors actually say? Did they give reasons, statistics or evidence as to the benefit of removing the pancreas? I've been diabetic for years and have never heard of this.
<br />
<br />I have chronic pancreatitis that causes pain every day, that worsens with eating any type of food. I begged my gastroenterologists (two of the top in the country, one in Boston and one at Yale) to take my pancreas out, but they said that removing part or all of the pancreas is rarely done except in cases of cancer, citing the risks of - get this - pancreatic insufficiency and diabetes, both of which I have.
<br />
<br />I would ask for specifics. That way, we can try to speak to clinical information.
 
B

beleache

New member
Hey Shannon,

I dont have any info/advice for you guys just want to say you are both in my thoughts ..

<img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
Hey Shannon,

I dont have any info/advice for you guys just want to say you are both in my thoughts ..

<img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
Hey Shannon,

I dont have any info/advice for you guys just want to say you are both in my thoughts ..

<img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
Hey Shannon,

I dont have any info/advice for you guys just want to say you are both in my thoughts ..

<img src="i/expressions/heart.gif" border="0"> joni
 
B

beleache

New member
Hey Shannon,
<br />
<br /> I dont have any info/advice for you guys just want to say you are both in my thoughts ..
<br />
<br /> <img src="i/expressions/heart.gif" border="0"> joni
 
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