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need to find a doctor

D

debby0617

Guest
Hello to each and every one and thank you all for what you are doing. I have a sister moving here to Knoxville from Atlanta and she is trying to find out if there is a good CF doctor/clinic near here. Our other sister, her twin, also had CF and went thru a double lung transplant and lived an extra 2 1/2 years. She said she never knew how good it felt not to cough all the time and to have so much energy. Then the rejection set in. That was no fun. But she said it was all worth it just to feel as good as she did for the 2 years she had. She has been gone now 3 years and it is still hard not to have her here. I know it is really tough on Terri knowing she might have to face the same thing. We also lost another sister with CF in the 50's, when it was really a new diagnosis. Anyway, being the big sister, I want to make sure I do what I can to make sure she gets the best care we can find here. So if anyone has any knowledge of doctors or clinics nearby, I would appreciate your input. And thanks for letting me ramble about my sisters. I do that sometimes because I love them so much. This disease just is so cruel.
Debby
 
D

debby0617

Guest
Hello to each and every one and thank you all for what you are doing. I have a sister moving here to Knoxville from Atlanta and she is trying to find out if there is a good CF doctor/clinic near here. Our other sister, her twin, also had CF and went thru a double lung transplant and lived an extra 2 1/2 years. She said she never knew how good it felt not to cough all the time and to have so much energy. Then the rejection set in. That was no fun. But she said it was all worth it just to feel as good as she did for the 2 years she had. She has been gone now 3 years and it is still hard not to have her here. I know it is really tough on Terri knowing she might have to face the same thing. We also lost another sister with CF in the 50's, when it was really a new diagnosis. Anyway, being the big sister, I want to make sure I do what I can to make sure she gets the best care we can find here. So if anyone has any knowledge of doctors or clinics nearby, I would appreciate your input. And thanks for letting me ramble about my sisters. I do that sometimes because I love them so much. This disease just is so cruel.
Debby
 
D

debby0617

Guest
Hello to each and every one and thank you all for what you are doing. I have a sister moving here to Knoxville from Atlanta and she is trying to find out if there is a good CF doctor/clinic near here. Our other sister, her twin, also had CF and went thru a double lung transplant and lived an extra 2 1/2 years. She said she never knew how good it felt not to cough all the time and to have so much energy. Then the rejection set in. That was no fun. But she said it was all worth it just to feel as good as she did for the 2 years she had. She has been gone now 3 years and it is still hard not to have her here. I know it is really tough on Terri knowing she might have to face the same thing. We also lost another sister with CF in the 50's, when it was really a new diagnosis. Anyway, being the big sister, I want to make sure I do what I can to make sure she gets the best care we can find here. So if anyone has any knowledge of doctors or clinics nearby, I would appreciate your input. And thanks for letting me ramble about my sisters. I do that sometimes because I love them so much. This disease just is so cruel.
Debby
 
D

debby0617

Guest
Hello to each and every one and thank you all for what you are doing. I have a sister moving here to Knoxville from Atlanta and she is trying to find out if there is a good CF doctor/clinic near here. Our other sister, her twin, also had CF and went thru a double lung transplant and lived an extra 2 1/2 years. She said she never knew how good it felt not to cough all the time and to have so much energy. Then the rejection set in. That was no fun. But she said it was all worth it just to feel as good as she did for the 2 years she had. She has been gone now 3 years and it is still hard not to have her here. I know it is really tough on Terri knowing she might have to face the same thing. We also lost another sister with CF in the 50's, when it was really a new diagnosis. Anyway, being the big sister, I want to make sure I do what I can to make sure she gets the best care we can find here. So if anyone has any knowledge of doctors or clinics nearby, I would appreciate your input. And thanks for letting me ramble about my sisters. I do that sometimes because I love them so much. This disease just is so cruel.
Debby
 
D

debby0617

Guest
Hello to each and every one and thank you all for what you are doing. I have a sister moving here to Knoxville from Atlanta and she is trying to find out if there is a good CF doctor/clinic near here. Our other sister, her twin, also had CF and went thru a double lung transplant and lived an extra 2 1/2 years. She said she never knew how good it felt not to cough all the time and to have so much energy. Then the rejection set in. That was no fun. But she said it was all worth it just to feel as good as she did for the 2 years she had. She has been gone now 3 years and it is still hard not to have her here. I know it is really tough on Terri knowing she might have to face the same thing. We also lost another sister with CF in the 50's, when it was really a new diagnosis. Anyway, being the big sister, I want to make sure I do what I can to make sure she gets the best care we can find here. So if anyone has any knowledge of doctors or clinics nearby, I would appreciate your input. And thanks for letting me ramble about my sisters. I do that sometimes because I love them so much. This disease just is so cruel.
Debby
 
A

Aspiemom

Guest
You're a good sister, Debby!

I'm not sure about what else is available to the Knoxville circumference but I live in the Chattanooga area and I go to Vanderbilt in Nashville. UAB has an adult clinic and is the same distance from me but I chose Atlanta because they are more established. I think there is someone else on here from Knoxville that goes to Vanderbilt also.

I will tell you that Chattanooga has a CF clinic that mostly treats children but also does some adults. I did not care for that dr. Having moved here from PA where I had been treated at Johns Hopkins for several years, the dr. in Chattanooga changed everything JH did the first time he met me, w/o knowing me. I felt like I was getting excellent care at Johns Hopkins and that really bothered me that he felt he knew better than them!! Plus one thing he did was prescribe Pulmozyme 2x/day and other CF drs have said that there is no proof that Pulm. is any more effective 2x/day and it's a waste of time and money. There were some other things I didn't care for, but just wanted to tell you that I, personally, don't recommend him.

I'm not sure what's the the East of you, as far as clinics. Best of wishes to her. Does she participate at this site?
 
A

Aspiemom

Guest
You're a good sister, Debby!

I'm not sure about what else is available to the Knoxville circumference but I live in the Chattanooga area and I go to Vanderbilt in Nashville. UAB has an adult clinic and is the same distance from me but I chose Atlanta because they are more established. I think there is someone else on here from Knoxville that goes to Vanderbilt also.

I will tell you that Chattanooga has a CF clinic that mostly treats children but also does some adults. I did not care for that dr. Having moved here from PA where I had been treated at Johns Hopkins for several years, the dr. in Chattanooga changed everything JH did the first time he met me, w/o knowing me. I felt like I was getting excellent care at Johns Hopkins and that really bothered me that he felt he knew better than them!! Plus one thing he did was prescribe Pulmozyme 2x/day and other CF drs have said that there is no proof that Pulm. is any more effective 2x/day and it's a waste of time and money. There were some other things I didn't care for, but just wanted to tell you that I, personally, don't recommend him.

I'm not sure what's the the East of you, as far as clinics. Best of wishes to her. Does she participate at this site?
 
A

Aspiemom

Guest
You're a good sister, Debby!

I'm not sure about what else is available to the Knoxville circumference but I live in the Chattanooga area and I go to Vanderbilt in Nashville. UAB has an adult clinic and is the same distance from me but I chose Atlanta because they are more established. I think there is someone else on here from Knoxville that goes to Vanderbilt also.

I will tell you that Chattanooga has a CF clinic that mostly treats children but also does some adults. I did not care for that dr. Having moved here from PA where I had been treated at Johns Hopkins for several years, the dr. in Chattanooga changed everything JH did the first time he met me, w/o knowing me. I felt like I was getting excellent care at Johns Hopkins and that really bothered me that he felt he knew better than them!! Plus one thing he did was prescribe Pulmozyme 2x/day and other CF drs have said that there is no proof that Pulm. is any more effective 2x/day and it's a waste of time and money. There were some other things I didn't care for, but just wanted to tell you that I, personally, don't recommend him.

I'm not sure what's the the East of you, as far as clinics. Best of wishes to her. Does she participate at this site?
 
A

Aspiemom

Guest
You're a good sister, Debby!

I'm not sure about what else is available to the Knoxville circumference but I live in the Chattanooga area and I go to Vanderbilt in Nashville. UAB has an adult clinic and is the same distance from me but I chose Atlanta because they are more established. I think there is someone else on here from Knoxville that goes to Vanderbilt also.

I will tell you that Chattanooga has a CF clinic that mostly treats children but also does some adults. I did not care for that dr. Having moved here from PA where I had been treated at Johns Hopkins for several years, the dr. in Chattanooga changed everything JH did the first time he met me, w/o knowing me. I felt like I was getting excellent care at Johns Hopkins and that really bothered me that he felt he knew better than them!! Plus one thing he did was prescribe Pulmozyme 2x/day and other CF drs have said that there is no proof that Pulm. is any more effective 2x/day and it's a waste of time and money. There were some other things I didn't care for, but just wanted to tell you that I, personally, don't recommend him.

I'm not sure what's the the East of you, as far as clinics. Best of wishes to her. Does she participate at this site?
 
A

Aspiemom

Guest
You're a good sister, Debby!

I'm not sure about what else is available to the Knoxville circumference but I live in the Chattanooga area and I go to Vanderbilt in Nashville. UAB has an adult clinic and is the same distance from me but I chose Atlanta because they are more established. I think there is someone else on here from Knoxville that goes to Vanderbilt also.

I will tell you that Chattanooga has a CF clinic that mostly treats children but also does some adults. I did not care for that dr. Having moved here from PA where I had been treated at Johns Hopkins for several years, the dr. in Chattanooga changed everything JH did the first time he met me, w/o knowing me. I felt like I was getting excellent care at Johns Hopkins and that really bothered me that he felt he knew better than them!! Plus one thing he did was prescribe Pulmozyme 2x/day and other CF drs have said that there is no proof that Pulm. is any more effective 2x/day and it's a waste of time and money. There were some other things I didn't care for, but just wanted to tell you that I, personally, don't recommend him.

I'm not sure what's the the East of you, as far as clinics. Best of wishes to her. Does she participate at this site?
 
J

Jem

New member
Debbie, welcome and thank you for sharing your sisters with us. I am sorry for your loss. I can feel the love you have for each of them. <img src="i/expressions/heart.gif" border="0">

Here is a link to cf clinics in Tennessee. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/CFFoundation-accreditedCareCenters/index.cfm?state=TN">http://www.cff.org/LivingWithC...ers/index.cfm?state=TN</a>
I'm sure you will hear from others with personal knowledge of their cf clinic experience in this area.

I have a big sister too who is very good with being supportive...it means so much. I am sure your sister appreciates you very much. Good luck to your sister. I will be keeping you both in prayer.
 
D

debby0617

Guest
Terri just turned 40 in June, and I am 54. So she is kinda like my own child since my oldest daughter is 36. She has known she has cf since a baby. Since my mom had lost a child in the 50's with cf, she knew the symptoms, so they were treated from early on. She is not in this site yet. I just found it yesterday and told her about it. She is really excited to get involved with it. She finds it hard not to have anyone to talk to about her cf..except me. We have a very close relationship and with me being a nurse she thinks I know everything.haha I know it will be so great for her to have people to talk with and express her feeling that I'm sure she doesn't even tell me about. Who do you see in Nashville? Any certain Dr? That is where Sherri had her transplant and everyone there was so nice.
deb
 
J

Jem

New member
Debbie, welcome and thank you for sharing your sisters with us. I am sorry for your loss. I can feel the love you have for each of them. <img src="i/expressions/heart.gif" border="0">

Here is a link to cf clinics in Tennessee. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/CFFoundation-accreditedCareCenters/index.cfm?state=TN">http://www.cff.org/LivingWithC...ers/index.cfm?state=TN</a>
I'm sure you will hear from others with personal knowledge of their cf clinic experience in this area.

I have a big sister too who is very good with being supportive...it means so much. I am sure your sister appreciates you very much. Good luck to your sister. I will be keeping you both in prayer.
 
D

debby0617

Guest
Terri just turned 40 in June, and I am 54. So she is kinda like my own child since my oldest daughter is 36. She has known she has cf since a baby. Since my mom had lost a child in the 50's with cf, she knew the symptoms, so they were treated from early on. She is not in this site yet. I just found it yesterday and told her about it. She is really excited to get involved with it. She finds it hard not to have anyone to talk to about her cf..except me. We have a very close relationship and with me being a nurse she thinks I know everything.haha I know it will be so great for her to have people to talk with and express her feeling that I'm sure she doesn't even tell me about. Who do you see in Nashville? Any certain Dr? That is where Sherri had her transplant and everyone there was so nice.
deb
 
J

Jem

New member
Debbie, welcome and thank you for sharing your sisters with us. I am sorry for your loss. I can feel the love you have for each of them. <img src="i/expressions/heart.gif" border="0">

Here is a link to cf clinics in Tennessee. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/CFFoundation-accreditedCareCenters/index.cfm?state=TN">http://www.cff.org/LivingWithC...ers/index.cfm?state=TN</a>
I'm sure you will hear from others with personal knowledge of their cf clinic experience in this area.

I have a big sister too who is very good with being supportive...it means so much. I am sure your sister appreciates you very much. Good luck to your sister. I will be keeping you both in prayer.
 
D

debby0617

Guest
Terri just turned 40 in June, and I am 54. So she is kinda like my own child since my oldest daughter is 36. She has known she has cf since a baby. Since my mom had lost a child in the 50's with cf, she knew the symptoms, so they were treated from early on. She is not in this site yet. I just found it yesterday and told her about it. She is really excited to get involved with it. She finds it hard not to have anyone to talk to about her cf..except me. We have a very close relationship and with me being a nurse she thinks I know everything.haha I know it will be so great for her to have people to talk with and express her feeling that I'm sure she doesn't even tell me about. Who do you see in Nashville? Any certain Dr? That is where Sherri had her transplant and everyone there was so nice.
deb
 
J

Jem

New member
Debbie, welcome and thank you for sharing your sisters with us. I am sorry for your loss. I can feel the love you have for each of them. <img src="i/expressions/heart.gif" border="0">

Here is a link to cf clinics in Tennessee. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/CFFoundation-accreditedCareCenters/index.cfm?state=TN">http://www.cff.org/LivingWithC...ers/index.cfm?state=TN</a>
I'm sure you will hear from others with personal knowledge of their cf clinic experience in this area.

I have a big sister too who is very good with being supportive...it means so much. I am sure your sister appreciates you very much. Good luck to your sister. I will be keeping you both in prayer.
 
D

debby0617

Guest
Terri just turned 40 in June, and I am 54. So she is kinda like my own child since my oldest daughter is 36. She has known she has cf since a baby. Since my mom had lost a child in the 50's with cf, she knew the symptoms, so they were treated from early on. She is not in this site yet. I just found it yesterday and told her about it. She is really excited to get involved with it. She finds it hard not to have anyone to talk to about her cf..except me. We have a very close relationship and with me being a nurse she thinks I know everything.haha I know it will be so great for her to have people to talk with and express her feeling that I'm sure she doesn't even tell me about. Who do you see in Nashville? Any certain Dr? That is where Sherri had her transplant and everyone there was so nice.
deb
 
J

Jem

New member
Debbie, welcome and thank you for sharing your sisters with us. I am sorry for your loss. I can feel the love you have for each of them. <img src="i/expressions/heart.gif" border="0">

Here is a link to cf clinics in Tennessee. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/CFFoundation-accreditedCareCenters/index.cfm?state=TN">http://www.cff.org/LivingWithC...ers/index.cfm?state=TN</a>
I'm sure you will hear from others with personal knowledge of their cf clinic experience in this area.

I have a big sister too who is very good with being supportive...it means so much. I am sure your sister appreciates you very much. Good luck to your sister. I will be keeping you both in prayer.
 
D

debby0617

Guest
Terri just turned 40 in June, and I am 54. So she is kinda like my own child since my oldest daughter is 36. She has known she has cf since a baby. Since my mom had lost a child in the 50's with cf, she knew the symptoms, so they were treated from early on. She is not in this site yet. I just found it yesterday and told her about it. She is really excited to get involved with it. She finds it hard not to have anyone to talk to about her cf..except me. We have a very close relationship and with me being a nurse she thinks I know everything.haha I know it will be so great for her to have people to talk with and express her feeling that I'm sure she doesn't even tell me about. Who do you see in Nashville? Any certain Dr? That is where Sherri had her transplant and everyone there was so nice.
deb
 
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