Cystic Fibrosis Forum (EXP)
This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!
kinda traumatized
- Thread starter NYCLawGirl
- Start date
Many lungers here will hate me for saying it...BUT...
Whenever I start to feel like ass, and no matter what is going on, I think back to the 40+ CF kids who I met at summer camp in my early teens, who are no longer here on planet earth. I remember their names. I remember their personalities. I remember our late night conversations with the moonlight barely streaming into the room onto our beds in the dorm room. I remember their dreams. All of which, cut way short soon afterwards by the same horrible disease I still have. I am one of maybe 3 survivors from those original 45-50 kids with CF. I am now 36, upon April 8th I will be 37. My lung function is still extremely good, though I have had a ton of problems, and continue to have problems of various sorts.
After I get done thinking of those individual kids who I had close contacts/conversations with, and realizing they were all beautiful flowers cut down way before they should have, I then think about their parents, and their family. I met many if not all of them also. I remember seeing brothers and sisters of the CF kids on family day (regardless of age, some were very young, some were adults) off to the side, sitting by themself, crying away...Fearful of losing Jason, Melissa, or David. I remember walking into many emotional conversations between mother and father of a CF camp goer, angrily, emotionally stating "How it's so unfair", "Why our baby", and countless variations on that.
All of these people...Be them brothers, sisters, mothers, fathers, cousins, uncles, nieces, nephews, or grandparents...Every single day, think of the poor sickly child they lost to this horrible disease. What would they look like now? What career would they have? What would their wedding have been like? How many children would they have had?
The list is endless in the "what" dept. That is *JUST* CF and the people I knew. What about pediatric cancer? What about SIDS? What about horrible accidents?
REMEMBER...You are still here. Even though all of our struggles are different, even though even the best CF's life is still torture to other "normal" people...YOU ARE STILL HERE!!
Enjoy this gift you have been given. If it's another surgery, or a bad report of your PFT's, remember...YOU ARE STILL HERE!!! Unlike so many others roughly around your age, with the same disease, YOU ARE STILL HERE!!!
Something as simple as walking by the orange groves in the spring and smelling the intoxicating smell of all the orange blossoms in bloom...Or hearing a child strongly laugh...Or seeing my lady wink at me...Or having some beers and bowling with friends and we rehash experiences from 17 years ago...Or hearing my very elderly mom say "I am so proud of you"...
The examples should be endless, if you just stop and look around. Yeah our lives generally suck a big one. And most normal people would want to jump off a bridge rather than deal with what we have to deal with just to stay here another day. But you know what? Adversity truly does make you aware of just how good you have it. Something my other lungers here hate to see, but it *IS* the truth, "It could always be worse".
Whenever I start to feel like ass, and no matter what is going on, I think back to the 40+ CF kids who I met at summer camp in my early teens, who are no longer here on planet earth. I remember their names. I remember their personalities. I remember our late night conversations with the moonlight barely streaming into the room onto our beds in the dorm room. I remember their dreams. All of which, cut way short soon afterwards by the same horrible disease I still have. I am one of maybe 3 survivors from those original 45-50 kids with CF. I am now 36, upon April 8th I will be 37. My lung function is still extremely good, though I have had a ton of problems, and continue to have problems of various sorts.
After I get done thinking of those individual kids who I had close contacts/conversations with, and realizing they were all beautiful flowers cut down way before they should have, I then think about their parents, and their family. I met many if not all of them also. I remember seeing brothers and sisters of the CF kids on family day (regardless of age, some were very young, some were adults) off to the side, sitting by themself, crying away...Fearful of losing Jason, Melissa, or David. I remember walking into many emotional conversations between mother and father of a CF camp goer, angrily, emotionally stating "How it's so unfair", "Why our baby", and countless variations on that.
All of these people...Be them brothers, sisters, mothers, fathers, cousins, uncles, nieces, nephews, or grandparents...Every single day, think of the poor sickly child they lost to this horrible disease. What would they look like now? What career would they have? What would their wedding have been like? How many children would they have had?
The list is endless in the "what" dept. That is *JUST* CF and the people I knew. What about pediatric cancer? What about SIDS? What about horrible accidents?
REMEMBER...You are still here. Even though all of our struggles are different, even though even the best CF's life is still torture to other "normal" people...YOU ARE STILL HERE!!
Enjoy this gift you have been given. If it's another surgery, or a bad report of your PFT's, remember...YOU ARE STILL HERE!!! Unlike so many others roughly around your age, with the same disease, YOU ARE STILL HERE!!!
Something as simple as walking by the orange groves in the spring and smelling the intoxicating smell of all the orange blossoms in bloom...Or hearing a child strongly laugh...Or seeing my lady wink at me...Or having some beers and bowling with friends and we rehash experiences from 17 years ago...Or hearing my very elderly mom say "I am so proud of you"...
The examples should be endless, if you just stop and look around. Yeah our lives generally suck a big one. And most normal people would want to jump off a bridge rather than deal with what we have to deal with just to stay here another day. But you know what? Adversity truly does make you aware of just how good you have it. Something my other lungers here hate to see, but it *IS* the truth, "It could always be worse".
Many lungers here will hate me for saying it...BUT...
Whenever I start to feel like ass, and no matter what is going on, I think back to the 40+ CF kids who I met at summer camp in my early teens, who are no longer here on planet earth. I remember their names. I remember their personalities. I remember our late night conversations with the moonlight barely streaming into the room onto our beds in the dorm room. I remember their dreams. All of which, cut way short soon afterwards by the same horrible disease I still have. I am one of maybe 3 survivors from those original 45-50 kids with CF. I am now 36, upon April 8th I will be 37. My lung function is still extremely good, though I have had a ton of problems, and continue to have problems of various sorts.
After I get done thinking of those individual kids who I had close contacts/conversations with, and realizing they were all beautiful flowers cut down way before they should have, I then think about their parents, and their family. I met many if not all of them also. I remember seeing brothers and sisters of the CF kids on family day (regardless of age, some were very young, some were adults) off to the side, sitting by themself, crying away...Fearful of losing Jason, Melissa, or David. I remember walking into many emotional conversations between mother and father of a CF camp goer, angrily, emotionally stating "How it's so unfair", "Why our baby", and countless variations on that.
All of these people...Be them brothers, sisters, mothers, fathers, cousins, uncles, nieces, nephews, or grandparents...Every single day, think of the poor sickly child they lost to this horrible disease. What would they look like now? What career would they have? What would their wedding have been like? How many children would they have had?
The list is endless in the "what" dept. That is *JUST* CF and the people I knew. What about pediatric cancer? What about SIDS? What about horrible accidents?
REMEMBER...You are still here. Even though all of our struggles are different, even though even the best CF's life is still torture to other "normal" people...YOU ARE STILL HERE!!
Enjoy this gift you have been given. If it's another surgery, or a bad report of your PFT's, remember...YOU ARE STILL HERE!!! Unlike so many others roughly around your age, with the same disease, YOU ARE STILL HERE!!!
Something as simple as walking by the orange groves in the spring and smelling the intoxicating smell of all the orange blossoms in bloom...Or hearing a child strongly laugh...Or seeing my lady wink at me...Or having some beers and bowling with friends and we rehash experiences from 17 years ago...Or hearing my very elderly mom say "I am so proud of you"...
The examples should be endless, if you just stop and look around. Yeah our lives generally suck a big one. And most normal people would want to jump off a bridge rather than deal with what we have to deal with just to stay here another day. But you know what? Adversity truly does make you aware of just how good you have it. Something my other lungers here hate to see, but it *IS* the truth, "It could always be worse".
Whenever I start to feel like ass, and no matter what is going on, I think back to the 40+ CF kids who I met at summer camp in my early teens, who are no longer here on planet earth. I remember their names. I remember their personalities. I remember our late night conversations with the moonlight barely streaming into the room onto our beds in the dorm room. I remember their dreams. All of which, cut way short soon afterwards by the same horrible disease I still have. I am one of maybe 3 survivors from those original 45-50 kids with CF. I am now 36, upon April 8th I will be 37. My lung function is still extremely good, though I have had a ton of problems, and continue to have problems of various sorts.
After I get done thinking of those individual kids who I had close contacts/conversations with, and realizing they were all beautiful flowers cut down way before they should have, I then think about their parents, and their family. I met many if not all of them also. I remember seeing brothers and sisters of the CF kids on family day (regardless of age, some were very young, some were adults) off to the side, sitting by themself, crying away...Fearful of losing Jason, Melissa, or David. I remember walking into many emotional conversations between mother and father of a CF camp goer, angrily, emotionally stating "How it's so unfair", "Why our baby", and countless variations on that.
All of these people...Be them brothers, sisters, mothers, fathers, cousins, uncles, nieces, nephews, or grandparents...Every single day, think of the poor sickly child they lost to this horrible disease. What would they look like now? What career would they have? What would their wedding have been like? How many children would they have had?
The list is endless in the "what" dept. That is *JUST* CF and the people I knew. What about pediatric cancer? What about SIDS? What about horrible accidents?
REMEMBER...You are still here. Even though all of our struggles are different, even though even the best CF's life is still torture to other "normal" people...YOU ARE STILL HERE!!
Enjoy this gift you have been given. If it's another surgery, or a bad report of your PFT's, remember...YOU ARE STILL HERE!!! Unlike so many others roughly around your age, with the same disease, YOU ARE STILL HERE!!!
Something as simple as walking by the orange groves in the spring and smelling the intoxicating smell of all the orange blossoms in bloom...Or hearing a child strongly laugh...Or seeing my lady wink at me...Or having some beers and bowling with friends and we rehash experiences from 17 years ago...Or hearing my very elderly mom say "I am so proud of you"...
The examples should be endless, if you just stop and look around. Yeah our lives generally suck a big one. And most normal people would want to jump off a bridge rather than deal with what we have to deal with just to stay here another day. But you know what? Adversity truly does make you aware of just how good you have it. Something my other lungers here hate to see, but it *IS* the truth, "It could always be worse".
Many lungers here will hate me for saying it...BUT...
Whenever I start to feel like ass, and no matter what is going on, I think back to the 40+ CF kids who I met at summer camp in my early teens, who are no longer here on planet earth. I remember their names. I remember their personalities. I remember our late night conversations with the moonlight barely streaming into the room onto our beds in the dorm room. I remember their dreams. All of which, cut way short soon afterwards by the same horrible disease I still have. I am one of maybe 3 survivors from those original 45-50 kids with CF. I am now 36, upon April 8th I will be 37. My lung function is still extremely good, though I have had a ton of problems, and continue to have problems of various sorts.
After I get done thinking of those individual kids who I had close contacts/conversations with, and realizing they were all beautiful flowers cut down way before they should have, I then think about their parents, and their family. I met many if not all of them also. I remember seeing brothers and sisters of the CF kids on family day (regardless of age, some were very young, some were adults) off to the side, sitting by themself, crying away...Fearful of losing Jason, Melissa, or David. I remember walking into many emotional conversations between mother and father of a CF camp goer, angrily, emotionally stating "How it's so unfair", "Why our baby", and countless variations on that.
All of these people...Be them brothers, sisters, mothers, fathers, cousins, uncles, nieces, nephews, or grandparents...Every single day, think of the poor sickly child they lost to this horrible disease. What would they look like now? What career would they have? What would their wedding have been like? How many children would they have had?
The list is endless in the "what" dept. That is *JUST* CF and the people I knew. What about pediatric cancer? What about SIDS? What about horrible accidents?
REMEMBER...You are still here. Even though all of our struggles are different, even though even the best CF's life is still torture to other "normal" people...YOU ARE STILL HERE!!
Enjoy this gift you have been given. If it's another surgery, or a bad report of your PFT's, remember...YOU ARE STILL HERE!!! Unlike so many others roughly around your age, with the same disease, YOU ARE STILL HERE!!!
Something as simple as walking by the orange groves in the spring and smelling the intoxicating smell of all the orange blossoms in bloom...Or hearing a child strongly laugh...Or seeing my lady wink at me...Or having some beers and bowling with friends and we rehash experiences from 17 years ago...Or hearing my very elderly mom say "I am so proud of you"...
The examples should be endless, if you just stop and look around. Yeah our lives generally suck a big one. And most normal people would want to jump off a bridge rather than deal with what we have to deal with just to stay here another day. But you know what? Adversity truly does make you aware of just how good you have it. Something my other lungers here hate to see, but it *IS* the truth, "It could always be worse".
Whenever I start to feel like ass, and no matter what is going on, I think back to the 40+ CF kids who I met at summer camp in my early teens, who are no longer here on planet earth. I remember their names. I remember their personalities. I remember our late night conversations with the moonlight barely streaming into the room onto our beds in the dorm room. I remember their dreams. All of which, cut way short soon afterwards by the same horrible disease I still have. I am one of maybe 3 survivors from those original 45-50 kids with CF. I am now 36, upon April 8th I will be 37. My lung function is still extremely good, though I have had a ton of problems, and continue to have problems of various sorts.
After I get done thinking of those individual kids who I had close contacts/conversations with, and realizing they were all beautiful flowers cut down way before they should have, I then think about their parents, and their family. I met many if not all of them also. I remember seeing brothers and sisters of the CF kids on family day (regardless of age, some were very young, some were adults) off to the side, sitting by themself, crying away...Fearful of losing Jason, Melissa, or David. I remember walking into many emotional conversations between mother and father of a CF camp goer, angrily, emotionally stating "How it's so unfair", "Why our baby", and countless variations on that.
All of these people...Be them brothers, sisters, mothers, fathers, cousins, uncles, nieces, nephews, or grandparents...Every single day, think of the poor sickly child they lost to this horrible disease. What would they look like now? What career would they have? What would their wedding have been like? How many children would they have had?
The list is endless in the "what" dept. That is *JUST* CF and the people I knew. What about pediatric cancer? What about SIDS? What about horrible accidents?
REMEMBER...You are still here. Even though all of our struggles are different, even though even the best CF's life is still torture to other "normal" people...YOU ARE STILL HERE!!
Enjoy this gift you have been given. If it's another surgery, or a bad report of your PFT's, remember...YOU ARE STILL HERE!!! Unlike so many others roughly around your age, with the same disease, YOU ARE STILL HERE!!!
Something as simple as walking by the orange groves in the spring and smelling the intoxicating smell of all the orange blossoms in bloom...Or hearing a child strongly laugh...Or seeing my lady wink at me...Or having some beers and bowling with friends and we rehash experiences from 17 years ago...Or hearing my very elderly mom say "I am so proud of you"...
The examples should be endless, if you just stop and look around. Yeah our lives generally suck a big one. And most normal people would want to jump off a bridge rather than deal with what we have to deal with just to stay here another day. But you know what? Adversity truly does make you aware of just how good you have it. Something my other lungers here hate to see, but it *IS* the truth, "It could always be worse".
Many lungers here will hate me for saying it...BUT...
Whenever I start to feel like ass, and no matter what is going on, I think back to the 40+ CF kids who I met at summer camp in my early teens, who are no longer here on planet earth. I remember their names. I remember their personalities. I remember our late night conversations with the moonlight barely streaming into the room onto our beds in the dorm room. I remember their dreams. All of which, cut way short soon afterwards by the same horrible disease I still have. I am one of maybe 3 survivors from those original 45-50 kids with CF. I am now 36, upon April 8th I will be 37. My lung function is still extremely good, though I have had a ton of problems, and continue to have problems of various sorts.
After I get done thinking of those individual kids who I had close contacts/conversations with, and realizing they were all beautiful flowers cut down way before they should have, I then think about their parents, and their family. I met many if not all of them also. I remember seeing brothers and sisters of the CF kids on family day (regardless of age, some were very young, some were adults) off to the side, sitting by themself, crying away...Fearful of losing Jason, Melissa, or David. I remember walking into many emotional conversations between mother and father of a CF camp goer, angrily, emotionally stating "How it's so unfair", "Why our baby", and countless variations on that.
All of these people...Be them brothers, sisters, mothers, fathers, cousins, uncles, nieces, nephews, or grandparents...Every single day, think of the poor sickly child they lost to this horrible disease. What would they look like now? What career would they have? What would their wedding have been like? How many children would they have had?
The list is endless in the "what" dept. That is *JUST* CF and the people I knew. What about pediatric cancer? What about SIDS? What about horrible accidents?
REMEMBER...You are still here. Even though all of our struggles are different, even though even the best CF's life is still torture to other "normal" people...YOU ARE STILL HERE!!
Enjoy this gift you have been given. If it's another surgery, or a bad report of your PFT's, remember...YOU ARE STILL HERE!!! Unlike so many others roughly around your age, with the same disease, YOU ARE STILL HERE!!!
Something as simple as walking by the orange groves in the spring and smelling the intoxicating smell of all the orange blossoms in bloom...Or hearing a child strongly laugh...Or seeing my lady wink at me...Or having some beers and bowling with friends and we rehash experiences from 17 years ago...Or hearing my very elderly mom say "I am so proud of you"...
The examples should be endless, if you just stop and look around. Yeah our lives generally suck a big one. And most normal people would want to jump off a bridge rather than deal with what we have to deal with just to stay here another day. But you know what? Adversity truly does make you aware of just how good you have it. Something my other lungers here hate to see, but it *IS* the truth, "It could always be worse".
Whenever I start to feel like ass, and no matter what is going on, I think back to the 40+ CF kids who I met at summer camp in my early teens, who are no longer here on planet earth. I remember their names. I remember their personalities. I remember our late night conversations with the moonlight barely streaming into the room onto our beds in the dorm room. I remember their dreams. All of which, cut way short soon afterwards by the same horrible disease I still have. I am one of maybe 3 survivors from those original 45-50 kids with CF. I am now 36, upon April 8th I will be 37. My lung function is still extremely good, though I have had a ton of problems, and continue to have problems of various sorts.
After I get done thinking of those individual kids who I had close contacts/conversations with, and realizing they were all beautiful flowers cut down way before they should have, I then think about their parents, and their family. I met many if not all of them also. I remember seeing brothers and sisters of the CF kids on family day (regardless of age, some were very young, some were adults) off to the side, sitting by themself, crying away...Fearful of losing Jason, Melissa, or David. I remember walking into many emotional conversations between mother and father of a CF camp goer, angrily, emotionally stating "How it's so unfair", "Why our baby", and countless variations on that.
All of these people...Be them brothers, sisters, mothers, fathers, cousins, uncles, nieces, nephews, or grandparents...Every single day, think of the poor sickly child they lost to this horrible disease. What would they look like now? What career would they have? What would their wedding have been like? How many children would they have had?
The list is endless in the "what" dept. That is *JUST* CF and the people I knew. What about pediatric cancer? What about SIDS? What about horrible accidents?
REMEMBER...You are still here. Even though all of our struggles are different, even though even the best CF's life is still torture to other "normal" people...YOU ARE STILL HERE!!
Enjoy this gift you have been given. If it's another surgery, or a bad report of your PFT's, remember...YOU ARE STILL HERE!!! Unlike so many others roughly around your age, with the same disease, YOU ARE STILL HERE!!!
Something as simple as walking by the orange groves in the spring and smelling the intoxicating smell of all the orange blossoms in bloom...Or hearing a child strongly laugh...Or seeing my lady wink at me...Or having some beers and bowling with friends and we rehash experiences from 17 years ago...Or hearing my very elderly mom say "I am so proud of you"...
The examples should be endless, if you just stop and look around. Yeah our lives generally suck a big one. And most normal people would want to jump off a bridge rather than deal with what we have to deal with just to stay here another day. But you know what? Adversity truly does make you aware of just how good you have it. Something my other lungers here hate to see, but it *IS* the truth, "It could always be worse".
Many lungers here will hate me for saying it...BUT...
<br />
<br />Whenever I start to feel like ass, and no matter what is going on, I think back to the 40+ CF kids who I met at summer camp in my early teens, who are no longer here on planet earth. I remember their names. I remember their personalities. I remember our late night conversations with the moonlight barely streaming into the room onto our beds in the dorm room. I remember their dreams. All of which, cut way short soon afterwards by the same horrible disease I still have. I am one of maybe 3 survivors from those original 45-50 kids with CF. I am now 36, upon April 8th I will be 37. My lung function is still extremely good, though I have had a ton of problems, and continue to have problems of various sorts.
<br />
<br />After I get done thinking of those individual kids who I had close contacts/conversations with, and realizing they were all beautiful flowers cut down way before they should have, I then think about their parents, and their family. I met many if not all of them also. I remember seeing brothers and sisters of the CF kids on family day (regardless of age, some were very young, some were adults) off to the side, sitting by themself, crying away...Fearful of losing Jason, Melissa, or David. I remember walking into many emotional conversations between mother and father of a CF camp goer, angrily, emotionally stating "How it's so unfair", "Why our baby", and countless variations on that.
<br />
<br />All of these people...Be them brothers, sisters, mothers, fathers, cousins, uncles, nieces, nephews, or grandparents...Every single day, think of the poor sickly child they lost to this horrible disease. What would they look like now? What career would they have? What would their wedding have been like? How many children would they have had?
<br />
<br />The list is endless in the "what" dept. That is *JUST* CF and the people I knew. What about pediatric cancer? What about SIDS? What about horrible accidents?
<br />
<br />REMEMBER...You are still here. Even though all of our struggles are different, even though even the best CF's life is still torture to other "normal" people...YOU ARE STILL HERE!!
<br />
<br />Enjoy this gift you have been given. If it's another surgery, or a bad report of your PFT's, remember...YOU ARE STILL HERE!!! Unlike so many others roughly around your age, with the same disease, YOU ARE STILL HERE!!!
<br />
<br />Something as simple as walking by the orange groves in the spring and smelling the intoxicating smell of all the orange blossoms in bloom...Or hearing a child strongly laugh...Or seeing my lady wink at me...Or having some beers and bowling with friends and we rehash experiences from 17 years ago...Or hearing my very elderly mom say "I am so proud of you"...
<br />
<br />The examples should be endless, if you just stop and look around. Yeah our lives generally suck a big one. And most normal people would want to jump off a bridge rather than deal with what we have to deal with just to stay here another day. But you know what? Adversity truly does make you aware of just how good you have it. Something my other lungers here hate to see, but it *IS* the truth, "It could always be worse".
<br />
<br />
<br />
<br />Whenever I start to feel like ass, and no matter what is going on, I think back to the 40+ CF kids who I met at summer camp in my early teens, who are no longer here on planet earth. I remember their names. I remember their personalities. I remember our late night conversations with the moonlight barely streaming into the room onto our beds in the dorm room. I remember their dreams. All of which, cut way short soon afterwards by the same horrible disease I still have. I am one of maybe 3 survivors from those original 45-50 kids with CF. I am now 36, upon April 8th I will be 37. My lung function is still extremely good, though I have had a ton of problems, and continue to have problems of various sorts.
<br />
<br />After I get done thinking of those individual kids who I had close contacts/conversations with, and realizing they were all beautiful flowers cut down way before they should have, I then think about their parents, and their family. I met many if not all of them also. I remember seeing brothers and sisters of the CF kids on family day (regardless of age, some were very young, some were adults) off to the side, sitting by themself, crying away...Fearful of losing Jason, Melissa, or David. I remember walking into many emotional conversations between mother and father of a CF camp goer, angrily, emotionally stating "How it's so unfair", "Why our baby", and countless variations on that.
<br />
<br />All of these people...Be them brothers, sisters, mothers, fathers, cousins, uncles, nieces, nephews, or grandparents...Every single day, think of the poor sickly child they lost to this horrible disease. What would they look like now? What career would they have? What would their wedding have been like? How many children would they have had?
<br />
<br />The list is endless in the "what" dept. That is *JUST* CF and the people I knew. What about pediatric cancer? What about SIDS? What about horrible accidents?
<br />
<br />REMEMBER...You are still here. Even though all of our struggles are different, even though even the best CF's life is still torture to other "normal" people...YOU ARE STILL HERE!!
<br />
<br />Enjoy this gift you have been given. If it's another surgery, or a bad report of your PFT's, remember...YOU ARE STILL HERE!!! Unlike so many others roughly around your age, with the same disease, YOU ARE STILL HERE!!!
<br />
<br />Something as simple as walking by the orange groves in the spring and smelling the intoxicating smell of all the orange blossoms in bloom...Or hearing a child strongly laugh...Or seeing my lady wink at me...Or having some beers and bowling with friends and we rehash experiences from 17 years ago...Or hearing my very elderly mom say "I am so proud of you"...
<br />
<br />The examples should be endless, if you just stop and look around. Yeah our lives generally suck a big one. And most normal people would want to jump off a bridge rather than deal with what we have to deal with just to stay here another day. But you know what? Adversity truly does make you aware of just how good you have it. Something my other lungers here hate to see, but it *IS* the truth, "It could always be worse".
<br />
<br />
When I'm feeling good, and healthy, I go out and do something that "they" say CF people "can't" do...like go hiking up a trail in the woods, or snowboarding...something within your limits, but maybe something that you couldn't have done during the tumultuous times of your life...then say to yourself..."Wow, I'm DOING this...they say I wouldn't be able to...but I AM"
Sort of like giving yourself a physical challenge. Something the everyone else is doing, and instead of you NOT being able to do it, and stick out for not being able, BLENDING in with everyone else.
If nothing else, cherish the good feelings and not question or fear what might happen next...you have CF and that won't change (yet) but I like to think of myself as "normal" every once in a while.
Glad to hear you're feeling healthy <img src="i/expressions/face-icon-small-smile.gif" border="0"> Keep up the "compliance".
~Laura~
Sort of like giving yourself a physical challenge. Something the everyone else is doing, and instead of you NOT being able to do it, and stick out for not being able, BLENDING in with everyone else.
If nothing else, cherish the good feelings and not question or fear what might happen next...you have CF and that won't change (yet) but I like to think of myself as "normal" every once in a while.
Glad to hear you're feeling healthy <img src="i/expressions/face-icon-small-smile.gif" border="0"> Keep up the "compliance".
~Laura~
When I'm feeling good, and healthy, I go out and do something that "they" say CF people "can't" do...like go hiking up a trail in the woods, or snowboarding...something within your limits, but maybe something that you couldn't have done during the tumultuous times of your life...then say to yourself..."Wow, I'm DOING this...they say I wouldn't be able to...but I AM"
Sort of like giving yourself a physical challenge. Something the everyone else is doing, and instead of you NOT being able to do it, and stick out for not being able, BLENDING in with everyone else.
If nothing else, cherish the good feelings and not question or fear what might happen next...you have CF and that won't change (yet) but I like to think of myself as "normal" every once in a while.
Glad to hear you're feeling healthy <img src="i/expressions/face-icon-small-smile.gif" border="0"> Keep up the "compliance".
~Laura~
Sort of like giving yourself a physical challenge. Something the everyone else is doing, and instead of you NOT being able to do it, and stick out for not being able, BLENDING in with everyone else.
If nothing else, cherish the good feelings and not question or fear what might happen next...you have CF and that won't change (yet) but I like to think of myself as "normal" every once in a while.
Glad to hear you're feeling healthy <img src="i/expressions/face-icon-small-smile.gif" border="0"> Keep up the "compliance".
~Laura~
When I'm feeling good, and healthy, I go out and do something that "they" say CF people "can't" do...like go hiking up a trail in the woods, or snowboarding...something within your limits, but maybe something that you couldn't have done during the tumultuous times of your life...then say to yourself..."Wow, I'm DOING this...they say I wouldn't be able to...but I AM"
Sort of like giving yourself a physical challenge. Something the everyone else is doing, and instead of you NOT being able to do it, and stick out for not being able, BLENDING in with everyone else.
If nothing else, cherish the good feelings and not question or fear what might happen next...you have CF and that won't change (yet) but I like to think of myself as "normal" every once in a while.
Glad to hear you're feeling healthy <img src="i/expressions/face-icon-small-smile.gif" border="0"> Keep up the "compliance".
~Laura~
Sort of like giving yourself a physical challenge. Something the everyone else is doing, and instead of you NOT being able to do it, and stick out for not being able, BLENDING in with everyone else.
If nothing else, cherish the good feelings and not question or fear what might happen next...you have CF and that won't change (yet) but I like to think of myself as "normal" every once in a while.
Glad to hear you're feeling healthy <img src="i/expressions/face-icon-small-smile.gif" border="0"> Keep up the "compliance".
~Laura~
When I'm feeling good, and healthy, I go out and do something that "they" say CF people "can't" do...like go hiking up a trail in the woods, or snowboarding...something within your limits, but maybe something that you couldn't have done during the tumultuous times of your life...then say to yourself..."Wow, I'm DOING this...they say I wouldn't be able to...but I AM"
Sort of like giving yourself a physical challenge. Something the everyone else is doing, and instead of you NOT being able to do it, and stick out for not being able, BLENDING in with everyone else.
If nothing else, cherish the good feelings and not question or fear what might happen next...you have CF and that won't change (yet) but I like to think of myself as "normal" every once in a while.
Glad to hear you're feeling healthy <img src="i/expressions/face-icon-small-smile.gif" border="0"> Keep up the "compliance".
~Laura~
Sort of like giving yourself a physical challenge. Something the everyone else is doing, and instead of you NOT being able to do it, and stick out for not being able, BLENDING in with everyone else.
If nothing else, cherish the good feelings and not question or fear what might happen next...you have CF and that won't change (yet) but I like to think of myself as "normal" every once in a while.
Glad to hear you're feeling healthy <img src="i/expressions/face-icon-small-smile.gif" border="0"> Keep up the "compliance".
~Laura~
When I'm feeling good, and healthy, I go out and do something that "they" say CF people "can't" do...like go hiking up a trail in the woods, or snowboarding...something within your limits, but maybe something that you couldn't have done during the tumultuous times of your life...then say to yourself..."Wow, I'm DOING this...they say I wouldn't be able to...but I AM"
<br />Sort of like giving yourself a physical challenge. Something the everyone else is doing, and instead of you NOT being able to do it, and stick out for not being able, BLENDING in with everyone else.
<br />If nothing else, cherish the good feelings and not question or fear what might happen next...you have CF and that won't change (yet) but I like to think of myself as "normal" every once in a while.
<br />Glad to hear you're feeling healthy <img src="i/expressions/face-icon-small-smile.gif" border="0"> Keep up the "compliance".
<br />~Laura~
<br />Sort of like giving yourself a physical challenge. Something the everyone else is doing, and instead of you NOT being able to do it, and stick out for not being able, BLENDING in with everyone else.
<br />If nothing else, cherish the good feelings and not question or fear what might happen next...you have CF and that won't change (yet) but I like to think of myself as "normal" every once in a while.
<br />Glad to hear you're feeling healthy <img src="i/expressions/face-icon-small-smile.gif" border="0"> Keep up the "compliance".
<br />~Laura~
bittyhorse23
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>
NYC - maybe you can hang out in chat some nights. The mutants are real good about listening and cheering you up when you are down.
Take care...
</end quote></div>
David is right. We have a blast in chat and it is a way to talk to other people in your shoes but without talking about cf. it alone has helped me alot. I feel better knowing I have friends who understand what I am going through but also know ME as the PERSON. It might seem small and strange but I think it has helped alot for me. Plus its something fun to do while doing treatments so you can pretty much forget about them!!! I go in there when I am having a crappy day and with in 5 minutes I'm laughing my tush off! My bad day is forgotten and I start smiling and feeling SO much better!!
Also Amy was right about therapy. Even if it is only once a month to help clear your head. Sometimes it is great to just talk to someone who has no vested interest in your life and just let the negative emotions out.
<img src="i/expressions/heart.gif" border="0">
NYC - maybe you can hang out in chat some nights. The mutants are real good about listening and cheering you up when you are down.
Take care...
David is right. We have a blast in chat and it is a way to talk to other people in your shoes but without talking about cf. it alone has helped me alot. I feel better knowing I have friends who understand what I am going through but also know ME as the PERSON. It might seem small and strange but I think it has helped alot for me. Plus its something fun to do while doing treatments so you can pretty much forget about them!!! I go in there when I am having a crappy day and with in 5 minutes I'm laughing my tush off! My bad day is forgotten and I start smiling and feeling SO much better!!
Also Amy was right about therapy. Even if it is only once a month to help clear your head. Sometimes it is great to just talk to someone who has no vested interest in your life and just let the negative emotions out.
<img src="i/expressions/heart.gif" border="0">
bittyhorse23
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>
NYC - maybe you can hang out in chat some nights. The mutants are real good about listening and cheering you up when you are down.
Take care...
</end quote></div>
David is right. We have a blast in chat and it is a way to talk to other people in your shoes but without talking about cf. it alone has helped me alot. I feel better knowing I have friends who understand what I am going through but also know ME as the PERSON. It might seem small and strange but I think it has helped alot for me. Plus its something fun to do while doing treatments so you can pretty much forget about them!!! I go in there when I am having a crappy day and with in 5 minutes I'm laughing my tush off! My bad day is forgotten and I start smiling and feeling SO much better!!
Also Amy was right about therapy. Even if it is only once a month to help clear your head. Sometimes it is great to just talk to someone who has no vested interest in your life and just let the negative emotions out.
<img src="i/expressions/heart.gif" border="0">
NYC - maybe you can hang out in chat some nights. The mutants are real good about listening and cheering you up when you are down.
Take care...
David is right. We have a blast in chat and it is a way to talk to other people in your shoes but without talking about cf. it alone has helped me alot. I feel better knowing I have friends who understand what I am going through but also know ME as the PERSON. It might seem small and strange but I think it has helped alot for me. Plus its something fun to do while doing treatments so you can pretty much forget about them!!! I go in there when I am having a crappy day and with in 5 minutes I'm laughing my tush off! My bad day is forgotten and I start smiling and feeling SO much better!!
Also Amy was right about therapy. Even if it is only once a month to help clear your head. Sometimes it is great to just talk to someone who has no vested interest in your life and just let the negative emotions out.
<img src="i/expressions/heart.gif" border="0">
bittyhorse23
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>
NYC - maybe you can hang out in chat some nights. The mutants are real good about listening and cheering you up when you are down.
Take care...
</end quote></div>
David is right. We have a blast in chat and it is a way to talk to other people in your shoes but without talking about cf. it alone has helped me alot. I feel better knowing I have friends who understand what I am going through but also know ME as the PERSON. It might seem small and strange but I think it has helped alot for me. Plus its something fun to do while doing treatments so you can pretty much forget about them!!! I go in there when I am having a crappy day and with in 5 minutes I'm laughing my tush off! My bad day is forgotten and I start smiling and feeling SO much better!!
Also Amy was right about therapy. Even if it is only once a month to help clear your head. Sometimes it is great to just talk to someone who has no vested interest in your life and just let the negative emotions out.
<img src="i/expressions/heart.gif" border="0">
NYC - maybe you can hang out in chat some nights. The mutants are real good about listening and cheering you up when you are down.
Take care...
David is right. We have a blast in chat and it is a way to talk to other people in your shoes but without talking about cf. it alone has helped me alot. I feel better knowing I have friends who understand what I am going through but also know ME as the PERSON. It might seem small and strange but I think it has helped alot for me. Plus its something fun to do while doing treatments so you can pretty much forget about them!!! I go in there when I am having a crappy day and with in 5 minutes I'm laughing my tush off! My bad day is forgotten and I start smiling and feeling SO much better!!
Also Amy was right about therapy. Even if it is only once a month to help clear your head. Sometimes it is great to just talk to someone who has no vested interest in your life and just let the negative emotions out.
<img src="i/expressions/heart.gif" border="0">
bittyhorse23
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>
NYC - maybe you can hang out in chat some nights. The mutants are real good about listening and cheering you up when you are down.
Take care...
</end quote>
David is right. We have a blast in chat and it is a way to talk to other people in your shoes but without talking about cf. it alone has helped me alot. I feel better knowing I have friends who understand what I am going through but also know ME as the PERSON. It might seem small and strange but I think it has helped alot for me. Plus its something fun to do while doing treatments so you can pretty much forget about them!!! I go in there when I am having a crappy day and with in 5 minutes I'm laughing my tush off! My bad day is forgotten and I start smiling and feeling SO much better!!
Also Amy was right about therapy. Even if it is only once a month to help clear your head. Sometimes it is great to just talk to someone who has no vested interest in your life and just let the negative emotions out.
<img src="i/expressions/heart.gif" border="0">
NYC - maybe you can hang out in chat some nights. The mutants are real good about listening and cheering you up when you are down.
Take care...
David is right. We have a blast in chat and it is a way to talk to other people in your shoes but without talking about cf. it alone has helped me alot. I feel better knowing I have friends who understand what I am going through but also know ME as the PERSON. It might seem small and strange but I think it has helped alot for me. Plus its something fun to do while doing treatments so you can pretty much forget about them!!! I go in there when I am having a crappy day and with in 5 minutes I'm laughing my tush off! My bad day is forgotten and I start smiling and feeling SO much better!!
Also Amy was right about therapy. Even if it is only once a month to help clear your head. Sometimes it is great to just talk to someone who has no vested interest in your life and just let the negative emotions out.
<img src="i/expressions/heart.gif" border="0">
bittyhorse23
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>
<br />
<br />NYC - maybe you can hang out in chat some nights. The mutants are real good about listening and cheering you up when you are down.
<br />
<br />Take care...
</end quote>
<br />
<br />David is right. We have a blast in chat and it is a way to talk to other people in your shoes but without talking about cf. it alone has helped me alot. I feel better knowing I have friends who understand what I am going through but also know ME as the PERSON. It might seem small and strange but I think it has helped alot for me. Plus its something fun to do while doing treatments so you can pretty much forget about them!!! I go in there when I am having a crappy day and with in 5 minutes I'm laughing my tush off! My bad day is forgotten and I start smiling and feeling SO much better!!
<br />
<br />Also Amy was right about therapy. Even if it is only once a month to help clear your head. Sometimes it is great to just talk to someone who has no vested interest in your life and just let the negative emotions out.
<br />
<br /><img src="i/expressions/heart.gif" border="0">
<br />
<br />NYC - maybe you can hang out in chat some nights. The mutants are real good about listening and cheering you up when you are down.
<br />
<br />Take care...
<br />
<br />David is right. We have a blast in chat and it is a way to talk to other people in your shoes but without talking about cf. it alone has helped me alot. I feel better knowing I have friends who understand what I am going through but also know ME as the PERSON. It might seem small and strange but I think it has helped alot for me. Plus its something fun to do while doing treatments so you can pretty much forget about them!!! I go in there when I am having a crappy day and with in 5 minutes I'm laughing my tush off! My bad day is forgotten and I start smiling and feeling SO much better!!
<br />
<br />Also Amy was right about therapy. Even if it is only once a month to help clear your head. Sometimes it is great to just talk to someone who has no vested interest in your life and just let the negative emotions out.
<br />
<br /><img src="i/expressions/heart.gif" border="0">